February 24, 2017

 
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This edition of the NAMI E-News comes as most of New York is enjoying a few days of warm weather before winter makes itself felt again.  It's a reminder that spring is right around the corner.  Don't forget the Ribbon Awareness Campaign for May's Mental Health Awareness Month.  Now is the time to start reaching out to community partners to ask them to hang ribbons in support of helping those impacted by mental illness. If you are in need of rolls of ribbon, contact Bill at the NAMI-NYS office.

As always, we want to know about the work you are doing. Please email  Matthew@NAMINYS.org with details and pictures about your work. This way we can feature it in the E-News and print Newsletter. Showcasing your work will allow others to learn from you and that's the best way we can grow together as an organization. 

Hope Starts With You!
NAMI-NYS News
NAMI-NYS Participats in the Black, Puerto Rican and Asian Legislative Caucus 


On February 18 th , NAMI-NYS participated in the Black, Puerto Rican and Asian Legislative Caucus event at the Empire State Plaza.  In addition to having an information table, Multicultural Committee Chairperson Ceceile Green and Executive Director Wendy Burch attended workshops and other networking activities at the conference.  Criminal Justice Chairperson Jayette Lansbury served on a panel discussing solitary confinement.  Jayette was able to bring to the forefront the debilitating effect solitary confinement has on inmates, particularly those who have a mental illness. Hundreds of attendees stopped by NAMI-NYS's information table, where we were able to bring attention to serious mental illness and direct individuals to resources.



NAMI News
NAMI Participates in Webinar on
Challenges for Mental Health Caregivers 

NAMI and Mental Health America co-hosted a webinar on Tuesday, Feb. 14 called "Challenges and Solutions for Mental Health Caregivers." The webinar, sponsored by SAMHSA, explored the critical role that caregivers play, as well as the barriers they see to services, supports and integration of care. 

The webinar featured a robust discussion about the structural issues caregivers confront in the U.S. health care system including gaps in coverage. Based on two reports with responses from more than 2,000 caregivers, presenters offered compelling data, stories and solutions to empower caregivers and adults living with mental health conditions.

Click here to listen to the webinar. 

Action Alert
Tell Congress to Sustain Mental Health Coverage

Congress is on break, so now is the time to tell Senators and Representatives about the importance of quality, affordable mental health coverage.

1 in 5 Americans experience a mental health condition and coverage for mental health care is critical to early identification, treatment and recovery.

Go to a town hall meeting, call 202-224-3121 or email your members of Congress to stand up for mental health coverage and insurance safeguards.

What to Say:
  • I am your constituent.
  • I am a person living with a mental health condition or I am a family member of someone living with a mental health condition or I am a professional in the mental health field.
  • The Affordable Care Act and Medicaid provide life-saving mental health coverage so Americans get treatment when they need it.
  • Do NOT repeal the ACA without a replacement that maintains or improves mental health coverage and insurance protections.
  • Do NOT allow cuts or caps to Medicaid funding that leave states and communities paying more.
If you can't make it to a town hall meeting or have time for a call, make your voice heard by clicking here and sending a letter to Congress. 



New York State News
Dr. Lloyd Sederer Writes on How Changes to Healthcare on the Federal Level May Impact Those with Addiction Issues

Lloyd Sederer, MD, chief medical officer of the New York State Office of Mental Health, adjunct professor at Columbia University's Mailman School of Public Health and medical editor for mental health for the Huffington Post recently contributed an opinion piece to U.S. News which focused on the impact that President Donald Trump's health policies could have on individuals, families and communities affected by use and abuse of drugs, especially opiods.

Click here to read the article. 
National News
Congressman Murphy Wants to Revamp HIPAA Privacy Rules 

Representative Tim Murphy (R-PA) discussed how HIPAA's "stringent privacy regulations hurt people suffering from mental illness rather than help protect them." Congressman Murphy points out that when a family member is engaged in a loved one's treatment, the individual has a better chance for recovery. However, since medical records must be kept confidential, the family member can be essentially shut out unless explicitly authorized by the individual, yet in many circumstances the individual may be too incapacitated to provide permission. Murphy believes the privacy rules should be better clarified, so that medical professionals know when to release information to families or law enforcement.  Although he acknowledges that protecting privacy while still providing the best care to a patient can be challenging, he states, "I would rather be facing a family in a courtroom than face a family in a funeral home."

Click here to read more. 

Ricki Lake Shares  Story About Ex-Husband 
Who Lost His Life to Bipolar Disorder


Actress and former talk show host Ricki Lake shared a heartbreaking story about the man she called her "beloved soulmate," Christian Evans. She detailed how her ex-husband "succumbed to his life long struggle with bipolar disorder." Ms. Lake added 
"For anyone who has ever lost a family member or friend to mental illness, my heart goes out to you."

