Mitochondrial Disease Awareness Week
Each year, during the third week of September, the mito community comes together to raise awareness for Mitochondrial Disease Awareness Week.

Thousands of families face the reality of living with mitochondrial disease. During Awareness Week, MitoAction and mito families do their part to educate others about mitochondrial disease.

We believe that awareness is important year-round, but highlighting these issues during Mitochondrial Disease Awareness Week provides a time for people to come together and display the passion and strength of those working to improve the lives of those affected by mito.

Visit our website to find graphics, activities & ideas, and a resource kit to help you raise awareness! Email us at to share how you're taking action during the 2019 Mitochondrial Disease Awareness Week!
Nobody Fights Alone!
Mito411 - Connect with support from those who can relate to the diagnosis journey and the challenges of living with mitochondrial disease. Email or call 1-888-MITO-411 (648-6411).
Mito Memories Group - This is a closed Facebook group (all are welcome to join) that was created as a safe place for people who have lost loved ones to mitochondrial disease. We are here to support, uplift and provide resources.

To join the group: MitoAction Memories Group

Weekly Support Calls
2019 Matthew Harty Scholarship Recipients
The Matthew Harty Scholarship was established in 2015 to honor the life of Matthew Harty, a North Andover, MA, boy who passed away from mitochondrial disease just days after his 8th birthday. 

The Matthew Harty Scholarship is awarded each year to high school seniors or currently enrolled college students with a diagnosis of mitochondrial disease.

Applications for the 2020 Scholarship will open on January 15th, 2020!
Ian Willis
Kennesaw State University
Jordan Kalick
of Florida
Frank Leone
Southern New Hampshire University
Natalie Holmes
McKevor Tatum
Middle Georgia
State University
Melissa Beyea
Price Fine
Kennesaw State University
Jenna Bremer
Grace College & Theological Seminary
Macy Sullivan
Patient Education Forums
Join MitoAction for an afternoon to learn more about mitochondrial disease, network with others who are facing the challenges of living with this rare disease, and ask questions of leading experts in mitochondrial disease care.

Click here to RSVP for any of these upcoming events!
Dr. Amy Goldstein
September 21
1pm - 3pm
Courtyard Marriott
Schamburg, IL
Dr. Richard Boles
October 12
2pm - 4pm
Hilton Pasadena
Pasadena, CA
Dr. Jerry Vockley
November 2
10am - 12pm
Children's Hospital
Pittsburgh, PA
#Nice4Bryce Kindness Project
"We knew we wanted to create a program that would allow us to support others as so many had done for our family," said Jamie, "Almighty Brycey"'s mom. As they began, they realized it was not only support but joining other patients and families on their lifelong Mito journey.

In just 16 short months, Bryce touched the lives of thousands and taught The Derosier Family the importance of living each day to the fullest, but most importantly, the impact that even a simple act of kindness can have in one’s life. This is one of the many lessons that they learned from their son. The Nice4Bryce Kindness Project is a shining light of love, support and hope for families facing mitochondrial disease all across the country.

Do you know a mito patient experiencing an extended hospital stay or a family that could use some added cheer from the #Nice4Bryce Kindness Project?

Email  and let us share Brycey's spirit of kindness with others!

To follow our acts of kindness , visit our  Facebook page !
Marcel's Way Family Fund
The Marcel's Way Family Fund is a program that offers a helping hand in the way of direct financial support to those suffering from mitochondrial disease.

Born out of the mission of continuing to improve quality of life for all affected by Mito, the Marcel's Way Family Fund has the potential to change the lives of many children and families who simply cannot afford the full cost of necessary but expensive things like wheelchairs, adaptive equipment, time lost from work during long hospitalizations, and medicines.

Click here to apply for support. Click here to donate to the Marcel's Way Family Fund!
MitoAction Events
Join us on Sunday, September 15, 2019 for our 15th Annual Energy Walk & 5K at DCR's Mother's Rest in Boston, MA.

Your participation helps MitoAction change the future of health for every mito patient, here and around the world. 

Register yourself or your team  here!

Sponsorship opportunities available  here!
Birdies for Bryce Golf Tournament
Join us Monday, September 16, 2019 for The 2nd Annual Birdies for Bryce Golf Tournament at Crestwood Country Club and help raise money for the Nice4Bryce Kindness Project.

Click  here to register to play!

Sponsorship opportunities can be viewed  here!
Energy Walk - New York
The ina ugural Energy Walk of New York will be held on Sunday, September 22, 2019 at Green Lakes State Park in Fayetteville, NY. The Payne family is hosting this event in honor of their almost 9 year old daughter who battles mito.

Join the Paynes and walk or run by clicking here!
Matthew Harty Golf Tournament
The 6th Annual Matthew Harty Golf Tournament will be held on Monday, October 7, 2019 at the North Andover Country Club to help raise money for the Matthew Harty Camper Fund and Scholarship Funds.

Fore more information, email
We are headed to Seattle on October 20, 2019 for the 4th Annual Capes4Cal 5k. Join Cal and the mito community as we continue to battle the Mito Monster and raise awareness of this rare disease!

Grab your cape and register  here!

Be a superhero and become a sponsor of this event  here!
Mito Socials & Mito Playdates
Let us help you plan your own Mito Social or Playdate!
Mito Socials help our families connect with other mito families in their local communities. These low-key, relaxed gatherings allow mito families to meet each other, share stories, give and get support, and realize they're not alone on this journey.

We want to help you get support closer to home, and are hopeful that a Mito Social will offer just that. Consider hosting or attending a Social!
Mito Playdates offer a wonderful opportunity for local children and families to connect in person, share experiences and for the kids to just be kids.

Whether at a library or school these informal gatherings allow the children and their families to develop meaningful relationships with others in their area, extending the community of support.
If you're interested in hosting a Mito Social or Mito Playdate, email Jamie at
Thank you for your support!