October 17, 2017

In This Issue
Quote of the Week:

"My sister and so many like her deserve the opportunity to pursue their recovery in a safe and comforting setting and not isolated from the community in a hospital bed. "
-Irene Turski, NAMI-NYS Government Affairs Chair
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This edition of the NAMI-NYS E-News includes the full agenda for the 2017 NAMI-NYS Education Conference as well as information on continuing education credits available at the conference. There is also information on the launching of the Bring it Home: Better rates for better care campaign. October is also an active month for our affiliates and below you will see some of their activities from the past week. Also featured are several looks at employment and mental illness including information on a Saturday Night Live actor who has come out about his mental illness. 

As always, we want to know about the work you are doing.
Please email  Matthew@NAMINYS.org with details and pictures about your work. This way we can feature it in the E-News and print Newsletter. Showcasing your work will allow others to learn from you, and that's the best way we can grow together as an organization. 

Hope Starts With You!

NAMI-NYS Announces Full Agenda and 
CEU Information for
2017 Education Conference

NAMI-NYS is pleased to announce the full agenda for our 
Intervention, Engagement, Implementation: Three Pronged Approach to Sustainable Mental Health Recovery taking place November 10-12, at the Desmond Hotel in Albany.

The 35th edition of the conference  will once again present national leaders in progressing advances in mental health research, practices and advocacy issues. The will also be focus tracks on children's mental health, criminal justice reform, military families and a young adult track.

Additionally continuing education credits will be available at the conference this year, made possible by our colleagues at ACLNYS. 

Click here to view the full agenda.

Click here to learn more about CEU opportunities.

Click here to register for the conference.  

NAMI-NYS Helps Launch 
Bring it Home: Better Funding for Better Care Campaign

On October 10th the Bring it Home: Better funding for better care was officially launched to urge New York State to increase the rates they give housing providers. The campaign kicked off with a press event held at the New York State Capitol. NAMI-NYS's Wendy Burch and Matthew Shapiro attended the event and our Government Affairs Chair Irene Turski provided the family voice during the press conference. Housing has long been an advocacy priority for NAMI-NYS. 

Among Irene's comments were:  "My sister and so many like her deserve the opportunity to pursue their recovery in a safe and comforting setting and not isolated from the community in a hospital bed.   Community housing must be adequately funded so that the staff are not overburdened and underpaid to such an extent that they feel forced seek other employment , leaving those they care for to constantly have to readjust rather than focus on their recovery. Adequate funding for housing will ensure less long term hospitalizations, which are far more expensive to the tax payers of New York. "

Click here to view the news story from the Capital Region ABC affiliate.

NAMI NYC Metro Holds Seeds of Hope Gala
NAMI-NYS's Matthew Shapiro, NAMI-NYC Executive Director Matt Kurdish, New York City First Lady Chirlane McCray, Nathan Romano, NAMI-NYC President, Barbara Ricci, NAMI board member and Darryl "DMC" McDaniels

On October 11th, NAMI NYC-Metro held their Seeds of Hope gala. The event honored New York City First Lady Chirlane McCray and her NYC Thrive initiative and hip-hop pioneer and Rock and Roll Hall of Famer Darryl "DMC" McDaniels (of Run DMC) who was recognized for increasing mental health awareness in multicultural communities. It was an inspiring evening.
NAMI Westchester and
NAMI on Campus at Westchester Community College Hold Events on the Same Day

Top picture   left to right in the back - Dr. Palekar, Micheal Orth, Dr. Mark Herceg, Dr. Mark Russ In the front  left to right -  Jennifer Amar and Sharon McCarthy

Bottom picture  Left to Right: Kristy Robinson (Advisor), Sam Eves (Vice President), Adam  Grabowski (Comedian), Ana Wilhelm (Secretary), Pat Sheehan (Advisor) Front Center: Andrew Cuevas (Treasurer) 

October 12 was a busy day for NAMI activities in Westchester. NAMI Westchester held its annual educational event at NY Presbyterian Hospital-Westchester Division.  The topic was
Your Brain and Mental Health.: the impact of trauma, physical illness, past injuries and life experiences in diagnosis and treatmentThe program, moderated by Michael Orth, Acting Commissioner for Westchester County Dept. of Community Mental Health, featured three presenters who spoke about the brain from different perspectives. They were: Mark Herceg, Ph.D., Director for the Center for Brain Health and Center for Concussion Care and Director of Psychology at Gaylord Health Center, Nikhil Palekar, M.D., Assistant Professor of Clinical Psychology at Weill Cornell Medical College and Unit Chief on the Second Chance Program NY Presbyterian-Westchester Division, and Jennifer Amar, LCSW.   

