“Having seen first-hand the damage that ALS inflicts, I want to rid the world from it for good. Participating in DIALS - and now Prevent ALS - provides such a feeling of connection and community in an area where it’s so easy to feel isolated and alone. The DIALS team took me from a period of unknowing, doubt, fear and insecurity to compassion, care and community. Now I feel like I can have a direct impact on finding a cure - that’s the ultimate goal. It’s so personal - I could save my own life.” - Daniel, DIALS and PREVENT ALS participant.
PREVENT ALS: STOPPING THE DISEASE BEFORE IT STARTS
Our global research efforts and philanthropic support are now allowing us to think about preventive strategies, in addition to earlier diagnosis and intervention. This is a huge leap forward, thanks in no small part to the families with one of the inherited genes who are willing to share samples and participate in research studies. PREVENT ALS is an initiative with big aims: It holds the key to stopping ALS in its tracks – before it even begins. Already, we know that few things are more important than treating ALS early. 

Our goal is to expand our network of PREVENT ALS sites to enroll over 1000 participants, by building on our ongoing study led by Drs. Katie Nicholson and James D. Berry at Mass General Hospital and Dr. Timothy Miller at Washington University. To meet this bold goal we are establishing a multicenter collaboration, bringing together the most capable and innovative ALS experts from around the world for maximal impact. Learn more about PREVENT ALS.

Below, Shelby Saer, DIALS and PREVENT ALS participant, shares her motivation for participating in ALS gene research.
THANK YOU TO DIALS AND PREVENT ALS RESEARCH PARTICIPANTS
Katie Nicholson, MD, Co-lead and Principal Investigator of the DIALS Network Study, thanks research participants.
2021 ALS SCHOLARS IN THERAPEUTICS RECIPIENTS
Meet the four recipients of the 2021 ALS Scholars in Therapeutics sponsored by the Healey Center for ALS in partnership with ALS Finding a Cure.
JOIN A COMMUNITY FUNDRAISER DURING ALS AWARENESS MONTH!
“I fundraise because my child has the C9 Gene and I have to do what I can before it's too late…” - Jonathan Penner, spouse of ALS patient and father.

The research of today, fuels the care of tomorrow, support PREVENT ALS and other Healey Center Community Fundraisers.
CONTACT US
Philanthropy is what makes our rapid progress possible. If you have any questions or would like to learn more about how you can support our progress to the cures, please visit massgeneral.org/neurology/als/support/ or contact Emily Monteiro at 617-643-7376. 
Learn more about the Sean M. Healey & AMG Center for ALS.

Join our MGH-ALS Link email list to stay connected to clinic and research updates and ALS news at Mass General and beyond.
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