June 5, 2017

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This edition of the NAMI-NYS E-News begins with save the date information for this year's education conference. Be sure to put November 10-12 on your calendar as we look forward to having you join us in Albany for what is sure to be an historic conference. This issue also contains an update on Congressional Budget Office's assessment of the American Health Care Act and information on the officer responsible for the death of a woman with schizophrenia in the Bronx. 
As always, we want to know about the work you are doing. Please email  Matthew@NAMINYS.org with details and pictures about your work. This way we can feature it in the E-News and print Newsletter. Showcasing your work will allow others to learn from you, and that's the best way we can grow together as an organization. 

Hope Starts With You!
 2017 NAMI-NYS Education Conference
November 10-12

Later this week, NAMI-NYS will be officially announcing the details of our 2017 Education Conference- Engagement, Implementation, Intervention: Three Pronged Approach to Sustainable Mental Health Recovery. We want to make sure you save the dates November 10-12 as we are sure you will not want to miss the year's conference. The Conference Committee has been hard at work and this year's conference will introduce elements new to our conference format which we are very excited about. Look for the official announcement mid-week. 

NAMI-NYS Holds Support Group Training

This past weekend, NAMI-NYS hosted a training for new support group leaders. We thank everyone who took the training and will go back to their communities to demonstrate why NAMI-NYS and our affiliates are a place to find help and find hope. 

NAMI-NYS to Hold Second Bowling Fundraising Event

Following the success of May's Bowling for Hope event, NAMI-NYS will be holding Bowling for Hope Second Strike on July 21st from 6-8pm.

Come join us for another night of fun and friendship while supporting a great cause, the 2017 NAMIWalks NYS. The event will be taking place at the  East Greenbush Bowling Center, 570 Columbia Turnpike East Greenbush, NY 12061.

Ticket prices are: $12.00 without shoe rental; $15.00 with shoe rental. For any questions or to purchase tickets in advance, please contact Heide Garner at (518) 462-2000 or heide@naminys.org.
New CBO Score on AHCA Confirms Devastating Losses to 
Mental Health System

NAMI reports how the newly released Congressional Budget Office (CBO) score confirms devastating losses to mental health care in the House-passed American Health Care Act (AHCA).

"Under the American Health Care Act, it is estimated that 23 million Americans will lose coverage for mental health care by 2026, including 14 million who will no longer be covered by Medicaid," said Mary Giliberti, CEO of NAMI. "This will force people with mental illness out of work, onto the streets, and in our jails and emergency rooms. All this will do is shift costs and overwhelm local communities, emergency rooms and law enforcement."

According to the CBO report, the AHCA will slash $834 billion from Medicaid over ten years. "Medicaid is the cornerstone of the public mental health system. Cuts of this magnitude will deplete mental health services and jeopardize care for people with the most severe mental health conditions," said Giliberti.

Click here to read more.
New York State News
New York City Police Officer Charged with Murder in Death of Woman with Schizophrenia

In October, we reported on the tragic case of Deborah Danner, a woman living with schizophrenia in the Bronx who was killed by a police officer. Last week, the officer Sergeant Hugh Barry was charged with second-degree murder, first- and second-degree manslaughter and criminally negligent homicide, and was suspended without pay.

Police officers rarely face criminal charges in deaths that occur when they are on duty, and murder charges are even more rare. Mayor Bill de Blasio and the police commissioner, James P. O'Neill, said Sergeant Barry had not followed police protocol for dealing with people with mental illness. Specifically, he did not use his stun gun to try to subdue Ms. Danner, and he did not wait for a specialized Emergency Service Unit to arrive.

Click here to read more from the New York Times.

As we previously reported, more than a decade ago Ms. Danner had written an essay about living with schizophrenia and her fear of being shot by a cop, which you can click here to read. 

Thurman Thomas & Daughter Speak Out on Mental Health 

In an interview with NBC affiliate station WGRZ in Buffalo, NFL Hall of Famer and Buffalo Bills great, Thurman Thomas, and his daughter, Annika, discussed her struggle with depression. Annika details the point in high school when her depression and anxiety reached a boiling point. Feeling misunderstood and alone in the wake of the death of four of her dogs, Annika turned her phone off and drove away from the Thomas Family home. Convinced that they had to help their daughter, Thurman and his wife, Patti, admitted Annika to Erie County Holding Center for treatment.  Battling depression and suicidal ideations, Annika dropped out of high school, but later returned to earn her GED. Both Thurman and Annika have since become active in the African American community to spread a message of support and understanding regarding mental illness, worried that it is often treated as a non-issue or a taboo subject. 

