The word is neurofibromatosis

May is Neurofibromatosis Awareness Month! Spread awareness by joining the #TheWordIs campaign.  Read more
Washington University professor receives $3.5M grant

David H. Gutmann, director of the Neurofibromatosis Center at the Washing University School of Medicine in St. Louis, was awarded a $3.5 million grant to study NF1.

NF mother on a mission

Melanie Leach raises NF awareness by organizing walks and bake sales in addition to traveling to D.C. each year to meet congressional staff.

Symposium leaves attendees hopeful

More than 80 people attended the University of Wisconsin's inaugural NF1 Symposium May 3. The event left attendees with "a feeling of hope and excitement." 

Broadway stars raise funds for NF

Jeff Leibow called upon Broadway friends including Chad Kimball and Mary Callanan to appear May 8 at a concert at New York’s SubCulture nightclub to raise money for the Neurofibromatosis Network. 

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The mission of the  NF Network "is  to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?