May eNews
ALS Awareness Month is Here!
We’re excited to kick off National ALS Awareness Month, which takes place each May. The next few weeks will be dedicated to education and outreach about the disease, available services to support those living with ALS, and current research programs to find treatments and a cure.

Learn more about this devastating disease and help raise ALS awareness to family, friends, and co-workers by clicking the button below.
Big Day of Giving 2019

On Thursday, May 2 nd, the Chapter participated in Sacramento’s Big Day of Giving, raising over $33,000 in support of the Get Smart Equipment Loan Program. We appreciate our donors for raising these critical funds, which will be used to provide technology and equipment that helps those we serve better navigate their world with ALS.
Thank You Sundt!

On May 3 rd , Sundt Construction hosted the 10 th Annual Mike Gaines Sacramento Charity Golf Tournament. The tournament raised an incredible $50,500 to support research programs aimed at finding treatments and a cure for ALS. Sundt’s long history of supporting the ALS community through charity events has resulted in over $2.2 million raised in total for ALS research. We are grateful for Sundt’s philanthropic spirit and their efforts to put an end to ALS.
Thank you to all for supporting our efforts to better serve the Sacramento ALS community!
2019 Walk to Defeat ALS
In honor of ALS Awareness Month, now is the time to register for the 2019 Walk to Defeat ALS®, held on Saturday, October 5th, 2019 at Raley Field in West Sacramento. Kick start your fundraising by meeting with Stefanie for a Team Captain Lunch and Learn and together we will develop with a personalized strategy to meet (or exceed!) your goal!
Register your team by clicking the link below and join us on our quest to END ALS!
Please do not hesitate to reach out to Stefanie Daniels at for any questions you may have or for support along the way!
Ready to Ride to Defeat ALS?

When: September 21st 2019

Where: Yountville Veterans Home Picnic Grounds

The 15th Annual Napa Valley Ride to Defeat ALS is a one-day cycling event designed to appeal to every level of cyclist and supporter of The ALS Association. Every participant can count on support from start to finish with rest stops, SAG (support and gear) vehicles, route monitors, and CHP presence. Upon completing the tour, riders are welcomed back by cheering crowds and finish line festivities that include a live band, a delicious BBQ lunch, and more!

Contact Stefanie Daniels for more information and to register at or 916-979-9265
Team Challenge ALS

Grab a friend and join Team Challenge ALS in 2019! Combine your passion and commitment to finding a cure for ALS while achieving physical challenges through athletic events, such as marathons, triathlons, long-distance rides, swimming, and other endurance activities. You will get fit, make new friends, and change lives!
Contact Fundraising & Special Events Manager Stefanie Daniels at or 916-979-9265 for more info
ALS Care Connection Webinar
Monday, May 20, 2019
11:00am PST

"How can I help?" ask many friends and neighbors. The answer: The ALS Care Connection! Learn how to easily use this private online calendar where family needs are posted. Friends, neighbors, and volunteers who want to help can then view and identify needs, activities, or errands they can fulfill.
Challenging Youth to Join the Fight
The ALS Association is launching a campaign to engage kids and teenagers in the fight against ALS, issuing the ALS Youth Challenge and celebrating the first-ever ALS Youth Action Day. Our chapters across the country will be partnering with youth organizations in their communities to identify future activists and philanthropists who will help to defeat ALS by accepting the ALS Youth Challenge.
A Look Back at Over $16 Million in Research Grants Awarded During 2018
It’s ALS Awareness Month, and The ALS Association remains steadfastly committed to funding the most hopeful research around the world that could lead to effective treatments and a cure for ALS.
Since the ALS Ice Bucket Challenge soaked the world almost five years ago, we have tripled our annual research budget.
Biogen to Present Promising Results of Phase 1/2 Trial of Antisense Targeting SOD1

This week at the American Academy of Neurology Meeting (AAN) in Philadelphia, Biogen will present promising results of the phase 1/2 study of its newly named investigational therapy Tofersen (previously BIIB067), which is now enrolling in a phase 3 trial.
Revised ALS Clinical Trals Consensus Guidelines Modernize Trial Practices

The ALS Association is proud to be a longtime supporter of the Airlie House ALS Clinical Trials Consensus Guidelines, which have been revised and published in Neurology, the most widely read and highly cited peer-reviewed neurology journal.
New Jane Calmes ALS Scholarship Fund to Help Students Impacted by ALS Pursue Secondary Education
The ALS Association is launching a new scholarship program that will fund up to $5,000 per year for at least 30 students whose personal or family finances are compromised by the financial burden of ALS. The scholarships apply to students seeking college degrees or vocational certificates.