March 28, 2018

In This Issue
Quote of the Week:

"Housing is essential to recovery and an issue of the utmost importance to the 1 in 4 families impacted by mental illness " -Matthew Shapiro, NAMI-NYS Associate Director speaking at housing rally. 

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This edition of the NAMI-NYS E-News comes as the negotiations for the state budget enters the final stages. While we must continue to make our voices heard on budget issues, we are also about to shift our advocacy and awareness activities towards local communities. As we are fast approaching May and Mental Health Awareness Month, it is time to start planning on how to raise awareness and let our neighbors know that NAMI is a place to find help and find hope. This edition provides you with tools to do this through our Ribbon Campaign and NAMIWalks. You'll also find articles on the federal budget agreement, the link between physical and mental health as well as the shortage of psychiatrists. 

As always, we want to know about  the work you are doing.
Please email with details and pictures about your work. This way we can feature it in the E-News and print Newsletter. Showcasing your work will allow others to learn from you, and that's the best way we can grow together as an organization. 

Hope Starts With You

NAMI-NYS Participates in Housing Rally and 
Helps Deliver 25,000 Letters to State Leaders

On Wednesday, March 21st, the Bring it Home: Better Funding for Better Care campaign held a rally on the staircase outside of the New York State Assembly Chamber to urge the Assembly to join Governor Cuomo and the Senate in making investments in mental health housing. 

Following the rally, participants delivered 25,000 letters that have been written on this issue to the offices of the Governor, Assembly Speaker and Senate President.  

NAMI-NYS's Associate Director, Public Affairs Matthew Shapiro spoke at the rally as did Roy Neville (past president of NAMI Schenectady and NAMI-NYS). Bill Wallace from NAMI-NYS and Flora Romanowski of NAMI Schenectady also participated in the rally. 

Click here to watch video of Matthew speaking.
Click here to watch video of Roy speaking. 

As we enter the final week of state budget negotiations we need to keep the pressure up.

Click here to view our phone scripts for budget calls. 

NAMI-NYS Participates in Suicide Safety Training 
for Teachers

On Wednesday, March 21st, Tina Lee, NAMI NYS Community Education and Outreach Manager, participated in a training for 70 Guilderland School District staff with Suicide Safety For Teachers, a suicide prevention training through the Council for Behavioral Health. Joelle Monoco of the Mental Health Association of NYS also participated in the training.

Following the training, NAMI-NYS received the email below from one of the teachers:

Dear Tina,
Thank you very much for the presentation you shared with us yesterday morning.
When I heard what the topic of the presentation was going to be, I'll admit that I was concerned that the topic might be too intense to talk about in a group environment. I was completely relieved of my concerns when you handled conversations about mental illness and suicide in a factual and truly sensitive manner.Sharing your personal struggles with your daughter helped us relate to you and your openness allowed us to trust you.
This is the third NAMI event I have attended and I continue to remain impressed with the outreach being provided. I left your presentation feeling hopeful that we, as staff, can be there for our students. You gave us the words to use to start a conversation and the confidence to feel comfortable with the warm handoff.
My sincere thanks to you and NAMI for your outreach and the education you gave us.

NAMI-NYS Presents to Saratoga County School Nurses

On Thursday, March 22nd, NAMI-NYS was invited to present as part of a training for the school nurses in Saratoga County. Matthew Shapiro told his story of having mental health issues as a child and spoke about how to recognize the mental health issues prevalent in children and adolescents, how to communicate concerns to students, colleagues and families, NAMIWalks NYS, the Ribbon Campaign and the unique role school nurses play in improving mental health in schools.  

Join Us For A Brighter Day 2018
and Help Us Kick-Off NAMIWalks NYS 2018

We hope you can join us for the 6th Annual "A Brighter Day" event taking place Friday, May 4th at Glennpeter Jewelers Diamond Centre. The free event will feature complimentary food and will allow attendees to support NAMI-NYS by purchasing raffle tickets, bidding on silent auction items and buying beverages. Again, NAMI-NYS wants to thank Bob and Evelyn Keplinger for hosting the event for NAMI-NYS.