Click here to read more. 

What Will Medicaid Reform Say About our Society?
Ron Manderscheid, PhD, Executive Director of the National Association of County Behavioral Health & Developmental Disability Directors, writes about the importance of Medicaid and Children's Health Insurance Plans (CHIPs) to our society as a whole as well as the way these types of coverage are so crucial to people living with a mental illness and children with developmental disabilities.

Click here to read more. 
NIMH News
  


NAMIWalks


NAMI-NYS looks forward to building on the success of our inaugural NAMIWalks NYS. The 2017 NAMIWalks NYS will be taking place on Saturday September 23rd at Jennings Landing in Albany. You can click here to start your team and/or donate to the walk.  

NAMI-NYS will be holding our first information meeting on March 7th at 6:30pm. Click here to register for the information meeting which will feature refreshments and fantastic door prizes. For more information you can email Heide@naminys.org
Save the Dates

February 22 -NAMI Queens/Nassau presents a special book discussion and signing with  Dr. Lloyd I. Sederer, Chief Medical Officer, NYS Office of Mental Health, Medical Editor, mental health for the Huffington Post. Dr. Sederer will be discussing and signing his new book, Improving Mental Health:  Four Secrets in Plain Sight. The event will begin at 7pm at the Zucker Hillside Hospital, Sloman Auditorium. Click here for more information.  

March 1st-Join NAMI of Central Suffolk at 7:30 pm at Mather Hospital, Port Jefferson, Conf Rooms One and Two for their Educational/Informational Speaker Series Program. Their March speaker is Dr Roberto Gil,  who will present Brain Imaging Research. Dr Gil is the psychiatrist in charge of the clinical assessment and evaluations of any volunteer subject enrolled in research studies with the MMTI (Multi Modal Translational Imaging Lab).  The MMTI is a research group of investigators/psychiatrists, using PET and MRI imaging, with a focus in understanding the changes in the brain that lead to symptoms of schizophrenia spectrum disorders, and ultimately seeking better treatment options. The group has been working together for the past 20 years. We recently moved from Columbia University to Stony Brook University. Hope you can join us for an informative evening. 

March 7-The Panera on New Scotland Ave. in Albany will be having a fundraising night to benefit NAMI-NYS. Click here to obtain a flyer to present at the restaurant. 

March 7- Information meeting for 2017 NAMIWallks NYS.  Click here for more information..

March 16 - MHANYS Mental Health Education in School Summit taking place on March 16 th at Albany Law School. This summit brings together experts in mental health and education to discuss the impact of the recent passage of the Mental Health in Education Schools Bill. Among the speakers in the summit include State Education Commissioner, MaryEllen Elia and State Mental Health Commissioner, Dr. Ann Sullivan. The cost of the event is  twenty dollars to cover the cost of lunch. You can register at www.mhanys.org
 
APRIL 5- NAMI of Central Suffolk's  Educational/Informational Speaker Series offers: SAVE A LIFE WITH NARCAN TRAINING ! The free training, is given by Suffolk Co DOH and will enable participants to recognize an opioid overdose, administer intranasal Narcan and take additional steps until EMS arrives. Participants will receive a certificate of completion and an emergency resuscitation kit that includes nasal Narcan . Hope you can join us at Mather Hospital Port Jefferson Conference Rooms One and Two at 7:30 pm.

April 21-2017 "A Brighter Day" event at Glennpeter Jewelers. Click here for more information.
Signature Programs

FEBRUARY 21- NAMI NYC Metro Family-to Family. Tuesdays February 21st - May 9th 6pm-8:30pm at NY Presbyterian/Weil Cornell-Baker BLDG, 525 E 68th St. (Btw York & E River) Rm 1170. Facilitators Patti Sacher and John DeNatale, Contact NAMI Metro at (212) 684-3264, and they will have facilitator contact you for registration.

FEBRAURY 27 - NAMI NYC Metro Family-to-Family. Mondays February 27th -May 15th 6:00pm- 8:30pm at Fountain House College Re-Entry Program,437 W 47th St.( Btw 9th & 10th Aves) 1 st Flr. Facilitators: Rajene Hardeman and Bonnie Goldburg. Contact NAMI Metro at (212) 684-3264, and they will have facilitator contact you for registration.