Click here to watch the full interview.
National News
40 Million Americans Suffer From Anxiety Disorders
A New Book Explores Why

In a recently published memoir, On Edge: A Journey Through Anxiety, Andrea Petersen details her experiences leading up to being diagnosed with an anxiety disorder. Petersen's book goes on to delve into research on anxiety disorders, and to explore why they lag behind other mental illnesses when it comes to acceptance. Anxiety disorders can be roughly attributed to a misfiring of the brain's fight-or-flight response and have a higher prevalence in women than men, a trend which On Edge explores in detail.

Vogue magazine recently interviewed Ms. Peterson. It is also important to note the fact that magazines such as Vogue are now discussing mental health issues. This type of coverage is a giant step in mental health awareness. 

Click here to read the Vogue interview with Andrea Petersen.

NIMH Update

Click here to read the latest UPDATE from NIMH. 

Listen to NIMH Director on NPR's All Things Considered

NIMH Director Josh Gordon was interviewed for a recent segment on the NPR news program All Things Considered. The story, As Brains Mature, More Robust Information Networks Boost Self-Control, explored an NIMH-funded study on executive functions in the brain.

Click here to listen.

Watch Mental Health Now Featuring
NIMH's Dr. Robert Heinssen

Click here to watch the episode of the NAMI-NYS produced television program Mental Health Now featuring Dr. Robert Heinssen, , Director, Division of Services and Intervention Research, the National Institute of Mental Health (NIMH). The episode was recorded when Dr. Heinssen was one of the featured speakers at our 2016 Education Conference. In the episode, Dr. Heinssen discusses several NIMH initiatives, the road ahead with new director Dr. Joshua Gordon and how New York State took findings from the NIMH Recovery After Initial Schizophrenic Episode (RAISE) study to introduce the progressive early intervention program OnTrackNY.

Several NIMH Studies on Irritability in Children 
Looking for Recruits

Why study irritability? During the 1990s, there was a significant increase in the number of children being diagnosed with bipolar disorder. After years of studies, NIMH researchers concluded that, although children with severe irritability were being diagnosed with bipolar disorder, severe irritability and bipolar disorder are not the same. However, irritability, like bipolar disorder, can be very impairing for children, and little is known about what causes it or how to treat it. Therefore, today, NIMH clinicians continue to investigate severe irritability and the related diagnosis of Disruptive Mood Dysregulation Disorder (DMDD).

Children pass through many phases of development as they grow up. It can be hard to know if a child is going through normal development or showing signs of something more serious. Occasional outbursts are a normal outcome of being tired, uncomfortable, or frustrated. In some children, it can be chronic and explosive.

Children who enroll in NIMH studies have irritability that signi´Čücantly impacts their functioning at home, in school and with other children.

Click here to learn more about the current studies and how to participate. 


2017 NAMIWalksNYS September 23rd

NAMI-NYS looks forward to building on the success of our inaugural NAMIWalks NYS. The 2017 NAMIWalks NYS will be taking place on Saturday, September 23rd, at Jennings Landing in Albany. You can click here to start your team and/or donate to the walk.  
For more information you can email  Heide@naminys.org

Information on Other NAMIWalks in New York 

May 6th- NAMIWalks Rochester, Village Gate Square-Rochester
May 6th- NAMIWalks Long Island/Queens, Jones Beach-Zach's Bay, Wantagh
May 13th- NAMIWalks New York City Metro, South Street Promenade-Brooklyn Bridge-Manhattan
May 20th- NAMIWalks Westchester , Rye Town Park-Rye

Save the Dates
June 13-Join the Brain and Behavioral Research Foundation for their latest
Meet the Scientist webinar. The topic is Obsessive Compulsive Disorder and the presenter will be Carolyn I. Rodriguez, M.D., Ph.D., Stanford University School of Medicine. The webinar will take place from 2:00 p.m.-3:00 p.m. EST. Click here for more information.

Signature Programs
June 1 -NAMI Queens/Nassau will hold a Family-to-Family class at the Unitarian Universalist Congregation at Shelter Rock 48 Shelter Rock Rd. Manhasset, NY 11030 from 10am-12:30. 
Register: (718) 347-7284 or (516) 326-0797 or email namiqn@aol.com

JUNE 3-NAMI Queens/Nassau Family-to-Family. Saturdays June 3rd - August 26th  1:30 pm- 4:00 pm at  The Greater Allen A.M.E. Cathedral of New York, 110-31 Merrick Boulevard, Jamaica, NY 11433. To register call (718) 347-7284 or (516) 326-0797 or email namiqn@aol.com. Co-Leaders Rev. Val Gittens, Theresa Stahling, Jeannette Wells. This class is full, please contact Jeannette Wells for future Family -to-Family Class information.(646)-483-3885.

