Martine Elias, Executive Director
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"No other time in history has a pandemic virus become viral in the sense of being able to learn, communicate and immobilize for the greater good.
As a community and nation, we’re being socially responsible so we can flatten the curve and curtail the spread of COVID-19
. Each province is taking its own specific measures to safeguard their population. If we all abide by these proactive measures, look out for one another and ourselves, we’ll ride this out and hopefully reduce the virus’ reach and impact. Let’s continue to practice social distancing for everyone’s well-being."
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New COVID-19 section on myeloma.ca
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As you know, Myeloma Canada has had to make some difficult decisions in the last few weeks. While you have already received several messages to this effect,
to keep you informed of the most recent developments, our website now includes a section dedicated to COVID-19 and its impact on our community.
Please check the COVID-19 section of our website for regular updates and resources you can trust.
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COVID-19 related webinars
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Myeloma Canada English webinar on March 26: COVID-19 and Multiple Myeloma
Myeloma Canada will be hosting an English webinar, "
COVID-19 and Multiple Myeloma: What You Need to Know
", on Thursday, March 26 at 7:00pm EDT,
presented by internationally renowned
Dr Brian G.M. Durie
from the International Myeloma Foundation,
Dr Hira Mian,
hematologist from the Juravinski Cancer Centre in Hamilton, Ontario, and patient advocate,
David McMullen
.
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Please note:
In the event that you cannot make the webinar, it will be recorded and available on Myeloma Canada's
YouTube
channel (
www.youtube.com
) as well as on our website (
www.myeloma.ca
).
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IMF webinar held March 16
Click here
to view the International Myeloma Foundation (IMF) Webinar:
Coronavirus (COVID-19) and Multiple Myeloma
held on March 16, 2020.
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Myeloma Canada French webinar held March 20
Myeloma Canada hosted a
French webinar on Myeloma and COVID-19
called "
COVID-19 et le myélome multiple : Ce que vous devez savoir
"
on Friday, March 20
featuring Dr Michel Pavic
from the Centre de recherche du CHUS in Sherbrooke, QC.
To hear the French recording,
click here
or on the thumbnail below.
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Our Community is Socking it to Myeloma!
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Myeloma Awareness Month is coming to an end and many of you took some amazing selfies and pictures of your friends, family and co-workers wearing our myeloma socks.
Keep sending us your pictures; we love seeing them!
And most importantly, don't forget to post your pics on social media and tag them with the hashtag
#myelomasucks.
Don't have your pair of socks yet?
Take advantage of our special introductory pricing, including volume discounts, during Myeloma Awareness Month. Special pricing is available until March 31
st
inclusively.
Every pair sold brings us one step closer to a cure!
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Stay Tuned for the Launch of Myeloma Canada's 12
th
Annual Multiple Myeloma March
The 2020 Multiple Myeloma March, Canada's flagship fundraiser, will be coming to a community near you (in one way or another!). Stay tuned for more information.
In the meantime, if you have any questions, please contact
Michelle Oana
, Director of Development and Community Relations:
[email protected]
or call, toll-free,
1-888-798-5771.
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What's new at Myeloma Canada
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New InfoVideo is now online!
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Click on the thumbnail below to view this month’s InfoVideo.
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InfoVideo Series #15
How are infusion-related reactions due to monoclonal antibody therapy prevented and managed?
Find out the answer from Dr Gwynivere Davies, Hematologist at the Thunder Bay Regional Health Sciences Centre in Thunder Bay, ON.
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Follow us on
Facebook
and
Twitter
to be amongst the first to see our videos!
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Myeloma Canada 2019 Community Awards:
Recognizing Outstanding Leadership from our Community
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We're excited to announce the winners of Myeloma Canada's 2019 Community Awards!
These awards are given in recognition of our outstanding community volunteers from across Canada. We applaud their leadership and passion in raising community awareness for multiple myeloma. We appreciate and thank them for all of their hard work and dedication in supporting and helping to advance our mutual cause.
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We're thrilled to announce that Martine Elias, our Executive Director, has joined the IMF Board of Directors. In addition, Martine is Chair of the Collective Oncology Network for Exchange, Cancer Care Innovation, Treatment Access and Education (CONECTed), a Canadian based organization.
Congratulations, Martine!
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Myeloma Canada Gets Colourful
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As you may have already noticed, we’re updating our visual image ever-so-slightly.
What this means is that along with creating our new 15
th
Year logo, we’re colour-coding and branding our pillars for easier, faster identification and recognition when you’re searching for information.
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Spotlight on ...
Lorelei Dalrymple
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Person living with myeloma, Support Group Leader, Past Patient Advisory Council Chair, Myeloma Canada Board Member
(Edmonton, Alberta)
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"Well, it’s been an interesting 10 years! I’ve had a stem cell transplant, radiation, and treatments while working full-time. It changes your life in so many ways. You start to appreciate things differently and you don’t sweat the small stuff so much. I think I have a better appreciation for the people I have around me, and for the things I have."
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Join us online from the comfort of your own home! All you need is a computer, tablet or smart phone and an internet connection.
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COVID-19 and Multiple Myeloma: What You Need to Know
Presented by:
Dr Brian G.M. Durie, Hematologist-Oncologist, Cedars-Sinai Outpatient Cancer Center,
Los Angeles, California
Dr Hira Mian, Hematologist, Juravinski Cancer Centre, Hamilton, ON
David McMullen, Interim Chair, Myeloma Canada Patient Advisory Council
Thursday, March 26
7:00 PM to 8:00 PM, EDT
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*Date Change*
Oral Health and Myeloma: What Patients and Caregivers Need to Know
Presented by:
Dr Erin Watson
Deputy Chief of Dental Oncology, Princess Margaret Cancer Centre, Toronto, ON
New Day and Time:
Friday, March 27, 2020
7:15 PM - 8:15 PM, EDT
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Proposed Changes to Drug Pricing Guidelines
The government of Canada proposes changes to the drug pricing guidelines: Potential implications for you. Join this education webinar to learn more
Presented by:
The Patients Redefining Healthcare Summit
in collaboration with
The Indigenous Advisory Committee
Tuesday, April 7, 2020
12:00 PM - 1:00 PM, EDT
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Sylvan Valley Retro Ride: Sno' Fun!
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·
March 1st is Officially Proclaimed Myeloma Awareness Day in Manitoba!
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Richmond Graduates Serve it for
Myeloma Canada!
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Francesca Saraco Once Again Honours Her Mom for Myeloma Awareness Month!
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Some Faces of Myeloma Awareness Month
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Since the beginning of March, several members of our community have undertaken the initiatives to raise awareness about myeloma within their community and amongst their loved ones.
Whether you've raised awareness for one person, a family or an entire city, hats off to you! And above all, thank you for your commitment to our cause.
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Myeloma Canada is here to support you in your myeloma journey. Please consult our website at
myeloma.ca
for up-to-date news and information, as well as the following helpful links:
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In these difficult times, you, our community, remain our number one priority.
Now more than ever, we appreciate your support. Your donation enables us to continue providing you with the best information, resources, programs and services - across as many technology platforms as possible - to stay empowered, informed and connected, while funding research to help find a cure for this disease.
Thank you for your generosity and for helping us help you.
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Follow us on social media for the most up-to-date information and resources:
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Si vous préférez recevoir cette Infolettre en français, écrivez-nous à
[email protected]
.
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