This year's event is bittersweet as it will be dedicated to our friend Vickie Moorehead, who passed away earlier this year. Vickie was a consistent presence at "A Brighter Day," where she educated and inspired many with her book"The Raw Truth" which chronicled her experience with OCD.

Click here to learn more about the event and register.  

"A Brighter Day" will also serve as the official kick-off of the 2018 NAMIWalks NYS. Learn more about the five NAMIWalks taking place in New York State in the NAMI Walks section of the E-News. 

Mental Health Awareness Month is Almost Here
Time to Start Planning Your NAMI-NYS Ribbon Campaign

May is Mental Health Awareness Month and once again communities across New York State will be displaying NAMI-NYS mental health awareness ribbons. We need your help in spreading the message that NAMI-NYS and our affiliates are a place to find help and find hope. There is still time to get involved. 

Click here to learn more about the ribbon campaign. 
NAMI Celebrates Mental Health Victories in 
Federal Funding Bill

Last week, Congress reached a new budget agreement which was signed by President Trump. NAMI is extremely grateful for the increased investments in mental health services and supports in  Fiscal Year (FY) 2018 federal appropriations package.  The bill substantially boosts several of NAMI's key priorities including services, research, housing, veterans and jail diversion and reentry. 

"I applaud Congressional leaders for taking concrete actions to fund critical mental health priorities," said Mary Giliberti, Chief Executive Officer of NAMI. "This appropriations package invests in key programs for individuals with mental illness, supports important evidence-based services in our communities and promotes research that could result in significant scientific advancements that foster improvements in treatment and recovery for people with mental illness."

Click here  to read the full article.

Reminder Join NAMI for a SAMHSA's Sponsored Webinar About The HIPAA Privacy Rule
This afternoon, from 2:30-4, Ron Honberg, J.D., NAMI's Senior Policy Advisor, will be leading a   Substance Abuse and Mental Health Services Administration (SAMHSA) Sponsored Webinar, "Myths and Reality: The HIPAA Privacy Rule."
HIPAA is a privacy rule intended to safeguard private health information, but is often misinterpreted and misapplied. With better understanding of flexibility within HIPAA, mental health stakeholders can promote both individuals' privacy rights and appropriate inclusion of families/partners and providers.

This webinar will feature various scenarios that illustrate both commonly-held misconceptions about HIPAA, as well as more complex issues. It will address such topics as communication among health providers, disclosures to caregivers, rights of people to access information about their own treatment, special rules pertaining to mental health and substance use information, and other important topics.

Click here to learn more and register.

New York News
      Dr. Lloyd Sederer Says We Can't Punish Our Way Out of 
the Opioid Crisis, Mr. President

Dr. Lloyd Sederer, recently wrote an article in the Daily News reflecting on  President Trump's visit to New Hampshire to speak about opioids. Dr. Sederer found the administration's approach to try and curtail the epidemic to be heavy-handed: a rrest dealers, prosecute aggressively, sentence maximally and seek the death penalty for some dealers. 

Dr. Sederer argues that  these are all methods that  President Trump believes will work, however ,  "experienced law officers and first-responders know we cannot arrest this country out of a public health epidemic.Those at the Manchester, N.H. firehouse Trump visited already permit people with substance use problems to turn in their drugs and paraphernalia, and then the firefighters assist them to get into treatment."

Click here to read the full article.

Columbia University Professor Writes
The Kids Are Alright

Times are changing. With every passing generation children's manners and fortitude increasingly vary. Children now love luxury. They have bad manners, contempt for authority; they show disrespect for elders and love chatter in place of exercise. But all the doom and gloom about modern technology is also receiving strong push back from the scientific community. There are five points in this article which challenge us to think twice before buying into the hype about digital technologies and mental health. Once again, it's not so simple.

Click here
to read the full article.

Save the Date 
New York State Suicide Prevention Conference

NAMI-NYS wants to make sure our readers know about the the 3rd Annual New York State Suicide Prevention Conference taking place September 20-21. More information will coming soon. 
National News
Extreme Psychiatrist Shortage Expected For Next 30 Years

New research published in Psychiatric Services by Anand Satiani, MD, and authors from Ohio State University anticipates an extreme psychiatrist shortage for the next 30 years.

