April 10, 2018

In This Issue
Quote of the Week:

"Mental health is so close to my heart, having struggled myself and having lost loved ones to their mental illnesses. I will forever advocate for mental health and work towards breaking the stigma, in hopes of  helping people lead a fulfilling, happy, and healthy life in recovery."-Eleni Gogos on receiving the NAMI Young Leader Award.

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This week's E-News features several exciting stories involving our NAMI-NYS Young Adult Network including one of our members being selected to receive the 2018 NAMI Young Leader Award. You will also find the New York Daily News publishing a letter to the editor from NAMI-NYS. This issue also features several stories about the intersection of mental illness and the criminal justice system, a new resource on insurance parity and a troubling story about increased opioid abuse among people with serious mental illness.

You will also find the information for the second week of the NAMI-NYS NAMIWalk Strong Body, Strong Minds challenge. 

We also remind you that the NAMI-NYS Ribbon Campaign is fast approaching, click here to learn more and order your ribbons. 

As always, we want to know about  the work you are doing.
Please email  Matthew@NAMINYS.org with details and pictures about your work. This way we can feature it in the E-News and print Newsletter. Showcasing your work will allow others to learn from you, and that's the best way we can grow together as an organization. 

Hope Starts With You

NAMI-NYS Young Adult Network Member Eleni Gogos
to Receive the 2018 NAMI Young Leader Award

Last week it was announced that Eleni Gogos, a member of the NAMI-NYS Young Adult Network from Rochester, has been chosen as the recipient of the 2018 NAMI Young Leader Award. The award will be presented at the 2018 NAMI National Convention. All of us at NAMI-NYS are tremendously proud of Eleni's accomplishments and her dedication to raising awareness in her community and among her peers. We are fortunate to have her as a part of the NAMI-NYS family.

"I am extremely honored and touched to receive this award and I want to thank all of those who nominated me, as well as all of the ongoing support and encouragement I've received throughout this beautiful journey. I'd like to thank NAMI-NYS and NAMI Rochester as well." Eleni commented adding, "Mental health is so close to my heart, having struggled myself and having lost loved ones to their mental illnesses. I will forever advocate for mental health and work towards breaking the stigma, in hopes of  helping people lead a fulfilling, happy, and healthy life in recovery." 

Click here to here Eleni being interviewed as part of a segment on depression from the Rochester based
Connections with Even Dawson radio program.

New York Daily News Publishes Letter to the Editor

In last week's E-News we shared an editorial by the New York Daily News detailing the trend of hospitals reducing long-term psychiatric beds. NAMI-NYS wrote a letter to the editor explaining how this reduction is more troubling when coupled with the lack of investments in mental health housing with wrap around services. 

As the letter explains,  "Without hospital beds or mental health housing, we will surely see more tragic and costly outcomes including homelessness, suicide, entry into the criminal justice system and overdependence on emergency rooms that are ill-equipped to handle those in psychiatric crisis. New York cannot continue to ignore this issue." The letter also thanks the Daily News for not using stigmatizing rhetorical arguments to explain a major issue impacting people and families affected by serious mental illness.

Click here to read the letter to the editor.    

NAMI on Campus at University at Albany 
Leads Mental Health Week Events 
Last week, NAMI on Campus at the University at Albany held a week's worth of mental health awareness events. On Monday, they held an event addressing common misconceptions about mental health issues. Tuesday featured a panel on Men and Depression which was moderated by NAMI-NYS's Matthew Shapiro. This was an inspiring event featuring a diverse panel of young men talking openly about depression and other mental health issues. Wednesday's highlight was a discussion about mental health in multicultural communities. The week of events concluded on Thursday with a speakout and poetry slam.  

The commitment and dedication of the members of NAMI on Campus at University at Albany is introducing vital conversations and raising much needed awareness within the University community. NAMI-NYS is proud to assist them in this effort.

NAMI-NYS Holds Family-to-Family Training  

This past weekend, NAMI-NYS held a training at our offices in Albany for new Family-to-Family teachers. The training was led by Sharon McCarthy and Audrey McInerney. Our new teachers are from Buffalo, NYC-Metro, Schenectady, Queens/Nassau, Finger Lakes and Rochester and we look forward to them bringing the unique brand of NAMI support and education to their communities.

A big thank you to Sharon and Audrey for leading the training, to all our new teachers and congratulations to Tina Lee, NAMI-NYS's Community Education and Outreach Manager on organizing her first state training. 

