September 1st, 2016
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We are bringing you this week's edition of the NAMI-NYS E-Newsletter a day early as we know that many of you will be away on Friday to get an early start on your holiday weekend. We hope all of you have a safe and enjoyable Labor Day weekend.

On Wednesday, we sent out an Action Alert about NAMI's National Call-In Day to tell the Senate to pass S.2680. You can click here to view that alert if you missed it yesterday. This week's NAMI News section is focused on mental health reform detailing both the action needed by the Senate as well as information about Hillary Clinton's recently announced mental health reform agenda.

NAMIWalks Just Three Weeks Away
Please Support the Walk!!!

We also want to remind everyone that our inaugural NAMIWalks NYS is just three weeks away. Be sure to sign up or donate today and help support NAMI-NYS in our mission to deliver support and education.

There will not be an edition of the E-News next week, the next edition will come out on September 16th.

As always, we want to know about the work you are doing. Please email with details and pictures about your work. This way we can feature it in the E-News and print Newsletter. Showcasing your work will allow others to learn from you and that's the best way we can grow together as an organization. 

Hope Starts With You!
NAMI-NYS Holds Ending the Silence Training

On the weekend of August 26th, NAMI-NYS held a training for the Ending the Silence program which makes in-school presentations for students. The training was led in Westchester and by Sharon McCarthy and Tina Lee. Among those trained was NAMI-NYS Board Member Dhanu Sannessy and her son Anil. Thank you to all our Ending the Silence presenters for doing this vital work of bringing mental health awareness to students.

NAMI Schenectady Holds Their Annual Picnic

On Friday, August 26th, NAMI Schenectady held their annual picnic at the Niskayuna Recreation Complex. People living in residential programs with psychiatric supports and those in other mental health programs were brought to the picnic to enjoy the afternoon with family members and those in the local affiliate. The event featured a barbecue, games and singing and dancing. 

NAMI-NYS's Matthew Shapiro was on hand to talk to participants about NAMIWalks NYS and the 2016 Education Conference. He was also drafted to help lead the sing along of "New York-New York," Luckily, this did not cause a mass exodus,

A great time was had by all.

NAMI-NYS Welcomes Our Newest Volunteer

This week NAMI-NYS welcomed our newest volunteer, Ojene Sutton. Ojene is a student at University at Albany with a dual-major in Psychology and Women's Studies. One of her roles will be working on the E-News and she did a lot of the work for this week's edition. We're sure you will agree that she is already doing a great job. We're excited to have her on board as part of the NAMI-NYS family. 

A Presidential Candidate Steps Out with a
Mental Health Agenda
In their weekly blog,  NAMI examines  Hillary Clinton's mental health agenda released earlier this week. The blog compares it with NAMI's policy platform addressing the need to reform the delivery of  psychiatric  services and is looking to improve other key issues such as police interactions and unemployment. 

Click here  to read more
NAMI and NAMI-NYS do not endorse political candidates.

 The Countdown is On: 
Time to Tell the Senate to Pass Mental Health Reform

NAMI discusses the push to pass S.2680 and enact mental health reform  The article details the importance of reform and what it can do for this country in terms of mental health policies. It explains why the advocacy for the bill is something that everyone should be getting involved in.

Click here to

New York State News

House Panel Investigating Troubled V.A. Hospital on Long Island

Last week, we shared with you the  New York Times article detailing the tragic case of a veteran who took his life in the parking lot of the Northport Veterans Affairs Medical Center located in Long Island. This week the Times reports how other ongoing health violations led to the complete shutdown of the facility. A House panel will be investigating the facility

Click here to read more.

Health Insurance in New York has an Essential Problem

A decline in the enrollment of private health insurance in New York has reached an all-time low as of 2016 as shown by City and Slate New York. Governor Andrew Cuomo's Essential Plan (a government sponsored health provider), seems to be one of the main factors in the decline. For lower income families, the Essential Plan serves as an inexpensive form of health insurance, compared to insurances that the Affordable Care Act was implemented to offer. While this is a positive development for those struggling economically, it could have a negative impact by leading to the decrease in enrollment in private plans, which can in turn lead to rate increases.

Click here to read more.

New York Magazine Details How Mental Illness Is More Than Just Depression and Anxiety

This article by New York Magazine focuses on the stigma of mental illness, and how most of society tends not to discuss psychosis and it's place in the community of mental illness. Steps are being taken to eliminate the perception that depression and anxiety are the only forms of mental illness, The article details how organizations such as NAMI and the American Psychological Association (APA) are reaching out to educate the public on this issue.

Click here to read more. 

