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This month’s issue reflects the incredible work happening across our community and I’m excited to share important updates, opportunities, and events on the horizon.
Our team recently returned from the Asembia AXS25 Summit energized and inspired, reminding us of why our work matters. We’re excited to turn these new insights into actionable steps for the communities we serve! Accessia Health was honored to be featured across multiple conference media platforms speaking on the urgency of health equity, the impact of social determinants, and the evolving needs of patients navigating specialty care.
You can find us at panel sessions at the upcoming BIO International Convention, with our esteemed and trusted Compliance Adviser, William Sarraille, on June 18th as well as at the NICA Annual Conference on June 21st. Both sessions cover the rising need for copay and premium assistance. In today’s landscape, our shared commitment to affordable access must be stronger than ever.
We’re preparing to launch a quarterly Policy and Advocacy newsletter! Take a moment to subscribe today and stay on top of the latest news from Capitol Hill regarding legislative and program updates.
Thank you, as always, for being part of the Accessia Health community. We’re grateful to walk alongside you in our mission to break down barriers and bring holistic support to every person who needs it.
| | AXS25: Innovation, Collaboration, and Compassion | | |
The Accessia Health team had a wonderful time at this year's Asembia AXS25 conference! Our leaders’ attendance represented an ongoing mission into understanding new patient assistance perspectives and purpose through meaningful dialogue and collaboration.
From learning about real-time engagement platforms to better support patients to a few fun rounds of JENGA that symbolized the fragile balance between rising healthcare costs and critical support programs, we continue to look forward to building on the connections we made and turning these insights into action for the patients and families we serve every day.
| | Check out our conferences webpage for the events Accessia Health is attending and make plans to connect with us on site! | | Advancing Health Equity for Rare Disease Patients | | |
With nearly $220 billion in medical debt burdening Americans today, health equity for patients, especially those living with rare diseases and chronic conditions, has never been more critical. Individuals managing rare diseases often face disproportionately high healthcare costs, complex navigation through the healthcare system, and significant disparities in access to necessary care.
Tiara Green sat down with The American Journal of Healthcare Strategy to offer a unique and powerful perspective rooted in personal experience and professional expertise, aiming to bridge the gap between financial hardship and quality care.
| | Discover Our New Health Blogs | | |
Understanding CIDP: Navigating Life with a Chronic Neuropathy Diagnosis
Living with chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) can mean navigating daily fatigue, muscle weakness, and uncertainty around treatment outcomes—all of which can take a toll both physically and emotionally. For many individuals, the burden of managing symptoms is compounded by the high cost of ongoing care.
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Living with Sarcoidosis: Insights and Support
Sarcoidosis, a condition that causes tiny collections of immune system cells (granulomas) to form in one or more organs in the body when triggered by bacteria, viruses, dust or chemicals, is estimated to affect between 150,000-200,000 Americans, and over 1.2 million people worldwide. Accessia Health aims to educate about the symptoms, risk factors, treatment options, and support management.
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At the time of this email, the following programs are open and accepting applications. Apply today for assistance*.
- Asthma
- Circadian Rhythm Disorders
- Fabry
- Gaucher Disease
- Healthy People. Healthy Communities. Oral Health Fund - serving MI, IN, and OH
- Hereditary Angioedema
- Hypoparathyroidism
- Kidney Stones
- MPS 1
- Myasthenia Gravis
- Plasminogen Deficiency
- Pompe
*Program space is limited and is offered on a first-come, first-served basis. Programs will only remain open as long as funding is available.
If a program is full, you can still apply to add your name to the program waitlist. Once you are on the waitlist, you will be notified if assistance becomes available.
To apply:
- Click the button below.
- Select 'open' under 'step two'.
- Select the appropriate program and begin the application process.
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Subscribe Today: Policy and Advocacy Newsletter
Our Policy & Advocacy Newsletter is launching in June! Tailored for those who want to stay up to date on legislative actions impacting patient assistance, public health programs, and key administrative decisions, this quarterly email will deliver deeper insights into the policy landscape shaping how patients are served through video and educational content. Subscribe now to get timely, relevant updates straight from Capitol Hill.
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May 2025 - Full Policy Updates
Congressional Republicans are advancing a budget reconciliation package focused on tax and spending reforms, which requires only a simple majority. While the House has made progress through committee markups, the Senate is awaiting action. Deep party divides, especially over tax deductions and benefit cuts, make the bill’s passage uncertain.
| | | Has Accessia Health Helped You? | | |
Have we made a difference in your life? Whether you’re a patient who has received critical support, a caregiver helping a loved one navigate care, an advocate fighting for better access to healthcare, or a valued partner working alongside us—we want to hear your story.
By sharing your journey, you can inspire others facing similar challenges, strengthen our mission, and help us continue to advocate for those in need.
If Accessia Health has played a role in your healthcare journey, we’d love to hear about it.
| | Accessia Health, a national charitable patient assistance organization, is dedicated to eliminating healthcare barriers for people with rare or chronic health conditions. Comprehensive services include personalized case management, financial assistance, education, and legal aid support. Our flexible funding model goes beyond copays, allowing individuals to pay for other essential medical expenses including insurance premiums, screening and diagnostics, therapy services, travel costs and more. Accessia Health works to ensure that every individual has access to the care they need to lead a healthier life. | | |
Accessia Health exists because of generous donations from our community.
Consider making a gift to provide health and hope to patients nationwide.
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