March 2026 - Myeloma Action Month Edition | | | |
Word from our CEO
"Our community has always been one that moves forward and that is why today we call March Myeloma Action Month.
The change may appear subtle, but it reflects an important evolution. Awareness helped people understand myeloma and the challenges faced by those living with it. Today, that understanding must translate into something more powerful: action."
Read Martine's full message.
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In this issue...
- Myeloma Action Month 2026: A Mid-Month Recap
- Join the 5th Annual Myeloma Canada Ride!
- Important Notice: Myeloma Monitor App Will Stop Functioning
- News about DVRd reimbursement in Quebec!
- New! Multiple Myeloma Information Hub
- Multiple Myeloma Experience Survey - Talquetamab (TALVEY)
- Upcoming webinar: Understanding Immunoglobulin Therapy in Myeloma
- Upcoming InfoConferences: Brampton, Saskatoon, Quebec City
- Spotlight on Phil Barker
- Photos from Myeloma Action Month in Canada
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Myeloma Action Month 2026: A Mid-Month Recap
What an incredible month it has been! From coast to coast, Canadians have shown up in meaningful ways: lighting landmarks, raising flags, securing official proclamations, and wearing red with pride. The energy surrounding Myeloma Action Month has been truly inspiring, and we are so grateful for every single person who has taken action.
Discover how Canadians have observed Myeloma Action Month
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What is the Aurelia Initiative?
Discover how Myeloma Canada has reimagined its research and science strategy, along with some of the research achievements we accomplished in 2025. Last year, Myeloma Canada supported over $1M in myeloma research, accelerating discovery while strengthening the next generation of scientific leaders.
Learn more about our actions in research.
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Join the 5th Annual Myeloma Canada Ride!
Ready, set, go for the Myeloma Canada Ride, returning this Spring 2026! This year, we offer three ways to participate:
- 7 in-person rides
- 6 virtual pre-defined routes
- Virtual ride - your route on your time
Learn more about the 2026 Myeloma Canada Ride.
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Important Notice: Myeloma Monitor App Will Stop Functioning
We would like to inform you of an important change regarding the Myeloma Monitor application. After a detailed assessment, we have determined we will be discontinuing the Myeloma Monitor app, especially given the availability of other suitable tools. Our goal is to ensure that you have the information and support you need during this transition.
Learn more about what that means for you.
| | | | Reminders and Announcements | | |
News about DVRd reimbursement in Quebec!
The ministre de la Santé et des Services sociaux du Québec has decided to add Darzalex (daratumumab) for the treatment of newly diagnosed multiple myeloma in patients eligible for a stem cell transplant to the List of Establishments. It will be used in combination with bortezomib, lenalidomide, and dexamethasone, and then, as maintenance therapy, in combination with lenalidomide.
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New! Multiple Myeloma Information Hub
This series of short animated videos guides you through the key stages of your journey with multiple myeloma, from diagnosis to treatment.
Watch the video series.
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Multiple Myeloma Experience Survey - Talquetamab (TALVEY)
Myeloma Canada is seeking information from people affected by multiple myeloma regarding a new drug, talquetamab or TALVEY, soon undergoing reimbursement review at Canada’s Drug Agency (CDA).
Learn more.
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Upcoming webinar: Understanding Immunoglobulin Therapy in Myeloma
Presenters:
-Dr Adil Adatia, University of Alberta, Edmonton, AB
-Wendy Bursey, RN, CON(C), Juravinski Cancer Centre, Hamilton, ON
Date: April 17, 2026
Register now.
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Myeloma Canada hosts InfoSessions for people living with myeloma, their loved ones, and healthcare professionals.
Brampton, ON (in English) March 24 | 1:00 pm - 5:00 pm
Saskatoon, SK (in English) April 14 | 8:30 am - 12:30 pm
Quebec City, QC (in French): April 16 | 8:30 am - 3:30 pm
Click on your town to register.
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Spotlight on Phil Barker
"My name is Phil Barker. I’m 65 years old. I’ve lived in Canada most of my life, with a few years in the US during my training. My wife and I have been married for 30 years, the second marriage for both of us. We’ve blended our families: two kids each, plus a “late addition.” They now range from 16 to 38 years old [...] I was back in Montreal in 2018 for a camping trip with friends. It was a fairly physical trip, and I started having rib pain. I brushed it off, assuming I’d pulled something."
Read Phil's story.
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Photos from Myeloma Action Month in Canada
Here are a few examples of how people whose lives have been affected by myeloma are showing the world that myeloma matters. We will be sharing more photos on social media and in upcoming newsletters, so stay tuned.
Find out how you can get involved.
| | | Yolanda Paine in British Columbia | | Rinat Avitzur and Tanya Zigomanis, members of the Patient Advisory Council (PAC) in Ontario | | |
Cornwall Area Myeloma Support Group
in Ontario
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Myeloma Canada's mission: To improve the lives of all Canadians affected by myeloma by accelerating access to the best care while advancing research toward its cure and prevention.
Follow us on social media for the most up-to-date information and resources:
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Si vous préférez recevoir vos communications en français, écrivez-nous à contact@myelome.ca.
To donate to Myeloma Canada please visit myeloma.ca or call us toll-free at 1-888-798-5771.
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| Myeloma Canada charitable number: 862533296RR0001 | | | | | |