Fund for Public Health Calling for Submission for Mental Health Art Project

 For those with a passion and a drive for art, the Fund for Public Health Calling is seeking talented individuals to help create and launch its new mural arts project. The mural is intended to reduce stigma and to raise mental health awareness in the community. An application and more information on this initiative can be found in the link.

Click here to read more. 
National News
Justice Department Focuses on Police Treatment of Mentally Ill
Police brutality has been linked with racial discrimination; however those suffering from a mental illness have been victims of excessive force from police. This article from ABC News provides information on an incident in Baltimore as an example of the use of excessive force. The article also details efforts throughout the country of law enforcement departments' efforts to improve their forces in responding to mental health crises.

Click here to read more.

Among the positive examples is the case we shared with you this past December of how a police officer in  Queens who was trained in Crisis Intervention Training successfully prevented a suicide attempt at a shopping mall. The officer, Christian Campoverde, recently wrote about his experience and the need for more officer training in the Daily News.

Click here to read.

Depression Is Rampant Among Doctors In Training

This article by WBUR News Station discusses how the mental health of those who are completing their medical residencies is threatened by the constant state of stress, the long hours, and the overall feeling of being alone. The author of this article, Dr. Elisabeth Poorman, provides several interviews from other health professionals who have gone through the same battle. Dr. Poorman's story and the other stories are prime examples of the stigma on mental illness.

Click here to read more.

New webpage: Technology and the Future of Mental Health Treatment

This article from the National Institute of Mental Health discusses a possible new means of treatment for mental illness. The advancement of technology has led to great things, yet some would find the advancements negative. NIMH provides their own list of positives and negatives of this new access to treatment.

Click here to

Designer Agent Blocks Pain in Mice Without Morphine's Side Effects

NIMH is funding research in search of a pain reliever that did not cause side effects. The research was done on mice and the outcomes are showing positive results. The lack of side effects gives hope for those who rely on heavy pain relievers and suffer from a multitude of side effects.

Click here to read more. 

Join A Study of Schizophrenia and the Brain: 
A Six-month Inpatient Evaluation Study 

Have you been diagnosed with schizophrenia or schizoaffective disorder? Are you between 18 and 55 years of age? Would you be willing to live at the Clinical Center on the NIH campus for six months? If so, you may be eligible to participate in a study designed to understand the neurological basis of schizophrenia and to determine which symptoms are related to the illness and which are related to the medications used to treat the illness.

This six-month study has three phases: In the first phase you will participate in many comprehensive medical, neurological, cognitive, and psychiatric evaluations. In the second phase, the research phase, you will be tapered off of your medication for about 4 weeks. In the time that your medication is discontinued, research procedures will allow investigators to distinguish the effects of the illness on the brain without the interference of the medication's effects. In the third phase, you will have the opportunity to stabilize using the treatment selected to be most helpful to you.
To find out if you qualify,  email NIMH   or call 1-301-435-8970 (1-888-674-6464) [TTY: 1-866-411-1010].
Protocol Number:  89-M-0160 


NAMIWalks NYS is three weeks away. We know that many of you have received education and support from NAMI-NYS. Whether you participated in one of our Signature Programs at no cost, attended our annual education conference or by learning valuable information presented by this publication each week, NAMI-NYS has helped you. Please help us and support NAMIWalks NYS by clicking here

We are proud to have Keith O'Neil, former NFL player and leading Mental Health Advocate, serving as the Grand Marshal of NAMIWalks NYS.

Keith was the special teams captain of the Super Bowl Champion 2007 Indianapolis Colts and also played for the New York Giants and Dallas Cowboys. During his NFL career he began to notice his symptoms of bipolar disorder; following his retirement his disease become worse.  Keith and his family live in Buffalo, NY and NAMI helped his wife and family understand his disease by providing the type of education and support we deliver to thousands of people living with a mental illness and their families across New York State everyday. Click here to read a press release on Keith O'Neil's involvement in NAMIWalks NYS.

NAMIWalks NYS will help us meet the growing requests we receive for our Signature Programs such as Family-to-Family, Peer-to-Peer, In Our Own Voice and Ending the Silence, all of which we offer at no cost to the public. Please help us meet the demands for these unique programs by supporting NAMIWalks NYS.

NAMIWalks New York State
Saturday September 24th, Jennings Landing Albany

Click here   to visit our  NAMIWalks New York State Page.
  • Start a team or join an existing team.
  • Become a virtual walker if you can't make it to the Capital Region on September 24th.
  • Donate to the NAMIWalks NYS-Your support is crucial to NAMI-NYS's ability to continue meeting the demand for NAMI programming from communities throughout New York State.
NAMI-NYS Board Members Explain
Why I Walk

Click here to learn about sponsorship opportunities


Click here 
to watch a short video providing tips on how to be a successful team captain.