Dr. Mark Ross, Vice Chair of Clinical Programs and Medical Director of NY Presbyterian Hospital - Westchester Division welcomed the audience.  Sharon McCarthy, NAMI Westchester Executive Director, opened the program and shared her family's experience in understanding the importance of providing history in her daughter's treatment.

NAMI on Campus at Westchester Community College with the Personal Counseling Department hosted comedian, Adam Grabowski.  Adam is a famous stand-up comic whose #SAYITANYWAY campaign encourages "speaking openly and authentically about emotions, thoughts, and feelings to help eliminate feelings of shame."  The event was a huge success with a great turnout.

NAMI Renessealer Holds Recognition Dinner
NAMI Rensselaer President, Sandy Dinoto, Congressman Paul Tonko and Elizabeth Donovan

On October 14th, NAMI Rensselaer held their annual recognition dinner and consumer art show. This year's honoree was Elizabeth Donovan of the Stratton VA. Congressman Paul Tonko attended and presented a certificate to Elizabeth as well. As part of the program, Jason Paden debuted his newest multi-media project Jase and his Quirkz.

NAMI Putnam's Ed Murphy Receives
Voluntary Service Award

Putnam's first Deputy County Executive, Regina Morini, presents the Ruth Dain Voluntary Service Award to Edward Murphy

NAMI Putnum's Ed Murphy received the Ruth Dain Voluntary Service Award from the Putnam Community Service Network.
Ed was one of seven of Putnam's resident who were honored last week when the Putnam Community Service Network hosted its 32nd annual Awards Breakfast. Fifteeen individuals and organizations were nominated for awards and the winners were selected following a rigorous screening process.

Click here to read more. 
NAMI Looks at Mental Health Stigma in the Workplace

NAMI recently posted an article explaining how in the eyes of many employers "people with mental health conditions are perceived as 'unsuitable' for the workforce. The article also explains how Gary Becker, a Nobel prize-winning economist concluded that discrimination lowers the probability that members of a stigmatized group will be hired, and their wages are significantly reduced if they are.

This is especially true for people with schizophrenia, who fare poorer than any other disadvantaged group in the labor market. Individuals living with the condition are 6-7 times more likely to be unemployed than the general population with a 70-90% unemployment rate-a higher rate than any other group with disabilities in the United States.

Click here to read more. 

The 2017 NAMI-NYS Education Conference will have a session on employment issues. 
New York News
The New York Times Details Going Back to Work After A Psychotic Break 
The New York Times recently featured an opinion piece by Zack McDermott, who chronicles his experience going back to work as a public defender following a psychiatric hospital stay. One of the key aspects for him was talking to his colleagues. "For most, an involuntary stay in a locked psychiatric ward becomes a closely guarded secret. But part of me wanted everyone to know. I wanted them to know that I had received a Bipolar I diagnosis - that the 'madman' they'd been covering for was actually a very sick young man who did things he feels guilty about, but who also knows that he had no more control over the doing of those things than a cancer patient has over the state of his lymph nodes."

Click here to read more. 

OMH to Host Statewide Virtual Town Hall Featuring
Commissioner Ann Marie Sullivan, M.D

OMH is conducting a Statewide Virtual Town Hall on November 8, 2017 from 1:00 to 3:00 p.m. with Commissioner Ann Sullivan, M.D. She will be presenting and taking feedback on several key priorities under the OMH Strategic Plan.
The town hall will be held online via WebEx  to maximize access for public participation, with one site at OMH Central Office for attendees who are unable to access the event online.
This event will provide the public an opportunity to learn more about the OMH vision for the future, including progress on the Commissioner's top policy and planning priorities presented at last year's town hall. Comments and questions can be presented both online and live for those attending at the OMH site.
Click here to register for the Town Hall

National News
How the President's Executive Orders Can Hurt People with
Preexisting Conditions

Last week, President Trump issued executive orders aimed at dismantling the Affordable Care Act (ACA). CNN Money explains from a business perspective how these orders can hurt people with preexisting conditions such as psychiatric disorders. 

Click here to read more. 