Although there has been much attention focused on physician workforce shortages in recent years, previous estimates of the shortage of psychiatrists have ranged considerably. The authors write that "to address the shortage in light of the growing US population and the fact that mental illness has become the costliest condition in the United States, at $201 billion annually, the estimated shortage must first be quantified."

Click here to read more. 

Time Magazine Explores the Link Between 
Physical and Mental Health

For people who suffer from depression or anxiety, being diagnosed with a physical health condition on top of a mental health issue can feel like the worst kind of bad luck. But recent research suggests that this type of dual diagnosis is more than just an unfortunate coincidence. Scientists are learning that seemingly unrelated psychological and physical issues may actually be closely connected. This mysterious mind-body connection seems to be at play in a new study published in the  Journal of Investigative   Dermatology, which focused on the physical and mental health of people with  an autoimmune disease that causes red patches and flaky scales to form on the surface of the skin. Depression is common among people with psoriasis, who often deal with discomfort and social stigma related to their condition.

Click here to read the full article.

'13 Reasons Why': New Study Proves Controversial Series Encourages Positive Teen Behaviors
NAMI-NYS and other mental health advocates have been critical of Netflix's series " 13 Reasons Why." NAMI-NYS believes the series made many mistakes and sent the wrong messages in depicting a young woman who takes her own life. However, according to a study Netflix commissioned with Northwestern University's Center on Media and Human Development, the show has had a positive impact on how teen viewers and their parents discuss suicide.

Click Here to read the full article.

DISCLAIMER: It is important to note that this study, which was commissioned by Netflix, indicates positive outcomes, but it does not change the fact that the show made major mistakes in talking about suicide. 

While NAMI-NYS has been very critical of the series, we believe that it is also fair to report that there may be some good that has been generated by the series as well. NAMI-NYS will continue to work with schools, students and families to discuss ways to recognize mental health issues in students and prevent suicide.  

Hubs Help Native American Communities
Address Youth Suicide

Three NIMH-funded collaborative research hubs are exploring the factors behind the high suicide rates among American Indian (AI) and Alaska Native (AN) youth and designing and testing approaches to preventing suicide. In each hub, research centers and tribal or urban AI/AN leaders and organizations are working together to provide information on which to base effective, community-based, and culturally sensitive preventive approaches that are suitable for use in low-resource settings. NIMH solicited research proposals to establish three research hubs with ongoing collaborative relationships with AI/AN communities. In addition to prevention research, the hubs' activities include outreach and dissemination aimed at promoting community engagement in research and enabling communities to use science-based information to develop prevention programs.

Click here to read more. 
NIMH's Dr. Ann Wagner Designated as the 
National Autism Coordinator

U.S. Department of Health and Human Services (HHS) Secretary Alex Azar has designated Ann E. Wagner, Ph.D., as the National Autism Coordinator. In this role, Dr. Wagner will play a vital role in ensuring the implementation of national autism spectrum disorder (ASD) research, services, and support activities across federal agencies. This role will complement the activities of the HHS, which includes public and federal members, takes place in a public forum, and focuses on sharing information about ongoing activities and providing advice to the Secretary of Health and Human Services on issues related to ASD.
Interagency Autism Coordinating Committee

Click here to read the full article. 

New Clinical Trial Now Seeking Recruits
Depression and Brain Function
(Inpatient and/or Outpatient study: 8 weeks, and 3 once-a-month follow up visits or phone calls.) This depression research study tests the effects of the combination of transcranial magnetic stimulation (TMS) and psychotherapy on brain function. Participation includes research evaluations, brain scans, and  active TMS and psychotherapy, or inactive TMS and psychotherapy .  
Recruiting ages 18-65 with major depressive disorder, who are free of other serious medical conditions. If you are currently taking anti-depressants, you may still be eligible. (17-M-0147). Click here for more information or Call: 1-877-MIND-NIH, (1-877-646-3644), TTY: 1-877-411-1010, or email
NAMI Walks

Click here to sign up for NAMIWalk NYS and start your team today!

