The word is neurofibromatosis May is Neurofibromatosis Awareness Month! Spread awareness by joining the #TheWordIs campaign.  Read more

Washington University professor receives $3.5M grant David H. Gutmann, director of the Neurofibromatosis Center at the Washing University School of Medicine in St. Louis, was awarded a $3.5 million grant to study NF1. Read more NF mother on a mission Melanie Leach raises NF awareness by organizing walks and bake sales in addition to traveling to D.C. each year to meet congressional staff. Read more

Symposium leaves attendees hopeful More than 80 people attended the University of Wisconsin's inaugural NF1 Symposium May 3. The event left attendees with "a feeling of hope and excitement."  Read more Broadway stars raise funds for NF Jeff Leibow called upon Broadway friends including Chad Kimball and Mary Callanan to appear May 8 at a concert at New York’s SubCulture nightclub to raise money for the Neurofibromatosis Network.  Read more

Upcoming Events

The mission of the  NF Network "is  to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF." Will you join with us?