Comedian Pete Davidson Discusses His Borderline Personality Disorder on Saturday Night Live

Saturday Night Live star Pete Davidson recently revealed that he has borderline personality disorder, a serious mental illness that's characterized by frequent, severe mood changes. On last week's SNL, the 23-year-old candidly discussed his condition during Weekend Update (in a very SNL way)-and he's getting serious praise for it.

"As some of you may know, I was recently diagnosed with Borderline Personality Disorder-a form of depression," Davidson began. "Depression affects more than 16 million people in this country and there's no cure, per se. But for anyone dealing with it, there are treatments that can help. First of all, if you think you're depressed, see a doctor and talk to them about medication. And also be healthy: eating right and exercise can make a huge difference."

He then offered his own personal remedy. "Finally, if you're in the cast of a late-night comedy show, it might help if they, you know, do more of your comedy sketches." A little surprised, Weekend Update anchor Colin Jost asked him to clarify that statement, and Davidson retorted with, "I was born depressed, but it might make me feel better if I was on TV more."

Click here to read more. 

You can learn more about Borderline Personality Disorder by clicking here to watch the latest Mental Health Now episode featuring Dr. Perry Hoffman, President of the National Education Alliance on Borderline Personality Disorder. 

The 2017 NAMI-NYS Education Conference will also have a session on borderline personality disorder. 


NIMH Update

Click here to read the latest Update from NIMH.

Clinical Trial Recruitment

The primary purpose of this research study is to evaluate the safety and effectiveness of the oral drug AV-101 (an antagonist of the glycine receptor) versus placebo. The study aims to determine if this experimental drug has antidepressant effects and fewer side effects than other novel treatments for depression.
We are enrolling moderately depressed individuals between the ages of 18 and 65 with hard-to-treat major depressive disorder. This inpatient study lasts up to 14 weeks and procedures include a medication taper, taking the research drug, taking placebo and 4 brain imaging scans. Optional procedures include a lumbar puncture and catheter placement in the spine two times. After completing the study, participants receive short-term follow-up care at the NIH while transitioning back to a provider.
The study is conducted at theNIH Clinical Center in Bethesda, Maryland and enrolls eligible participants from across the USA. Travel arrangements are provided and costs are covered by NIMH (arrangements vary by distance). There is no cost to participate and compensation is provided.
To find out if you qualify,  send an email to moodresearch@mail.nih.gov ,
 or call 1-877-646-3644 (1-877-MIND-NIH [TTY: 1-866-411-1010].

As is our tradition, the 2017 NAMI-NYS Education Conference, will once again feature an Update on NIMH research. This year, we are thrilled to welcome  Kathleen R Merikangas, Ph.D, Chief of NIMH's Genetic Epidemiology Research Branch. Dr. Merikangas will present on her landmark community-based family study of affective spectrum disorders and their overlap with other mental disorders and medical disorders such as migraine and cardiovascular disease.

Click here to register for the conference. 
   There is still time to support

If you are one of the thousands of people who received education and/or support from NAMI-NYS thus past year or if you believe in NAMI-NYS's mission of providing help and hope to communities in all corners of the state, then we ask that you please support our NAMIWalks Efforts. 

Even if you couldn't join us for the walk please consider making a donation to our NAMIWalks effort by clicking here

See Pictures from NAMIWalks NYS

Click here to see pictures from NAMIWalks NYS on Facebook.
Save the Dates

Click here to learn more and register for the 2017 NAMI-NYS Education Conference-
Engagement, Implementation, Internvention: Three Pronged Approach to Sustainable Mental Health Recovery, taking place November 10-12 at the Desmond Hotel in Albany.

OCTOBER 17-NAMI Rochester hosts the 16th Annual Jessica Henderson Memorial Event. NAMI Rochester is thrilled to welcome Mike Veny as the 2017 Jessica Henderson Event featured speaker. Mike Veny is one of America's leading mental health speakers and a high-energy drum circle facilitator. He has delivered educational, engaging, and entertaining presentations to audiences throughout the world. As a 2017 PM360 ELITE Award Winner, Mike is recognized as one of the 100 most influential people in the healthcare industry. He starred in several OC87 Recovery Diaries documentary films, two of which were featured at Rochester's own 2017 Reel Minds Film series.
Doors open at 6:00pm | Program begins at 7:00pm
Penfield High School Auditorium
25 High School Drive, Penfield, NY 14526

Click here to learn more and register.