Save the Dates
Click here to register for the 2016 NAMI-NYS Education Conference taking place November 11-13 at the Desmond Hotel and Conference Center in Albany.

September 7 -NAMI of Central Suffolk invites you to their monthly Speaker Series at Mather Hospital Port Jefferson; Conference Rooms 1/2 at 7:30 p.m. This meeting will be on Special Needs Trusts and Estate Planning and feature   Eric Cherches , a Port Jefferson attorney who focuses estate planning, trust and estate administration, and civil and commercial litigation. Hope you can join us!
September 8 -NAMI Buffalo welcomes NYS Senator Robert Ortt, Chair of the Mental Health and Developmental Disabilities Committee to present an update on mental health legislation. St Paul's Evangelical Lutheran Church, 4007 Main St (near Eggert Rd) in Amherst. The meeting will be in the 2 nd   floor auditorium (main entrance at back of church) and will begin at 7pm with a coffee social and Senator Ortt is scheduled to speak at 7:30pm. 

September 13- Brain & Behavior Research Foundation presents; Meet the Scientist:  Living Well with ADHD: Scientific Guideposts to Improved Outcomes, presented by
Francisco Xavier Castellanos, MD, Brooke and Daniel Neidich Professor of Child and Adolescent Psychiatry, Department of Child and Adolescent Psychiatry, Professor, Department of
Neuroscience and Physiology, Professor, Department of Radiology, Dir Rsch Green Cohen Inst Prevent Sci, New York University Child Study Center. Register now:

September 14- NAMI Westchester presentation on HOLISTIC RECOVERY 7:30 to 9:00 pm at St.   Vincent's Hospital Conference Center, Harrison NY.  For more information and to register go to   
September 22-
Capital District Psychiatric Center Family Services presents The Power of Laughter. Thursday at 5:30 pm - 7:30 pm in the CDPC Family Resource Center. As usual, there will be time for Questions and Answers as well as support services after the presentation. For more information or to register contact: Frank Greco, Director of Family Services (518) 549-6816  

October 7 -NAMI Rensselaer County will hold their 3rd Annual Recognition Dinner & Consumer Art Show. This year's honoree is Philip C. Nasca, PhD, Dean of SUNY School of Public Health. The event will take place from 6:30-9:00pm at Moscatiello's Italian Family Restaurant, 99 N. Greenbush Road (Rt. 4), Troy, NY
October 15The American Foundation For Suicide Prevention presents Out Of The Darkness Walk 10am, FDR Park in Yorktown.  Harbor Island Park in Mamaroneck.  They need volunteers or for more information contact Maria Idoni (914) 610-9156 or
OCTOBER 18 - Brain & Behavior Research Foundation presents; Meet the Scientist: Schizophrenia, presented by Herbert Y. Meltzer, MD, Professor of Psychiatry and Behavioral Sciences and of Physiology, Professor, Department of Neuroscience and Physiology Northwestern University Feinberg School of Medicine. Register now:
October 19- NAMI Westchester 2 nd    Annual Educational Conference -Lets Talk...The Road Ahead.  This is an educational opportunity for parents, students and educators to receive information on how to prepare for life after high school.    Key note speaker:    Kevin Hines, author of Cracked Not Broken.  Event will be held at Westchester Community College from 4 to 7 pm (6-7 pm optional workshops) For more information and to register go to

November 1-4- The Association of  Community Living Agencies in Mental Health (ACLAIMH) will host its 37th Annual Conference - Housing is Healthcare (Open to All) - on Tuesday, November 1st-Friday, November 4th at The Sagamore Resort in Bolton Landing, NY. There will be many sessions that provide social work continuing education credits.  Association of Community Living Agencies in Mental Health, Inc., (ACLAIMH), SW CPE is recognized by the New York Education Department's State Board for Social Work as an approved provider of continuing education for licensed social workers. 
Click here for more information.
November 3 - NAMI Staten Island will be holding their 26 th Annual Awards Celebration at Li Greci's restaurant beginning at 6pm.  The Honorees are:
Deborah Bostwick OTR, MPS: Program Supervisor, Anna Erica CDT & Clinic Richmond University Medical Center
Kenneth Cybulska:  NAMI Connections facilitator & NAMI In Our Own Voice presenter
Danielle Douglas:  Detective Specialist, NYPD Patrol Borough S.I. Community Affairs 122 Precinct
David Hughes:  NAMI Connections facilitator & NAMI Peer -To- Peer mentor

NOVEMBER 8 - Brain & Behavior Research Foundation presents; Meet the Scientist: Could We Someday Prevent Schizophrenia Like We Prevent Cleft Palate? Presented by Robert R. Freedman, MD, Professor and Chairman, Department of Psychiatry, University of Colorado School of Medicine. Register now:
NOVEMBER 11-13-2016 NAMI-NYS Education Conference-
New Horizons in Recovery: Breakthroughs in Research and Treatment. The Desmond Hotel, Albany. More details coming soon!
DECEMBER 13- Brain & Behavior Research Foundation presents; Meet the Scientist:  Neuroinflammatory Hypotheses of Depression, presented byYvette I. Sheline, MD.
 Register now: 
Signature Programs
NAMI Rensselaer County is adding a second location for their Family Support Group.  