NAMI-NYS Participates in 
Prevent Child Abuse New York Rally

On Monday, April 2nd, our colleagues at Prevent Child Abuse New York State held a rally outside of the Capitol to kick-off Child Abuse Prevention Month. NAMI-NYS was invited to participate in the event which also detailed the long term mental health impact caused by child abuse. Assemblymembers John McDonald and Patricia Fahy and Albany Mayor Kathy Sheehan also spoke at the rally. 

Register Today for What's Great in Our State 2018
Hear Dianna Paige Give 
Young Adult Voice of Recovery Presentation

As this issue celebrates the accomplishments of 2018 NAMI Young Leader Award winner Eleni Golgos and the NAMI on Campus at University at Albany, we want to remind our readers that you have the opportunity to hear from another of our Young Adult Network leaders. Dianna Paige will be delivering the Young Adult Voice of Recovery presentation at the 2018 What's Great in Our State-A Forum to Celebrate Children's Mental Health Awareness. Click here to watch Dianna's TedX presentation on I am Depressed.

The free event, which NAMI-NYS co-produces with the NYS Office of Mental Health and other state agencies and non-profit organizations, will be taking place on Tuesday, May 8th from 1:30-4:30 at the New York State Museum. What's Great in Our State will also feature a keynote presentation by Dr. Peter Gray and will honor those advancing awareness of children's mental health issues.

Click here to register. 

Building Bonds Behind Bars wtih 
NAMI's Peer-to-Peer Program

In a new blog Sarah O'Brien, NAMI's Manager of National Education Programs, details her experience co-leading a three-day NAMI Peer-to-Peer training at the Iowa Correctional Institution for Women (ICIW).

Sarah discusses the trauma that many of the women at ICIW have experienced and how "during our training weekend, we carefully built a space of emotional safety that helped the women bond across the distances they had created from others for their self-preservation. They wanted a space where they could cry safely; they felt as though they'd been thrown away and forgotten by the world."

The blog truly showcases the power of the Peer-to-Peer course, even in the most difficult of surroundings. 

Click here to read more. 

New York News
 Criminal Justice Officials Should Stand Up to 
Mental Health Officials 

The recent shooting of mentally ill man Saheed Vassell at the hands of a New York Police Department officer has once again ignited a wave of anti-police sentiment. However, in a new article in the National Review, Mental Illness Policy Org director, DJ Jaffe writes that this anger is misdirected as police are more of the solution than the problem. Mr. Jaffe argues that, "As a result of the mental-health system's failures, police have become major proponents of better treatment for the most seriously ill and have a wealth of knowledge on how to achieve it."

The article quotes former Chief of New Windsor Police Michael Biasotti, who explains what police experience when they try to take a person with mental illness to a hospital. The article also quotes Cheektowaga, NY, police chief David J. Zack who says, "You cannot arrest your way out of this problem."

Click here to read more. 

Shutter Island: How Rikers Fails the Mentally Ill

In a new opinion piece in the Daily News, Alisa Roth, author of "Insane: America's Criminal Treatment of Mental Illness," writes about the impending closure of New York City's Rikers Island prison complex.
Ms. Roth writes, "For New York's huge - and growing - population of prisoners with mental illness, this (Rikers' closing) should be welcome news. After years of shocking revelations of abuse of sick prisoners, within a decade we will have newer, smaller - and hopefully safer - jails in each borough. But without a comprehensive reform of how the city deals with mental illness, the overhaul risks recreating the same problems that gave Rikers such a bad name."
She chronicles the experiences of one Rikers inmate, an African-American man living with schizophrenia and the various ways the mental health and legal systems failed him and missed opportunities to divert him towards real psychiatric services.

Click here to read more.

National News
Legal Action Center Provides Guide to Recognize Red Flags in Insurance Parity

The Legal Action Center recently published a new one-page guide identifying both red flags that your insurance provider is not adhering to insurance parity as well as what to do if you see these red flags.

Click here to view the Red Flag guide. 
Click here to watch the Mental Health Now episode on Insurance Parity. 

