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Word from our CEO
"When we talk about progress in myeloma, we often focus on the things that are easiest to measure: response rates, progression-free survival, overall survival, and a variety of laboratory results. [...] But as someone who has spent more than 20 years working alongside patients and families affected by myeloma, I can tell you that patients measure success differently. Patients care deeply about living longer. But they also care about how they live."
Read Martine's full message.
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In this issue...
- Updating Quality of Life Measures in Multiple Myeloma
- The Myeloma Canada Ride: A Record-Breaking Cycling Season
- A Peek at the PAC: Meet Alison and Lyzane
- Myeloma Experience Survey on Teclistamab and Daratumumab
- Spotlight on Brent Smith
- Video of the Month: The Importance of Diversity in Clinical Trials for Myeloma Patients
- Multiple Myeloma March Calendar
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Updating Quality of Life Measures in Multiple Myeloma
As treatments become more effective, it is important to capture what patients and caregivers truly experience in daily life and use that information to improve care, research, and decision-making. One way to do this is through patient-reported outcome measures, or in short, PROMs.
What are PROMs?
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The Myeloma Canada Ride: A Record-Breaking Cycling Season
This year's Myeloma Canada Ride was nothing short of extraordinary. From coast to coast, 513 cyclists and 92 volunteers came together to raise funds for myeloma research, education, advocacy, and community programs.
Relive the memories from the Myeloma Canada Ride
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A Peek at the PAC
The Patient Advisory Council (PAC) is pleased to welcome two new members. A resident of the Homalco First Nations in Campbell River, Alison Trenholm is our new representative from British Columbia, and Lyzane Bissonnette from South Shore of Montreal is our new representative from Quebec.
Meet Alison and Lyzane.
| | | Reminders and Announcements | | |
Myeloma Experience Survey
Myeloma Canada is seeking input from people impacted by multiple myeloma regarding a new treatment combination including teclistamab (TECVAYLI) and daratumumab (DARZALEX), soon undergoing reimbursement review at Canada’s Drug Agency (CDA) and Quebec’s Institut national d’excellence en santé et en services sociaux (INESSS).
Deadline: August 2nd, 2026, 11:59 PM EST.
Learn more and respond.
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Smashing Myeloma 2026
Anne's Light Myeloma Foundation is hosting Smashing Myeloma 2026, a pickleball fundraiser across Southern Ontario on August 8. Fundraisers will get a chance to win a trip for 2 to Club Med in the Caribbean, along with many other prizes.
Learn more.
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Spotlight on Brent Smith
It was April 29th, 2020, just about a couple of months into COVID. I'd been suffering from back pain for years and years and years. But I was always banging myself up playing sports, so I'd just pop ibuprofen and muscle through. Then I slipped on a stair, fell down, and thought I'd separated my shoulder. When I got in for an X-ray, that's when they discovered the myeloma.
Read Brent's story.
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Video of the Month: The Importance of Diversity in Clinical Trials for Myeloma Patients
Robert Hawke chats with Dr Joseph Mikhael, hematologist, about why equity, diversity and inclusion in clinical trials isn't just the right thing to do, it's good science.
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Multiple Myeloma March Calendar
This fall, step up with your community and join the 18th annual Multiple Myeloma March. This 5 km walk is a family-friendly day of hope and solidarity. Patients, families, caregivers, friends, and neighbours come together, fundraising to propel research, improve care, and support patient programs.
Join us today!
| | | Saturday | Sunday | |
| August 23
Corner Brook, NL | | August 29
Airdrie, AB |
| | September 5
Cornwall, ON | September 6
Vancouver Island, BC | | September 12
Hamilton-Niagara, ON
Sacré Coeur, QC
Saguenay, QC | September 13
Peterborough, ON
Thunder Bay, ON
Windsor/Essex County, ON
Winnipeg, MB | | September 19
Eastern Townships, QC
Kelowna, BC
Kingston, ON
Mississauga, ON
Prince George, BC
Regina, SK | September 20
Charlottetown, PE
Laurentides, QC
Newmarket, ON
Ottawa, ON
South Shore (Sainte Julie), QC
Saskatoon, SK | | September 26
Halifax, NS
Oshawa, ON | September 27
Brampton, ON
Kitchener-Waterloo, ON
Montreal West Island, QC
Quebec City, QC | | October 3
Scarborough, ON
White Rock, BC | October 4
Barrie, ON
Vancouver, BC
Montreal East, QC
Rouyn Noranda, QC | | October 17
Sudbury, ON | October 18
Bowmanville, ON | | | |
Myeloma Canada's mission: To improve the lives of all Canadians affected by myeloma by accelerating access to the best care while advancing research toward its cure and prevention.
Follow us on social media for the most up-to-date information and resources:
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Si vous préférez recevoir vos communications en français, écrivez-nous à contact@myelome.ca.
To donate to Myeloma Canada please visit myeloma.ca or call us toll-free at 1-888-798-5771.
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| Myeloma Canada charitable number: 862533296RR0001 | | | | | |