Here's the new info:

1st Wednesday of every month
     6:30--8:00 pm
     SUNY School of Public Health
     1 University Place
     Rensselaer, NY

3rd Wednesday of every month:
     First United Methodist Church
     1 Gilligan Road
      East Greenbush, NY

Anyone who needs information can call 518-588-6949

September 6- NAMI Rochester begins their Peer-to-Peer class which will run through 11/15 (with no class on 10/25) from 6:30 pm - 8:30 pm at the NAMI Rochester office, 320 Goodman St N # 102, Rochester. For more information or to register, please call Beth Winslow-D'Amico at 585-423-1593 or email at

September 7- NAMI Rochester begins the first of their two fall Family-to-Family classes which will run through 11/30 (with no class on 11/23), 6:30 pm - 9:00 pm at the NAMI Rochester office, 320 Goodman St N # 102, Rochester. For more information or to register, please call Beth Winslow-D'Amico at 585-423-1593 or email at
September 8- NAMI Rochester begins the second of their two fall Family-to-Family classes which will run through 12/1 with no class on 11/24), 6:30 pm - 9:00 pm at the NAMI Rochester office, 320 Goodman St N # 102, Rochester. For more information or to register, please call Beth Winslow-D'Amico at 585-423-1593or email at

September 8-NAMI Queens Nassau presents Family-to-Family classes September 8-December 1st at Congregational At Shelter Rock, 18 Shelter Rock Road Manhasset, NY 11030 and the classes will take place from 6:30-9:00. 
To register email  or (516) 326-0797 or (718) 347-7284

September 10-NAMI Queens/Nassau begins the next Family-to-Family course at the Greater Allen A.M.E. Cathedral of New York, 110-31 Merrick Blvd, Jamaica, NY 11433. The courses will be held on Saturdays from 1:30-4pm. To register email or (516) 326-0797 or (718) 347-7284. Click here for more information..

September 15-NAMI Huntington will offer the Family-to-Family course at the Bridgehampton National Bank Community Center, 2200 Montauk Highway, Bridgehampton, NY from 6:30-9:00 PM C all: Ellen (631) 728-3082 or Carole (516) 524-0515 to register.
September 24- NAMI Rochester begins their NAMI Basics class which will run through 10/29 from 10am-12:30pm at the NAMI Rochester office, 320 Goodman St N # 102, Rochester. For more information or to register, please call Beth Winslow-D'Amico at 585-423-1593or email at

September 26-NAMI Queens Nassau presents Family to Family classes at North Shore Zucker Hillside Hospital Ambulatory Care Pavilion, room 1237. 263rd St. and 74 Ave. Glen Oaks, NY 11004. Classes will be from 7-9:30pm. To register email or (516) 326-0797 or (718) 347-7284

September 19-NAMI Cayuga County presents Family to Family classes at Auburn Hospital, 17 Lansing Street Auburn, NY 2nd Floor Assembly Room. Classes will be from 6-8:30pm. Please contact to register.

September TBD- NAMI Westchester will be starting a Family-to-Family class in Westchester, dates and location are to be determined. To enroll call Sharon McCarthy at 914-592-5458 or email her at

October 1-NAMI Rockland will offer the NAMI Family to Family at Rockland Psychiatric Center  140 Old Orangeburg Road, Bldg #57, 1st Floor classroom Orangeburg, NY  10962 from  9:30 am - 12:00 noon Teachers:  Chris Vanasse & Marie Wood-Smith. For more information and to register please call  (845) 359-8785
October 6- NAMI Rockland will offer the NAMI Basics at St. Dominic's Home / Home and Community Based Waiver Program located at  500 Western Highway Blauvelt, NY  10913 from   6:30pm to 9:00 pm Teachers:  Anne Arias & Rita Strumph. For more information and to register please call
(845) 359-8785

October 7-9- NAMI Family-to-Family training to become a Teacher.  NAMI-NYS.  Contact your local affiliate.
To have your events and Signature Programs listed in the E-Newsletter contact Alicia Burns at

NAMI-NYS | 99 Pine Street Suite 302| Albany, New York 12207 | (518) 462-2000