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In March of 2021, my six-year-old son was diagnosed with diffuse intrinsic pontine glioma – a rare, inoperable and fatal brain cancer. He was given six to 11 months to live. We were devastated. The only recommended treatment was radiation, which would be every weekday for six weeks.
Fortunately, I had enough leave to get through his treatments and most of a clinical trial which would involve treatments every two weeks. We then learned the cancer metastasized. I was almost out of leave but wanted to spend as much time caring for him as possible. I was willing to take leave without pay but was granted shared leave.
I was able to spend the last six weeks of my son’s life caring for him and enjoying the short time we had left. Not knowing when he would leave us was made more bearable by having the opportunity to take the time off work to spend with him.
Thank you to those who donated their time to the ShareLeave program so that my family and I could be with my little boy. He passed 10 months to the day of his diagnosis.
~ St. Louis Maintenance Crew Leader Seth Knackstedt
ShareLeave hours are received as donations of annual leave or comp time as well as excess hours swept from balances during the leave sweep that normally occurs each October. MoDOT hasn’t had a leave sweep for the past two years. The ShareLeave balance is critically low!
Please consider donating a few hours to the program to help your co-workers during life’s unexpected events: ShareLeave donation form. Thank you to those who have donated!
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