The Need to Address the Emerging SMI and Opioid Crisis

Ron Manderscheid, PhD, executive director of the National Association of County Behavioral Health & Developmental Disability Directors, recently wrote about an emerging complex health problem involving people who have serious mental illness (SMI), using or who are dependent on opioids. Anecdotal reports from the field suggest that up to half of adults with SMI in urban areas, particularly those with schizophrenia or bipolar disorder, have this comorbidity.
Dr. Manderscheid argues that "these linkages should not be surprising to anyone. Opioid use or other drug use is principally a 'disease of despair.' The disease is an addiction. The despair is a psychological comorbidity reflected in the depression. Both must be addressed." He further argues, "Clearly, we must develop the capacity to offer integrated mental health and substance use care to this population. We also must make integrated primary care available at the same time and in the same encounters, with appropriate social supports linked to all of these services."

Click here to read more. 
NAMI-NYS Selected to Continue to Serve on the NIMH 
Outreach Partnership Program Steering Committee

NAMI-NYS's Associate Director, Public Policy, Matthew Shapiro has been selected to serve a second two-year term on the NIMH Outreach Partner Program steering committee. 

The Outreach Partnership Program (OPP) is a nationwide initiative of the National Institute of Mental Health's (NIMH)  Office of Constituency Relations and Public Liaison  (OCRPL). The OPP works to increase the public's access to science-based mental health information through partnerships with national and state organizations.

Of the selection Matthew says, "Educating our members about research has always been paramount to NAMI-NYS's mission and we take great pride in our involvement in the NIMH OPP. It has been a tremendous honor to serve on the OPP's steering committee the past two years and I am humbled to be asked to continue in this role. I look forward to working with the incredible OPP staff and my fellow committee members to help guide the program and increase the public's understanding of the importance of brain research." 

NIMH Funded Research Determines Certain Antidepressants More Effective in Treating Youth Anxiety Disorder

For children and adolescents who require medication to treat anxiety, there are two primary classes of antidepressants that are prescribed: selective serotonin reuptake inhibitors (SSRIs) and selective serotonin-norepinephrine reuptake inhibitors (SNRIs). New research conducted at the University of Cincinnati (UC) and funded by NIMH shows for the first time that SSRIs may be the more effective option.

"For a long time there had been this sense that SSRIs work better than the SNRIs in treating anxious youth, but there wasn't clear evidence to back this up, so we wanted to put that notion to the test," says Jeffrey Strawn, MD, associate professor in the Department of Psychiatry and Behavioral Neuroscience at the UC of Cincinnati College of Medicine, and lead author on the study.

Click here to read more. 

New Clinical Trial Now Seeking Recruits
Depression and Brain Function
(Inpatient and/or Outpatient study: 8 weeks, and 3 once-a-month follow up visits or phone calls.) This depression research study tests the effects of the combination of transcranial magnetic stimulation (TMS) and psychotherapy on brain function. Participation includes research evaluations, brain scans, and  active TMS and psychotherapy, or inactive TMS and psychotherapy .  
Recruiting ages 18-65 with major depressive disorder, who are free of other serious medical conditions. If you are currently taking anti-depressants, you may still be eligible. (17-M-0147). Click here for more information or Call: 1-877-MIND-NIH, (1-877-646-3644), TTY: 1-877-411-1010, or email  moodresearch@mail.nih.gov.
NAMI Walks

Click here to sign up for NAMIWalk NYS and start your team today!

NAMIWalks NYS: Strong Body, Strong Mind 2018
NAMI NYS invites You to join the movement...
Christine Rickeman Shares Her Week 2 Goals and the
 Healthy Recipe for the Week

NAMI-NYS challenges you to participate in our Strong Body, Strong Mind Fitness Challenge. Every week the NAMIWalks section of the E-News will feature Strong Body, Strong Mind tools including healthy recipes, fitness challenges, and mindful exercises.

Last week, NAMI-NYS Helpline Coordinator Christine Rickeman shared her Strong Body, Strong Mind goals and this week Chris updates our readers. "Last week I made my pledge to the Strong Body Strong Mind Challenge; I am now on my second week and am happy to report that I have lost 2lbs! What helped me stay focused was to follow my week one schedule of the 8 week beginner fitness jump start, along with eating healthier and journaling everything I've accomplished in a day (good or bad); of course, the doodling helps with mindfulness as well. So for all of you who wish to join me click here for the link to week two workout schedule along with some great recipes! Join me and be a part of the solution! 