MARCH 2 - NAMI Queens Nassau Family-to-Family. Thursdays March 2nd - May 18th 7:00 pm- 9:30 pm. Walk in Love for Jesus Church, 906 Newbridge Road, North Bellmore,L.I. NY 11710. Contact namiqn@aol.com / (516) 326-0797 or (718) 347-7284 or Carol Ann Viccora (516) 221-6168 / Elizabeth Janow (516) 742-8413.
 
MARCH 3- NAMI Huntington Basics. Fridays March 3rd - April 3rd 10:00am -12:30pm at Mastics-Moriches-Shirley Library, 407 William Floyd Parkway, Shirley, NY 11967. Contact Beth Ramme at (631) 673-6097/  BethSRamme@gmail.com to register.  
 
MARCH 4 - NAMI Rockland Basics. Saturday's March 4th, 11th & 18th
9:00 am to 2:00 pm at  Rockland Psychiatric Center  140 Old Orangeburg Road, Bldg #57, 1st floor Classroom, Orangeburg, NY  10962. Teachers:  Anne Arias and Rita Strumph, Contact:  (845) 359-8787

MARCH 6 - NAMI NYC Metro Peer -to- Peer. Mondays March 6th - May 22nd 11:00am - 1:00pm at NAMI-NYC Metro 505 Eighth Ave. @ 35th St. Suite 1103. Facilitators : Angel Rodriguez and Donna Israel. Contact NAMI Metro at (212) 684-3264, and they will have facilitator contact you for registration. 

MARCH 8 -NAMI Rochester in collaboration with the Department of Veterans Affairs will be offering a NAMI Homefront course through April 12th. The course will be offered on Wednesday's from 6-8:30pm at Vet Center located at Crossbridge Office Park, 2000 S. Winton Rd, Bldg 5, Suite 201 Rochester, NY 14618.

Click here to register. 

MARCH 9-NAMI Rensselaer  Basics Class. Thursdays March 9th-April 13th from 6:00pm-8:30pm at the NAMI-NYS Office 99 Pine St. Suite 105. Please Contact Paul Klein at (518) 209-2812
   kleincox@yahoo.com or Mary Crowley at (518)227-6701 
mcrowley@nysid.org to register.

MARCH 9 - NAMI NYC Metro Peer -to- Peer. Thursdays March 9th - May 25th 12 pm-2 pm at NAMI-NYC Metro 505 Eighth Ave. @ 35th St. Suite 1103. Facilitators: Alice Morris and Fredricka Weinstein. Contact NAMI Metro at (212) 684-3264, and they will have facilitator contact you for registration.

MARCH 11 - NAMI NYC Metro Family-to-Family. Saturdays March 11th-MAY 27th 2:00pm - 4:30pm at NAMI-NYC Metro - SPANISH LANGUAGE Class 505 Eighth Ave. @ 35th St. Suite 1103. Facilitators: Edelmira Ventura and Dora Pozzi. Contact NAMI Metro at (212) 684-3264, and they will have facilitator contact you for registration.

MARCH 13 -NAMI Buffalo Family-to-Family.Monday's from 6:00-8:30 pm at St. Pauls Church, 4007 Main St, Eggertsville, NY . Contact Jackie Thompson at  (716) 208-5016

MARCH 13-NAMI Buffalo Family-to-Family. Mondays March 13-June 29 from 6:00pm - 8:30pm at the Elma United Methodist Church, 2991 Bowen Rd. Elma NY 14059 contact information is 
 Liz Carone (716) 481-4386 

MARCH 15 - NAMI NYC Metro Family-to-Family. Wednesdays March 15th - May 31st 11:00am -1:30pm at NYC Metro 505 Eighth Ave. @ 35th St. Suite 1103. Facilitators: Almarie Tulloch and Cynthia Scott. Contact NAMI Metro at (212) 684-3264, and they will have facilitator contact you for registration.

MARCH 16-NAMI Huntington and the Northport Veterans Administration Family-to-Family.Thursdays March 16th-June 1st at 7:00pm at the Northport Veterans Administration in Northport NY. Contact Jill Ryan 
(516) 695-0389 or Jayette Lansbury at (631) 385-0754

MARCH 16 - NAMI Rockland Family-to-Family.  Thursday Evenings,
 March 16th to June 1 st 6:30 pm to 9:00 pm at Rockland Psychiatric Center
140 Old Orangeburg Road, Bldg  #57, 1st floor Classroom, 
Orangeburg, NY  10962. Teachers:  Chris Vanasse & Marlene Becker. Contact: (845) 359-8787

March 21-NAMI Mid-Hudson will be offering a Family-to-Family course at MidHudson Regional Hospital, 
241 North Road in Poughkeepsie. The course will run through June 6th from 6:30-9pm. To register, please call :845-206-9892 or
programs@namimidhudson.org.