OCTOBER 26-NAMI Staten Island will be holding their 27th Annual Awards Celebration. This year's honorees are:
-Chirlane McCray, First Lady of New York City
-Rosanne Gaylor, MD, Executive Director of South Beach Psychiatric Center (retired)
Russell Joffee, MD, Chair, Psychiatry and Behavioral Science Staten Island University Hospital Northwell Health
Pete Shiffman, RN, Nurse Administrator, South Beach Psychiatric Center, President, NAMI Staten Island

The event will begin at 6pm at LiGreci's Staaten, 697 Forest Ave. Staten Island NY, 10310 Click here for more information and Email Joan Rowley to register. 

OCTOBER 26- Capital District Psychiatric Center, Inpatient Discharge Services & Best Practices Presented By Chris Tosado, LCSW-R CDPC Social Work Supervisor. Thursday October 26th at  5:00 pm - 7:30 pm in the CDPC Family Resource Center. 75 New Scotland Ave., Albany, NY.There will be time for Questions and Answers as well as support services after the presentation.For more information or to register contact: Frank Greco, Director of Family Services (518) 549-6816
Click here to download flyer

OCTOBER 27-Northern Rivers presents the second part of their two-part symposium on psychosis, Who Said the Voices Aren't Real?
Part 2: Hearing Voices: An Experiential Learning Workshop
Friday, October 27
9:00 a.m. - 12:00 p.m. (If demand warrants, a 1:00 p.m. workshop will be added)
Sidney Albert Training and Research Institute (SATRI)
60 Academy Rd, Albany, NY 12208 
The workshop is limted to 40 participants.
In this 3 hour workshop, participants will learn about the experience of hearing distressing voices through didactics and using headphones to listen to a specially designed recording. During this simulated experience of hearing voices, participants undertake a series of tasks including social interaction in the community, and mock psychiatric interview. The simulation experience is followed by a debriefing and discussion period. Watch a video clip of Pat Deegan, the developer of the hearing voices simulation, describing the process.
*Please note that this training is not recommended for individuals who hear voices as the simulation experience can be triggering.
OCTOBER 28-Healthy Minds Empowerment Conference. from  8:00 AM-2:00 PM at  Medaille College 18 Agassiz Cir, Buffalo, NY 14214. For Teens (7th-12th grade), Parents & Teen Leaders.Questions about this event may be directed to Ann Venuto, President of NAMI Buffalo annvenuto@gmail.com /(716) 689-1159, or Josephine Cross, Chairman of the Health Promotion Committee of AKA Gamma Phi Omega Chapter akagpo@gmail.com / (716) 636-3014. Click here for more information. Join us for a day of free workshops to explore the emotional and mental well being of youth and to empower youth and adults who care for them. *Free Breakfast & Lunch

NOVEMBER 2nd-Join NAMI Queens/Nassau for a Conversation with Senator John Brooks, the Ranking Member of the Senate Mental Health Committee, who will be an honored guest at the Conversation and other NY State Legislators from Queens & Nassau

NAMIQN is honored and pleased to invite you to a Conversation with NY State Legislators. We have invited every State Senator and Assembly member from Queens and Nassau to attend. We will speak with legislators about such important topics as housing, Case Management, Assisted Outpatient Treatment, Revolving Door Mental Health Care, Support for people with dual diagnoses, and other topics about which the legislators need to be informed.
T he event will begin at 7:00 P.M. at The Shelter Rock Unitarian Universalist Congregation located at 48 Shelter Rock Road in Manhasset.
Please let us know you are coming to help make a difference!

NOVEMBER 14th-The Brain and Behaviroral Research Foundation hosts their free monthly Q&A webinar series: Research Updates: Improving Functioning in Schizophrenia
Presented by: Stephen R. Marder, M.D. University of California, Los Angeles Professor, Psychiatry and Biobehavioral Sciences, Director, Section on Psychosis, 2016 Lieber Prizewinner for Outstanding Achievement in Schizophrenia Research
Moderated by: Jeffrey Borenstein, M.D.