JUNE 6- NAMIRockland Bases Y Fundamentos. Tuesdays June 6th - July 18th (off July 4th)  6:00 pm to 8:30 pm at  St. Dominic's Home, Community Waiver Program, 500 Western Highway, Blauvelt NY.Facilitators Marilyn Matos and Barbara Martinez-Silva, to register contact:  NAMI Rockland (845) 359-8784
JUNE 8-  NAMI Rockland Basics. Thursdays, June 8th-July 6th 6:30 pm to 9:00 pm at St. Dominic's Home, Community Waiver Program
500 Western Highway, Blauvelt NY. Facilitators  Rita Strumph and  Kate Johnson. To register contact:  NAMI Rockland (845) 359-8784

JULY 12-NAMI-NYC Metro Basics PROFESSIONAL CLASS (for professionals only). Wednesdays, July 12th - August 16th at 505 8th Avenue, Suite 1103, New York, NY 10018.  To register contact Deniece Chi (212)684-3365 x 203 / parent@naminyc.org

JULY12th-NAMI Central Suffolk Basics. Wednesday evenings July 12th- August 23rd from 6:00 pm-8:30 pm at the Farmingville Mental Health Clinic, 15 Horseblock Place Farmingville, NY 11738. Registration is required. Contact: Andrea Stolz, astolz@fsl-li.org (631) 223-5030 

SEPTEMBER 6- NAMI Rochester Family-to-Family. Wednesdays, September 6th -November 29th, 6:30 pm - 9:00 pm. NAMI Rochester Office, 320 N. Goodman Street, Suite 103, Rochester, NY 14607. Contact Beth Winslow-D'Amico at (585) 423-1593 or beth@namirochester.org.

SEPTEMBER 12- NAMI-NYC Metro Basics. Tuesdays, September 12 - October17, 6:00 pm- 8:30 pm at    505 8th Avenue, Suite 1103, New York, NY 10018.   To register contact Deniece Chi (212)684-3365 x 203 / parent@naminyc.org.

SEPTEMBER 13- NAMI-NYC Metro Basics (SPANISH SPEAKING). Wednesdays, September 13th-October 18th, 6:00 pm- 8:30 pm at 505 8th Avenue, Suite 1103, New York, NY 10018.  To register contact Deniece Chi (212)684-3365 x 203 / parent@naminyc.org. 

SEPTEMBER 14 - NAMI-NYC Metro Basics. Thursdays, September 14th- October 19th 10:00 am-12:30 pm at 505 8th Avenue, Suite 1103, New York, NY 10018.  To register contact Deniece Chi (212)684-3365 x 203 / parent@naminyc.org.

NOVEMBER 1 -NAMI-NYC Metro Basics. Wednesdays, November 1st-December 6, 6:00 pm- 8:30 pm at 505 8th Avenue, Suite 1103, New York, NY 10018.  To register contact Deniece Chi (212)684-3365 x 203 / parent@naminyc.org.

NOVEMBER 2 - NAMI NYC Metro Basics. Thursdays, November 2nd - December 7th, 10:00 am-12:30 pm at 505 8th Avenue, Suite 1103, New York, NY 10018.  To register contact Deniece Chi (212)684-3365 x 203 / parent@naminyc.org. 

NOVEMBER 3-NAMI-NYC Metro Basics (SPANISH SPEAKING) Fridays, November 3rd - December 8th, 10:00 am-12:30 pm at 505 8th Avenue, Suite 1103, New York, NY 10018.  To register contact Deniece Chi (212)684-3365 x 203 / parent@naminyc.org. 

Please contact your local affiliate program leaders for more information and how to enroll.
NAMI Support Group Facilitator Training
June 3rd-4th, 2017
Trainers: Deniece Chi & Nancy Parker
Location: NAMI-NYS Office Albany

NAMI Family-to-Family Teacher Training
June 9th-11th, 2017
Trainers: Patti Sacher & Bonnie Goldberg
Location: NAMI-NYS Office Albany
NAMI In Our Own Voice Presenter Training
June 24th-25th, 2017
Trainers: Cynthia Scott & Lady Charmaine Day
Location: NAMI-NYS Office Albany
NAMI Family-to-Family Teacher Training
July 14th-16th, 2017
Trainers: Ann Canastra & Cheri Caiella
Location: Comfort Suite Cicero-Syracuse
NAMI Homefront Teacher Training
September 16th-17th 2017
Trainers: Pam Solomon & Jerry Burton
Location: NAMI-NYS Office Albany
NAMI Family-to-Family Teacher Training
October 20th-22nd, 2017
Trainers: Patti Sacher & Bonnie Goldberg
Location: NAMI-NYS Office Albany

To have your events and Signature Programs listed in the E-Newsletter contact Christine Rickeman at christine@naminys.org.   

NAMI-NYS | 99 Pine Street Suite 105| Albany, New York 12207 | (518) 462-2000