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Meet Noah

Kevin and Kim’s son Noah has an extremely rare gene mutation called SNAP25, which causes epilepsy and global development delays. As he approached six months old, they noticed he wasn’t visually tracking objects. When cortical visual impairment was added to his diagnoses, they began working with their EI-TVI from A Shared Vision.


“We knew nothing about CVI so our teacher educated us on how it would impact his development,” explains Kevin.


“One of Noah’s favorite toys at the time was a bright red, vintage 1972 Fisher Price 'Happy Apple.’ Our teacher showed us how to get Noah to fixate on the apple, and when we moved the toy slowly his eyes would follow it. This was the beginning of getting Noah to track objects.”


Their teacher built Noah a little room in which he could focus on reaching for different toys with less visual clutter. Once he outgrew that, she built him a toy bar with a few select toys that would catch his attention. As he played with it, Noah would practice focusing on and reaching for different objects. He loved the toy bar so much that their teacher built an even bigger version for him to use while in his gait trainer.


For this active family, being able to incorporate strategies they learned from their EI-TVI into their daily routines and playtime with Noah was key. “Vision services are the most seamless to integrate into other therapies and our daily life. We’ve seen much more improvement in Noah’s vision than we thought possible,” said Kevin.

BUILD A TOY BAR WITH OUR INSTRUCTIONS!

Warm Up with Hot Cocoa

This hot cocoa mix recipe has only three ingredients. After making the mix, you can enjoy many delicious mugs of hot chocolate around the fireplace, or after you’ve built a snowman outside or in a sensory bin on your kitchen table.


Small jars of this mix make sweet gifts for your favorite friends, relatives, and teachers! Try the recipe HERE.

Ask the Experts - Will My Child Learn Braille?

Our families often ask A Shared Vision’s teachers if their child will learn to read braille in school. Here’s what two of our experts said. Janet Anderson was a Teacher of the Visually Impaired at Aurora Public Schools for 31 years before she began working in early intervention. Sally Burch works full-time as a Teacher of the Visually Impaired for the Boulder Valley School District.


How will I know if my child will learn braille in school?

 

Janet: In early intervention, your EI-TVI will look at your child's visual diagnosis, functional vision and hearing, and your child’s sense of touch. Depending on the sensory profile and diagnosis, we chat with parents about braille and activities to help their child develop their sense of touch such as fine motor activities and tactual discrimination. We also want to expose children to print and braille.

 

What kind of assessments will be done at the school to determine if my child will learn braille?

 

Janet: When your child is evaluated for their transition from early intervention to school-based programs, the TVI from the school district will complete a Learning Media Assessment. It is used to determine which senses your child uses most to get information from the environment. Additionally, decisions can be made about which method or methods your child should use for learning and literacy. If the sense of touch is primary and used to explore the environment, braille may be recommended for reading and writing.

 

Sally: A learning media assessment and a functional vision assessment will be completed to make sure that the appropriate learning medium is determined for your child. Consideration will be given to your child’s diagnosis, fatigue level, and any other medical factors that your child might be experiencing. The goal is to find the most efficient and least fatiguing way for your child to learn.

 

Are there other technologies my child might use to have access to literacy?

 

Janet: Definitely! There are braille notetakers, refreshable braille displays, talking books, talking book players, screen reading software, various apps for accessing books, and more.

 

Sally: Absolutely! And technology is always changing, which is exciting. Over the course of your child’s education, technology such as braille note takers, computers, and digital book devices will be explored.

 

 Do I need to have a braille writer at home?

 

Janet: It would be helpful. Children who are sighted practice scribbling with crayons and markers long before they begin to write actual letters. Similarly, children who are learning braille should practice making marks on paper using a braillewriter. Also, pushing the keys on the braille write will help develop your child’s hand and finger strength.

 

Sally:  It always makes the child feel more comfortable if the parents or caregivers also know braille. It normalizes the learning medium for them. Talk to your EI-TVI about borrowing a braille writer and discovering other helpful tools.

What We Love Now

January is Braille Literacy Month! Several organizations that support children with blindness and visual impairments are encouraging literacy by offering subscriptions to FREE braille books. Go to these websites to sign up.



AND, don't forget to order braille Valentine's Day cards to promote braille with your friends and family. Order HERE while supplies last.

Check Out Our Updated Website!

Are you looking for craft ideas, sensory activities, or fun recipes to try with your child? Do you remember how to use wait time and hand under hand in your interactions with your child? How do you prepare for your first visit with the pediatric ophthalmologist? Find answers to these questions and more are on our WEBSITE.


Explore the Let’s Play section, Sensory Recipes©, and Learning Experiences© for quick access to user-friendly web pages tailored to each activity. Click on what interests you and dive right in! Many of our activities are also available in Spanish.


If you are just beginning your journey with a child who is blind, visually impaired, or deaf-blind, click HERE for 10 recommendations on taking your first steps.

A Shared Vision is a 501(c)(3) nonprofit and the leading provider of in-home and community early intervention vision services in Colorado. We inspire and empower families to nurture the development of their very young children who are blind or visually impaired so that all children may discover their brightest future.
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