NAMIWalks NYS: Strong Body, Strong Mind 2018
NAMI NYS invites You to join the movement...
Starting on April 1st, our NAMI NYS challenges you to participate in our Strong Body, Strong Mind Fitness Challenge. Every week the NAMIWalks section of the E-News will feature Strong Body,Strong Mind tools including healthy recipes, fitness challenges, and mindful exercises. 

We also encourage you to post on your social media why you support NAMI-NYS and are participating in the walk. Send in your posts and we will feature the posts in our upcoming newsletter.
Start your walk team now and join us and change attitudes and save lives!
Come Walk for Wellness on Saturday, September 29th at Jennings Landing, Albany NY. This inspirational community event will have a full day of live music, informational tabling, and family friendly activities.
Healthy Minds = Healthy Communities

Learn More About the Other NAMIWalks Taking Place in NYS

Click here for NAMIWalks Rochester, taking place May 5th at Village Gate.

Click here for NAMIWalks Long Island/Queens, taking place May 5th at Jones Beach.

Click here for NAMIWalks New York City Metro taking place May 12th at the South Street

Click here for NAMIWalks Westchester taking place May 19th at Rye Town Park.
Save the Date
APRIL 3 - Capital District Psychiatric Center Family Services Presents: An Overview of Talk Saves Lives Sponsored by American Foundation Suicide Prevention (A.F.S.P.) presented by Holly Briggs, CDPC Social Worker. Tuesday, April 3, 2018 from 5:00 pm - 7:30 pm in the CDPC Family Resource Center, 75 New Scotland Ave. Albany, NY. For more information or to register contact: Frank Greco, Director of Family Services (518) 549-6816.

APRIL 9th-The New York State Office of Mental Health will be holding a Regional Advisory Committee Meeting for Consumer and Families from 8:30 a.m. - 4:30 p.m. and will be available to all via statewide video teleconference.

Click here to learn more.
APRIL 19-20th-NYAPRS will be hosting their 14th annual Executive Seminar-New Strategies and Partnerships to Support the Most Challenged New Yorkers. The conference will feature presentations by Elinore McCance-Katz, HHS Assistant Secretary for Mental Health and Substance Use and renowned author and family advocate Pete Earley. NAMI-NYS will be exhibiting at the event and we hope you can join us.
Click here to learn more. 

April 20th- NAMI-NYS Young Adult Network member Olivia Case will be hosting a screening of Suicide The Ripple Effect at the Regal Theatre in Victor, NY. The film chronicles Kevin Hines, who at age 19 attempted to take his life by jumping from the Golden Gate Bridge. Seventeen years later, he still struggles with many of the same symptoms that led him to attempt to take his life, but he is on a mission to use his story to help others stay alive. The screening will benefit NAMI-NYS
Click here to learn more and register. 
MAY 1- Capital District Psychiatric Center Family Services Presents: An Overview of Mental Health Services in Rensselaer County by Kirstein DonVito, Rensselaer County Department of Mental Health Deputy Commissioner - Clinical AOT Coordinator and SPOA Tuesday, May 1 2018 from 5:00 pm - 7:30 pm in the CDPC Family Resource Center, 75 New Scotland Ave. Albany, NY. For more information or to register contact: Frank Greco, Director of Family Services (518) 549-6816.

Signature Programs
MARCH 28 - NAMI Huntington Family-to-Family. Wednesdays, March 28th-June 13th  7:00p.m. -9:00 p.m.  at the Northport VA Medical Center, Building 200-A1-5, 79 Middleville Rd. , Northport, NY 11768. To register contact: Jill Ryan 516-695-0389( ), Barry Goggin 631-261-4400 Ext 2785 ( ), Jane Dovi  631-835-2277 ( ).

APRIL 3-NAMI Orange County Family-to-Family .Tuesdays, April 3rd - June 19th , 6:30 p.m. - 9:00 p.m. at the First Presbyterian Church, 33 Park Place, Goshen, 10924.To register contact NAMI Orange County  / (845)956-6264.

