Myeloma Matters: Treatment access updates, Myeloma Action Month participation, and so much more!

February 2026

Word from our CEO

In this very special message from our CEO, Martine talks about her recent knee replacement surgery and how her perspective on pain has profoundly changed.

"In November, I underwent a total left knee replacement. It was considered a “day surgery,” and I went into it thinking I had a reasonable sense of what recovery would look like. Boy, was I very wrong."

Read Martine's full message.

In this issue...

Myeloma Canada Joins the Global Myeloma Action Month Initiative
Join Us for the 5th Annual Myeloma Canada Ride!
Important Notice: Myeloma Monitor App Will Stop Functioning
Carvykti® negotiations are back on!
Access to treatment updates
New video: Moving Forward With Myeloma
Multiple Myeloma March Research Fund-Sharing Partnership Program
New video: From Complication Prevention to Functional Optimization: An Overview of Supportive Treatments in Multiple Myeloma
Spotlight on Lisa Bowden
A Peek at the PAC

Myeloma Canada Joins the Global Myeloma Action Month Initiative

This March, Myeloma Canada is proud to join the global myeloma community in observing Myeloma Action Month. While awareness remains vitally important, it’s action that drives real change, action that advances research, improves care, and connects people living with myeloma across the globe.

How to participate

Join Us for the 5th Annual Myeloma Canada Ride!

Ready, set, go for the Myeloma Canada Ride, returning this Spring 2026! It’s time to pull the bike out of storage and gear up for an unforgettable ride! Help us raise funds to support the Canadian myeloma community.

Learn more about the 2026 Myeloma Canada Ride.

Important Notice: Myeloma Monitor App Will Stop Functioning

We would like to inform you of an important change regarding the Myeloma Monitor application. After a detailed assessment, we have determined we will be discontinuing the Myeloma Monitor app, especially given the availability of other suitable tools. Our goal is to ensure that you have the information and support you need during this transition.

Learn more about what that means for you.

Carvykti® negotiations are back on!

"On behalf of everyone at Myeloma Canada I am very excited to share with you that the pan-Canadian Pharmaceutical Alliance (pCPA) has just announced that the Carvykti® negotiation with Johnson & Johnson, the manufacturer, has been reactivated. This means that the parties are back at the negotiations table and are actively trying to reach agreement over a listing price. Given this new turn of events, Myeloma Canada is hopeful that the parties will find a way to come to a positive pricing agreement quickly. Rest assured, we will be following the proceedings closely.

We will be sending letters of encouragement to both the pCPA CEO and the President of Johnson & Johnson. I encourage you to follow us on our social media platforms and through our newsletter to see how you can get involved.

This is positive news for all patients in Canada. We thank everyone of you who sent one of the nearly 6,000 emails to provincial representatives and Health Ministers urging the negotiations to re-start. Your actions spoke loudly and definitely played a role in taking us to where we are now."

-Martine Elias

CEO, Myeloma Canada

Learn more.

Bulletin Board

Reminders and Announcements

Access to treatment updates

-Rezurock now reimbursed in Ontario and British Columbia

-Updates on access to daratumumab combinations for newly diagnosed myeloma

Learn more.

New video: Moving Forward With Myeloma

Tanya Zigomanis of Vaughan, ON, talks about navigating life with myeloma. She speaks about receiving her diagnosis while working as a litigation lawyer and parenting two young children.

Watch the recording.

Multiple Myeloma March Research Fund-Sharing Partnership Program

Charitable organizations connected to a Canadian myeloma treatment centre or university are encouraged to apply. Applications for this year’s fund-sharing program are open until March 20, 2026.

Learn more.

New video

From Complication Prevention to Functional Optimization: An Overview of Supportive Treatments in Multiple Myeloma

Presented by: Dr St-Hilaire, MD FRCPC, Dr. Leon-Richard Oncology Center

Watch the recording.

Upcoming InfoConferences

Myeloma Canada hosts InfoSessions for people living with myeloma, their loved ones, and healthcare professionals.

Kelowna, BC: March 12 | 8:30 am - 12:30 pm

Drummondville, QC (in French):

March 16 | 12:45 pm - 4:30 pm

Brampton, ON: March 24 | 1:00 pm - 5:00 pm

Quebec City, QC (in French): April 16 | 8:30 am - 3:30 pm

Click on your town to register.

Spotlight on Lisa Bowden

Editor’s note: To celebrate Myeloma Action Month, which is just around the corner, the Spotlight column for focuses on the action one person took to make a big impact in her local community.

After her first taste of advocacy, Lisa Bowden was hooked.

Read Lisa's story.

A Peek at the PAC

As winter rolls on, the Patient Advisory Council (PAC) has been keeping busy with new member meetings and orientations. It’s always exciting to welcome fresh perspectives and strengthen our group with new voices. This month we will hear from Bev Dunn, the new representative for the Praires.

Read the PAC column.

Myeloma Canada's mission: To improve the lives of all Canadians affected by myeloma by accelerating access to the best care while advancing research toward its cure and prevention.

Si vous préférez recevoir vos communications en français, écrivez-nous à contact@myelome.ca.

To donate to Myeloma Canada please visit myeloma.ca or call us toll-free at 1-888-798-5771.

Donate here

Myeloma Canada charitable number: 862533296RR0001