MARCH 25 - NAMI NYC Metro Peer -to- Peer. Saturdays March 25th - June 24th 11:00am -1:00pm at NYC Metro 505 Eighth Ave. @ 35th St. Suite 1103. Facilitators: Lyle Braxton and Robert Potter. Contact NAMI Metro at (212) 684-3264, and they will have facilitator contact you for registration.

MARCH 27 - NAMI NYC Metro Family-to-Family. Mondays March 27th - June 19th 6:00pm -8:30 pm at NYC Metro 505 Eighth Ave. @ 35th St. Suite 1103. Facilitators: Chantay Reid and Rosemarie Woods. Contact NAMI Metro at (212) 684-3264, and they will have facilitator contact you for registration. 
 
APRIL 4 - NAMI Queens Nassau Family-to-Family. Tuesdays April 4th - June 27th, 6:30 pm-9:00 pm. Unitarian Universalist Congregational at Shelter Rock, 48 Shelter Rock Road, Manhasset, NY 11030. Contact: namiqn@aol.com / (516) 326-0797 or Ellen Ritz RN  el.ritz@yahoo.com / (516)330-9778
Rev. Val Gittens valgittnes@aol.com / (516) 749-4432 

APRIL 4-NAMI Orange Family-to-Family. April 4th - June 27th, 6:30pm -9:00 pm. First Presbyterian Church, 33 Park Place, Goshen, NY 10924. Contact Dhanu Sannesy 
( 845)294-2749 /  namiorangeny@warwick.net
 
APRIL 6-NAMI Rochester Family-to-Family.  Thursdays, April 6th - June 22nd, 6:30 pm - 9:00 pm.  
NAMI Rochester Office, 320 N. Goodman Street, Suite 103, Rochester, NY 14607.  Contact Beth Winslow-D'Amico at (585) 423-1593 or beth@namirochester.org.

SEPTEMBER 6- NAMI Rochester Family-to-Family. Wednesdays, September 6th -November 29th, 6:30 pm - 9:00 pm.  
NAMI Rochester Office, 320 N. Goodman Street, Suite 103, Rochester, NY 14607.  Contact Beth Winslow-D'Amico at (585) 423-1593 or beth@namirochester.org.
 
2017 NAMI-NYS TRAINING SCHEDULE
Please contact your local affiliate program leaders for more information and how to enroll.

NAMI Ending the Silence
March 4th, 2017
Trainer: Jodie Terhune
Location: NAMI Rochester Office
 
NAMI Family-to-Family Teacher Training
July 14th-16th, 2017
Trainers: Ann Canastra & Cheri Caiella
Location: Comfort Suite Cicero-Syracuse
 
NAMI Basics Teacher Training
April 1st-2nd, 2017
Trainers Almarie Tulloch & Karen Alvarez
Location: NAMI Rockland Office
 
NAMI Peer-to-Peer Mentor Training
April 21st-23rd, 2017
Trainers: Cynthia Scott & Donna Israel
Location: NAMI-NYS Office Albany
 
NAMI Family-to-Family Teacher Training
May 19th-21st, 2017
Trainers: Patti Sacher & Bonnie Goldberg
Location: NAMI-NYS Office Albany
 
NAMI Homefront Teacher Training
May 20th-21st, 2017
Trainers: Pam Solomon & Jerry Burton
Location: NAMI-NYS Office Albany
 
NAMI Support Group Facilitator Training
March 25th-26th, 2017
Trainers: Pat Sine & Jack Goldstein
Location: NAMI Rochester Office
 
NAMI Support Group Facilitator Training
June 3rd-4th, 2017
Trainers: Deniece Chi & Nancy Parker
Location: NAMI-NYS Office Albany
 
NAMI In Our Own Voice Presenter Training
June 3rd-4th, 2017
Trainers: Bill Perun & Chris Wasilenko
Location: NAMI Rochester Office
 
NAMI In Our Own Voice Presenter Training
June 24th-25th, 2017
Trainers: Cynthia Scott & Lady Charmaine Day
Location: NAMI-NYS Office Albany
 
NAMI Family-to-Family Teacher Training
October 20th-22nd, 2017
Trainers: Patti Sacher & Bonnie Goldberg
Location: NAMI-NYS Office Albany
 
NAMI Homefront Teacher Training
October 21st-22nd, 2017
Trainers: Pam Solomon & Jerry Burton
Location; NAMI-NYS Office Albany


To have your events and Signature Programs listed in the E-Newsletter contact Christine Rickeman at christine@naminys.org.   

NAMI-NYS | 99 Pine Street Suite 105| Albany, New York 12207 | (518) 462-2000