We also encourage you to post on your social media why you support NAMI-NYS and are participating in the walk. Send in your posts and we will feature the posts in our upcoming newsletter.
Start your walk team now and join us to change attitudes and save lives!
Come Walk for Wellness on Saturday, September 29th, at Jennings Landing, Albany NY. This inspirational community event will have a full day of live music, informational tabling, and family friendly activities.
Healthy Minds = Healthy Communities

Learn More About the Other NAMIWalks 
Taking Place in New York State

Click here for NAMIWalks Rochester, taking place May 5th at Village Gate.

Click here for NAMIWalks Long Island/Queens, taking place May 5th at Jones Beach.

Click here for NAMIWalks New York City Metro taking place May 12th at the South Street Seaport. 

Click here for NAMIWalks Westchester taking place May 19th at Rye Town Park.
Save the Date

Click here to register for the A Brighter Day Event taking place on May 4th. This free event will also serve as the Information Meeting for NAMIWalk NYS 2018. 

APRIL 14th-NAMI Queens/Nassau will be hosting a special benefit performance of A Bit Too Much About Me, written and performed by NAMI-NYS Young Adult Network member and Broadway musician Zak Sandler.  From the piano, Zak narrates his experience with bipolar as it progresses from out-of-control and chaotic, to in-control and harmonious, while he strives to navigate his relationships and his writing career.

The show will begin at 7:30 and will be held at Unitarian Universalist Congregation At Shelter Rock, 48 Shelter Rock Rd, Manhasset, NY 11030. Click here for more information and order tickets. 
APRIL 19-20th- NYAPRS will be hosting their 14th annual Executive Seminar-New Strategies and Partnerships to Support the Most Challenged New Yorkers. The conference will feature presentations by Elinore McCance-Katz, HHS Assistant Secretary for Mental Health and Substance Use, and renowned author and family advocate Pete Earley. NAMI-NYS will be exhibiting at the event and we hope you can join us.
Click here to learn more. 

April 20th-
NAMI-NYS Young Adult Network member Olivia Case will be hosting a screening of Suicide: The Ripple Effect at the Regal Theatre in Victor, NY. The film chronicles Kevin Hines, who at age 19 attempted to take his life by jumping from the Golden Gate Bridge. Seventeen years later, he still struggles with many of the same symptoms that led him to attempt to take his life, but he is on a mission to use his story to help others stay alive. The screening will benefit NAMI-NYS.
Click here to learn more and register. 

APRIL 25- While a student at SCCC, NAMI Rensselaer County member Stephen Piorkowski began a project in conjunction with CREATE Studios to create a wall of tiles to raise disability awareness. Tiles would be painted by those whose lives have been affected by disabilities (including mental illness); CREATE would fire them and affix them to a column where they would be seen to raise awareness.
We welcome those living with a disability, as well as caregivers and anyone whose life has been affected by a disability to participate.

Materials will be provided and this is a free event.
Wednesday, April 25th, 11:00am--1:00pm
Schenectady County Community College
78 Washington Ave, Schenectady, NY
Click here to sign up 
MAY 1- Capital District Psychiatric Center Family Services Presents: An Overview of Mental Health Services in Rensselaer County by Kirstein DonVito, Rensselaer County Department of Mental Health Deputy Commissioner - Clinical AOT Coordinator and SPOA. Tuesday, May 1 2018 from 5:00 pm - 7:30 pm in the CDPC Family Resource Center, 75 New Scotland Ave., Albany, NY. For more information or to register contact: Frank Greco, Director of Family Services (518) 549-6816.

MAY 4-NAMI-NYS will be hosting the 6th Annual A Brighter Day event. The free event, which will also serve as the NAMIWalks NYS Information Meeting, will be taking place from 5-7:30pm at Glennpeter Jewelers Diamond Centre, located at 1544 Central Avenue Albany. 

Click here to learn more and register.

May 8-Join NAMI-NYS for What's Great in Our State 2018: A Forum to Celebrate Children's Mental Health Awareness. The event which will feature NAMI-NYS Young Adult Network Member Dianna Paige delivering the Young Adult Voice of Recovery address will be taking place from 1:30-4:30pm at the New York State Museum. There is no fee to attend the event. 

Click here to learn more and register. 

Signature Programs
APRIL 11 -NAMI Rochester Family-to-Family. Wednesday's April 11th -June 27th, 6:30 PM - 9:00 PM at NAMI Rochester (320 N. Goodman Street, Suites 102/103, Rochester, NY 14607). To enroll, contact Beth Winslow-D'Amico at (585) 423-1593 or beth@namirochester.org.

