matters of heart

may 2018   

REGISTER NOW for the 2018
 Loeys-Dietz Syndrome Foundation Conference

Friday, July 6th to Sunday, July 8th
Holiday Inn Baltimore-Inner Harbor, Baltimore, MD
301 West Lombard Street
We hope you'll Take Heart and join us this summer in Baltimore to meet other LDS families and learn from some of the top medical professionals working with LDS patients.

Newly released: Conference Agenda!
Registration: May 7-June 4, 2018 (adult cost: $210, child/teen cost: $110)

Hotel Information: We have a secure block of rooms that will be filled on a first-come first-serve basis.   AFTER YOU REGISTER, code for conference hotel pricing will be emailed to you.  We encourage early registration.  Reservation cut-off is June 5, 2018
Please contact with questions


Stay tuned for our June-July online fundraiser! 

Start making a list of all those birthday and Christmas presents you need.  We're selling eco-friendly tote bags, travel bags, kitchenware & more through a Mixed Bag Designs Fundraiser. Check out the website and stay tuned for LDSF code. All orders over $75 ship for free directly to you!


In the news...LDS fighters doing AMAZING things!

Max Harris to present on his 2017 book The New Zealand Project.  As a Rhodes Scholar at Oxford University Harris gained a master's and a bachelor's degree, and also has a law/arts conjoint degree from Auckland University. He was diagnosed with Loeys-Dietz syndrome in the midst of all of this! Read article

A tremendous  THANK YOU!  to all our incredible and generous donors. It's through your support that we are able to help keep conferences expenses as low as we can for participants. And, how we are meeting our goals to support research