APRIL 5- NAMI Cattaraugus Family-to-Family. Thursdays April 5th - June 21st from 6:00p.m. - 8:30p.m. at the Directions In Independent Living, 512 West State Street, Olean, NY 14760. To  Register Contact Theresa Klice (716) 373-4602. Program Leaders: Theresa Klice and Lenny Ligouri
APRIL 5- NAMI Sullivan Family-to-Family. Thursdays April 5th - June 14th from 6:00 p.m.-8:30 p.m. at 20 Crystal St., Monticello, NY 12701. To register contact ( 845) 794-1029 / ( Co teachers Lori Schneider and Mary Moore.  

APRIL 9 - NAMI Staten Island Family-to-Family. Mondays, April 9th -June 25 from 7:00p.m. -9:30p.m. at the Holy Rosary Parish, 85 Jerome Ave., Staten Island, New York 10305.   Paulette and Keith will be teaching. Please contact us to register (718) 477-1700.
APRIL 9- NAMI Putnam County Family to Family. Mondays April 9th - June 25th from 6:00 p.m. - 8:00 p.m. at the Kent Public Library 
17 Sybils Crossing, Carmel Hamlet, NY 10512. To register please contact William or Wanda Crowley (914) 522-3812 / (  

APRIL 11-NAMI Rochester Family-to-Family. Wednesday's April 11th -June 27th, 6:30 PM - 9:00 PM at NAMI Rochester (320 N. Goodman Street, Suites 102/103, Rochester, NY 14607). To enroll, contact Beth Winslow-D'Amico at (585) 423-1593 or

APRIL 12-NAMI Saratoga/Schenectady Family to Family. Thursday's April 12 through June 28 from 6:15 pm to 8:45 pm at Four Winds Hospital 30 Crescent Avenue, Saratoga Springs, NY. Call to register Dotte Coon 518 429-5047 e-mail ( Or Cindy Seacord 518 374-8071 e-mail (

APRIL 12-NAMI Rochester Homefront. Thursday's April 12th - May 17th, 12:30 PM - 3:00 PM at Rochester Veterans Transition Center (1867 Mt. Hope Avenue, Rochester 14620) To enroll, contact Beth Winslow-D'Amico at (585) 423-1593 or

APRIL 17- NAMI Columbia County Family to Family. Tuesdays April 17th - June 26th from 6:00 p.m. - 8:00 p.m. at the Niverville-Chatham United Methodist Church, 28 Church St., Niverville, NY 12130. To register contact Heather Llyod (914) 629-5299/ ( or Nicole Corey (518) 931-4170/ (  

MAY 8- NAMI Orange County Family-to-Family. Tuesdays, May 8th -July 24th  , 6:30 p.m. - 9:00 p.m.  at the St. Francis of Assisi Catholic Church, 145 Benkard Ave., Newburgh, NY 12550. To register contact NAMI Orange County (  / (845)956-6264. 
JUNE 3- NAMI Orange County Basics. Sundays, June 3rd -July 8th , 6:30 p.m. - 9:00 p.m. at the First Presbyterian Church, 33 Park Place, Goshen, 10924. To register contact NAMI Orange County (  / (845)956-6264.
JULY 11-NAMI Rochester Basics. Wednesday's July 11th -August 15th, 6:30 PM - 9:00 PM at NAMI Rochester (320 N. Goodman Street, Suites 102/103, Rochester, NY 14607). To enroll, contact Beth Winslow-D'Amico at (585) 423-1593 or

SEPTEMBER 5-NAMI Rochester Family-to-Family .Wednesday's September 5th - November 28th, 6:30 PM - 9:00 PM at NAMI Rochester (320 N. Goodman Street, Suites 102/103, Rochester, NY 14607). To enroll, contact Beth Winslow-D'Amico at (585) 423-1593 or

Please contact your local affiliate program le aders for more information and how to enroll.
NAMI Family-to-Family
April 6th -8th
Location: NAMI-NYS Office
NAMI Homefront
April 20th -22nd
 Location: NAMI-NYS Office

NAMI Basics
 June 2nd-3rd
 Location: NAMI-NYS Office

NAMI Peer-to-Peer
June 15th-17th
Location: NAMI-NYS Office

NAMI Family Support Group and NAMI Connections
 June 22nd -24th
Location: NAMI-NYS Office

NAMI-NYS | 99 Pine Street Suite 105| Albany, New York 12207 | (518) 462-2000