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As vernal vibrancy blossoms around us this spring, we are feeling so blessed to have that vibrancy echo throughout this community. In addition to some amazing contributions to kick off our ongoing We.Are.Living.Proof. campaign, we received so much joy and love from our new event Living Proof: a Cabaret! Share in these survivors' testimonials of truth and relive the vibrant event with our new video libraries here: We.Are.Living.Proof. and Living Proof: a Cabaret!
We’re also excited to share new resources, stories, and educational opportunities this month. We invite you to join us on June 18 for an upcoming webinar on gastric cancer, Stomach Cancer and Peritoneal Metastasis: Advancing Treatment Through Clinical Trials featuring Dr. Maheswari Senthil, where attendees will gain valuable insights into treatment, care, and the latest developments in the field. If you missed our April webinar on ostomy care, a recording is now available to watch at your convenience. And we’re pleased to share a new financial support resource to help patients and families navigate the challenges of cancer care.
And we're looking ahead to our Annual Golf Outing coming up this September 28th - we hope you'll bring your clubs to join us for this 17th year of chipping for specialized care!
Thank you for being a part of this community,
The Alliance Team
| | Updates from the Alliance | | |
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Stomach Cancer and Peritoneal Metastasis: Advancing Treatment Through Clinical Trials
Thursday, June 18 at Noon ET
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Stomach cancer that spreads to the peritoneum remains one of the most complex and difficult-to-treat forms of the disease, often with limited treatment options and outcomes.
Expanding access to new approaches—especially through clinical trials—is critical to improving care. In this webinar, Dr. Senthil will explore current treatment strategies and highlight promising clinical trials available in the US, offering insight into emerging options and what they could mean for patients and families.
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| Living Proof Video Library Now Available! | In a room filled with warmth, courage, and an unmistakable sense of community, seven abdominal cancers survivors took the stage for Living Proof: a Cabaret! Connected by shared experiences with abdominal cancers, it was a celebration of shared challenges, resilience, and the power of human connection through storytelling and song. It was an experience that left all energized, inspired, and deeply moved. | We invite you to relive - or experience for the first time! - this special event and watch the performances, speeches, and storytelling that these survivors had to share! |
| Save Your Spot for Our 17th Annual Golf Outing! | Join us for a beautiful day out on the greens in support of the fight against abdominal cancers. Your support helps us advance our work supporting patients and caregivers facing these cancers: from navigating to the specialized care they need, to supporting them throughout their cancer journey! | | Webinar Recording Available: Demystifying Ostomies | |
An ostomy can feel overwhelming—especially during cancer treatment. This webinar offered clear, practical guidance to help patients and caregivers feel more prepared and confident.
We covered why ostomies are needed, what to expect after surgery, and how to manage daily life, including appliance care, skin health, nutrition, and emotional adjustment. Whether temporary or permanent, this session provided trusted information and supportive resources to help you move forward with confidence.
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| Understanding Financial Assistance: A New Resource for Patients and Caregivers on the Cancer Journey | |
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The financial side of cancer care can feel just as overwhelming as the medical side. Between hospital stays, treatments, tests, and ongoing care, medical bills can quickly add stress at a time when your focus should be on your health. Many patients and caregivers are surprised to learn that financial assistance is often available through hospitals, even for those who have insurance. Knowing about these programs — and how to access them — can make a meaningful difference.
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| | The "New Normal”: My Journey with Stage IV Appendix Cancer | A sudden pain turned into a life-altering diagnosis, sending one woman on an unexpected journey with a rare Stage IV appendix cancer. In this powerful story, she shares the challenges, resilience, and determination it takes to redefine a “new normal.” | | | | We want to give others hope! We all have a story to tell, and we would be honored to share yours. Join us in raising awareness and send us your story today! |
| Ascites May Help Ovarian Cancer Spread - and an Older Cholesterol Drug Could Help Disrupt It | |
A newly published study sheds light on an important question in ovarian cancer research: why ovarian cancer cells are often able to survive and spread throughout the abdominal cavity.
Researchers found that ascites — the buildup of fluid in the abdomen that commonly occurs in advanced ovarian cancer — may actively help cancer cells survive and metastasize. Their findings also suggest that a decades-old cholesterol medication may help weaken this protective effect.
| | | Research Highlights Why Follow-Up Care Matters for Patients With Appendiceal Cancer | |
A new study from researchers, led by Dr. John Paul Shen, at The University of Texas MD Anderson Cancer Center is helping doctors better understand how routine follow-up testing may improve care for people living with appendiceal cancer, a rare cancer that begins in the appendix.
Researchers found that common blood tests known may help predict how patients respond to treatment and whether their cancer is more likely to return after surgery.
The findings reinforce an important message for patients and caregivers: follow-up care is a critical part of cancer treatment and survivorship.
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The Appendix Cancer/PMP Patient Registry from the ACPMP Research Foundation - A global patient registry to study appendix cancer and PMP | |
The Appendix Cancer/PMP Patient Registry collects critical information to help build a better understanding of this rare cancer and drive new therapies forward. Launched in partnership with the National Organization for Rare Disorders (NORD), this global patient registry provides the community with an invaluable dataset to to study appendix cancer and PMP.
For more information about how to register, click here.
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Coping with Stress: Webinar with Triage Cancer
May 27 at 1:00pm ET
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We're happy to support our partner, Triage Cancer, and their May 27 webinar on practical steps to cope with stress. This session will explore why uncertainty weighs so heavily on our mental and emotional wellbeing, and provide practical strategies to manage stress, worry, and fear. Attendees will gain tools to sharpen self-awareness, cope with intense emotions, and create sustainable practices for resilience. In recognition of Mental Health Awareness Month, this webinar will highlight realistic ways to find calm, stay grounded, and build stability in the midst of change.
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Join the Patient and Caregiver Network | |
Be a part of our dedicated network connecting patients and caregivers. Our mission is to save lives and improve quality of life by fostering a community where individuals can share experiences and find support in the face of rare and advanced gastrointestinal and gynecologic cancers.
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