2:00pm-3:00pm EST
Patients with psychotic illnesses are usually interested in treatments that relieve active symptoms and improve their abilities to function at work, school, and in their everyday lives. This webinar will provide an overview of recent research on pharmacological and non-pharmacological approaches to improving functioning.
Join by phone or on the web: bbrfoundation.org/novemberwebinar
DECEMBER 3-5: Better Outcomes at the Intersection of Mental Health and Criminal Justice Conference. The Institute for Behavioral Healthcare Improvement (IBHI) is hosting a national conference December 3 - 5 in Miami, Fla. With support from the Mental Health Foundation, the conference will showcase the remarkable progress that can be achieved when community leaders, public safety officials and other stakeholders work together to better coordinate efforts and integrate programs to  improve outcomes for people with behavioral health treatment needs. Full agenda  and registration at www.ibhi.net. 

DECEMBER 12-The Brain and Behaviroral Research Foundation hosts their free monthly Q&A webinar series: Robert Lowell: Courage, Genius, and Bipolar Disorder
Presented by: Kay Redfield Jamison, Ph.D. Johns Hopkins University School of Medicine / Johns Hopkins Hospital, The Dalio Family Professor in Mood Disorders, Professor of Psychiatry, 2010 NARSAD Productive Lives Award
Moderated by: Jeffrey Borenstein, M.D.

2:00pm-3:00pm EST
Robert Lowell, one of the greatest of American poets, had particularly devastating bipolar disorder. The webinar will discuss his illness and its relationship to his genius, as well as the role Lowell's enormous discipline and courage played in his life and writing.
Join by phone or on the web:

Signature Programs

OCTOBER 10- NAMI Rensselaer Family-to-Family. Tuesdays October 10th -December 19th from 6:00 p.m. - 8:30 p.m. at the Church of Latter Day Saints, 420 New Scotland Ave, Albany NY 12208. Contact  Sandy (518)439-3834  or Mary Beth (518)491-3743 to register.

OCTOBER 9, 11 and 12- NAMI Homefront classes online.
REGISTRATION IS NOW OPEN for the following sessions:
Eastern, Mondays, 6:30 - 8:30 p.m. ET, Oct. 9 -  Nov. 13
Pacific, Mondays 6:30 - 8:30 p.m. PT, Oct. 9 - Nov. 13
Mountain, Wednesdays, 6:30 - 8:30 p.m. MT, Oct. 11 - Nov. 15
Central, Thursdays, 6:30 - 8:30 p.m. CT, Oct. 12 - Nov. 16
Pre-registration is required and space is limited. All participants are screened to ensure this program is appropriate for their needs.
Learn more about NAMI Homefront, and other NAMI programs, online at www.nami.org. If you have any questions or concerns, please email namieducation@nami.org.
The NAMI Homefront Team, Email: namieducation@nami.org ,Phone: 703-524-7600  
Click Here to Register

OCTOBER 17 - NAMI Montgomery, Fulton and Hamilton Family-to-Family. Tuesdays October 17th -January 2nd, 6:00 to 8:00PM at #2390 Riverfront Center, Amsterdam, NY  12010. To register call 518-843-3261 or namimfh@gmail.com.

OCTOBER 21-NAMI Mid-Hudson Basics. Saturdays, October 21, 28, November 4th, 9:30 am - 3:30 pm at the Arlington High School,  1157 State Route 55, Lagrangeville NY. Contact: Tina Lee,  programs@namimidhudson.org  or (845) 206-9892.

NOVEMBER 1-NAMI-NYC Metro Basics. Wednesdays, November 1st-December 6, 6:00 pm- 8:30 pm at 505 8th Avenue, Suite 1103, New York, NY 10018.  To register contact Deniece Chi (212)684-3365 x 203 / parent@naminyc.org.

NOVEMBER 2-NAMI NYC Metro Basics. Thursdays, November 2nd - December 7th, 10:00 am-12:30 pm at 505 8th Avenue, Suite 1103, New York, NY 10018.  To register contact Deniece Chi at (212) 684-3365 x 203 / parent@naminyc.org. 

NOVEMBER 3-NAMI-NYC Metro Basics (SPANISH SPEAKING) Fridays, November 3rd - December 8th, 10:00 am-12:30 pm at 505 8th Avenue, Suite 1103, New York, NY 10018.  To register contact Deniece Chi at (212) 684-3365 x 203 / parent@naminyc.org. 

Please contact your local affiliate program leaders for more information and how to enroll.
NAMI Family-to-Family Teacher Training
October 20th-22nd, 2017
Trainers: Pam Soloman & Geraldine Burton
Location: NAMI-NYS Office Albany

To have your events and Signature Programs listed in the E-Newsletter contact Christine Rickeman at christine@naminys.org.   

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