March is International
Myeloma Awareness Month
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Since its inception, Myeloma Canada and the international myeloma community have made huge strides in increasing awareness for multiple myeloma and have significantly improved the lives of patients living with myeloma. In fact, over the last 15 years, the life expectancy of a person living with myeloma has more than doubled, thanks to innovative research, continuous education, increased awareness, access to new therapies and community engagement. The rapidly evolving treatment landscape and progressive momentum are a result of our global community’s persistence and dedication - individuals who have dedicated their lives to making myeloma matter and putting myeloma on the map. The month of March is known as Myeloma Awareness Month, and although considerable progress has been made, there is still much more work to do. This month’s special edition of Myeloma Matters highlights Myeloma Canada’s involvement, and how you can do your part.
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The Chairman's Perspective
By Aldo Del Col, Co-founder and Chairman of the Board, Myeloma Canada
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"Awareness is a fundamental precursor for change."
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Social Awareness & Advocacy
for Multiple Myeloma
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For the month of March, Myeloma Canada will be hosting a series of online campaigns aimed at increasing general awareness of multiple myeloma in the community at large, promoting early detection and diagnosis and advocating for accelerated treatment access for overall improved patient outcomes.
Myeloma Canada invites you to join this movement and spread the word.
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Myeloma is Not a Skin Cancer Campaign
Help put myeloma on the map. Follow us on social media and re-post our campaign images on your personal pages. Share using the following hashtags and text:
#MyelomaAwarenessMonth #MyelomaIsNotASkinCancer
For more information visit www.myeloma.ca
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If you're not on social media but would still like to take part, email works just as well!
Ask your network to forward along your message and spread the word.
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Myeloma Canada Launches a Series of Online Patient Journey Videos for Myeloma Awareness Month
A myeloma diagnosis comes with its own unique set of emotional hurdles and no one understands this better than another person living with myeloma.
Recognizing and identifying some of the challenges you may face along the way, Myeloma Canada documented a series of patient videos relating to significant experiences you may encounter throughout your journey for Myeloma Awareness Month. Now available on YouTube, Facebook and on the Myeloma Canada website, these videos feature other patients sharing their own experiences of living with myeloma.
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Stem Cell Transplant
(High-Dose Chemotherapy)
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Experiencing a Relapse in
Multiple Myeloma
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Subscribe to our YouTube Channel and get notified when new videos have been added:
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Myeloma Advocacy Program (MAP) 3.0
It’s time to get Kyprolis Funded Now!
Why are Canadian patients still waiting for Kyprolis (carfilzomib) after having been approved by Health Canada over 2 years ago?
It only takes a minute to make a difference.
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Advocacy Matters
By Martine Elias
Director of Access, Advocacy and Community Relations, Myeloma Canada
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We are asking Health Canada to open a fulsome consultation process among all parties, including patient representatives, to identify solutions and ensure that the pillars of the Canadian healthcare system are being upheld."
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Spotlight on Ron Surry:
How Increasing Awareness for Multiple Myeloma Helped Me Cope
"The help I received from other patients was so valuable, that I decided to start two local support groups."
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Bring Awareness to Your Community by Hosting a Multiple Myeloma March in 2018
The Multiple Myeloma March is the only annual large-scale fundraising initiative that exclusively supports the Canadian myeloma community. Each year in September, communities across the country rally for a 5 km walk to increase awareness and raise funds for clinical research, advocacy, and accelerated access to new, game-changing therapies for Canadians.
This year Myeloma Canada celebrates the 10
th anniversary of the Multiple Myeloma March, and we’re looking to expand into your community! Volunteers are the foundation of Myeloma Canada and we are always looking for individuals in communities across the country who wish to give their time and energy to make myeloma matter.
The impact of a local Multiple Myeloma March can make a world of a difference for Canadians living with myeloma. View the media clip below to see how one community was able to make a difference.
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Getting started is easy and we’re here to support you through every step of the way. If you would like to host a March in your community or find out more information, click on the link below to fill out the request form.
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Upcoming InfoSessions
Sudbury, ON - March 10
Moncton, NB - March 24
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Patient and Caregiver
Meet & Greet
Winnipeg, MB - April 21
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Myeloma Canada
National Conference
Vancouver, BC - May 12-13
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SAVE THE DATE!
Trevor Olfert Open Sky Orchestra
Benefit Concert
Winnipeg, MB - April 26-27
Tickets available soon!
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SAVE THE DATE!
Myeloma Canada Charity
Golf Classic
Montreal, QC - May 31
Pre-sale tickets now available
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Myeloma Canada
Educational Webinar
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Best of ASH 2017
Featuring
Dr Rayan Kaedbey, Hematologist
Lakeshore General Hospital,
Montreal
March 15, 2018
7:00pm EST
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A Donation to Myeloma Canada Allows us to Better
Serve the Myeloma Community
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Every day, 8 Canadians are diagnosed with myeloma. Although myeloma remains relatively unknown, its prevalence is increasing. Your donation helps ensure that patients and their loved ones have better access to the information and support they need.
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