APRIL 12-NAMI Saratoga/Schenectady Family to Family. Thursday's April 12 through June 28 from 6:15 pm to 8:45 pm at Four Winds Hospital 30 Crescent Avenue, Saratoga Springs, NY. Call to register Dotte Coon (518) 429-5047 e-mail ( dottecoon@aol.com) Or Cindy Seacord (518) 374-8071 e-mail ( cwseacord@hotmail.com)

APRIL 12-NAMI Rochester Homefront. Thursday's April 12th - May 17th, 12:30 PM - 3:00 PM at Rochester Veterans Transition Center (1867 Mt. Hope Avenue, Rochester 14620) To enroll, contact Beth Winslow-D'Amico at (585) 423-1593 or beth@namirochester.org.

APRIL 17- NAMI Columbia County Family to Family. Tuesdays April 17th - June 26th from 6:00 pm - 8:00 pm at the Niverville-Chatham United Methodist Church, 28 Church St., Niverville, NY 12130. To register contact Heather Llyod (914) 629-5299/ ( namiccny@gmail.com) or Nicole Corey (518) 931-4170/ ( thomco1@ix.netcom.com)  

APRIL 19- NAMI Rensselaer Family-to-Family. Thursday's, April 19th  - July 5th  from 6:00 pm-8:30 pm at the NAMI-NYS Office, 99 Pine St. Suite 105, Albany, NY. 12207. To register, please contact: NAMI Rensselaer County, (518) 588-6949/ email: namirensco@gmail.com or Christine Rickeman: (518) 462-2000/email: christine@naminys.org.  Co Teachers: Robin Cole and Christine Robinson-Cooley.

APRIL 24- NAMI Rockland Basics.Tuesday's , April 24th - May 29th,  from 6:30 pm to 9:00 pm,  at  St. Dominic's Family Services,
500 Western Highway, Blauvelt, NY  10913.  Co-Teachers:  Anne Arias & Rita Strumph.  To Register Contact :  (845) 359-8787 or Email: FamilySupport@namirockland.org.

MAY 8- NAMI Orange County Family-to-Family. Tuesdays, May 8th -July 24th  , 6:30 pm -9:00 pm  at the St. Francis of Assisi Catholic Church, 145 Benkard Ave., Newburgh, NY 12550. To register contact NAMI Orange County (namiorangeny@warwick.net)  / (845)956-6264. 
JUNE 3- NAMI Orange County Basics. Sundays, June 3rd -July 8th , 6:30 p.m. - 9:00 p.m. at the First Presbyterian Church, 33 Park Place, Goshen, 10924. To register contact NAMI Orange County ( namiorangeny@warwick.net)  / (845)956-6264.

JUNE 5- NAMI Queens Nassau Family to Family. Tuesday's June 5 thru August 21, 2018 no class July 3rd, from 6:00 pm-8:30 pm at the Queens Hospital Center Pavilion Building, Security will direct to room 82-68 164 street, Jamaica, NY 11432. To register: email namiqn@aol.com or call (718) 347-7284 or (516) 326-0697, www.namiqn.org www.facebook.com/namiqn. Co-Leaders Valerie Newman 516-514-5183, Camelle Charles 646-283-9272.

JULY 11-NAMI Rochester Basics. Wednesday's July 11th -August 15th, 6:30 PM - 9:00 PM at NAMI Rochester (320 N. Goodman Street, Suites 102/103, Rochester, NY 14607). To enroll, contact Beth Winslow-D'Amico at (585) 423-1593 or beth@namirochester.org.

SEPTEMBER 5-NAMI Rochester Family-to-Family .Wednesday's September 5th - November 28th, 6:30 PM - 9:00 PM at NAMI Rochester (320 N. Goodman Street, Suites 102/103, Rochester, NY 14607). To enroll, contact Beth Winslow-D'Amico at (585) 423-1593 or beth@namirochester.org.

Please contact your local affiliate program le aders for more information and how to enroll.

NAMI Basics
 June 2nd-3rd
 Location: NAMI-NYS Office

NAMI Peer-to-Peer
June 15th-17th
Location: NAMI-NYS Office

NAMI Family Support Group and NAMI Connections
 June 22nd -24th
Location: NAMI-NYS Office

NAMI-NYS | 99 Pine Street Suite 105| Albany, New York 12207 | (518) 462-2000