September 16th, 2016
In This Issue
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As we bring you this week's edition of the NAMI-NYS E-Newsletter, we are just a week away from our inaugural NAMIWalks NYS. Be sure to sign up or donate today and help support NAMI-NYS in our mission to deliver support and education.

If you are reading our E-Newsletter, we are sure that NAMI-NYS has helped you. NAMI-NYS has improved the lives of individuals and families impacted by mental illness by:

-Being a national leader in offering NAMI Signature Programs at no cost to the public.


-Organizing an annual Education Conference featuring those on the forefront of research and treatment and providing scholarships to ensure as many people can attend as possible.


-Finding new ways of communicating psychiatric information such as our weekly E-Newsletter and monthly television program.


-Projecting a powerful advocacy voice striving to improve the delivery of mental health services and improve the lives of caregivers.


NAMI-NYS has helped you. Please help us and support NAMIWalks NYS by  clicking here

As always, we want to know about the work you are doing. Please email with details and pictures about your work. This way we can feature it in the E-News and print Newsletter. Showcasing your work will allow others to learn from you and that's the best way we can grow together as an organization. 

Hope Starts With You!
NAMI-NYS Details Engagement Activities at 
2016 NAMI-NYS Education Conference
During NAMI Advocacy Call

On August 25th, NAMI held their monthly national Advocacy Call, the topic for the call was NAMI's work to increase engagement.  NAMI defines "engagement" as the strengths-based process through which individuals with mental health conditions form a healing connection with people that support their recovery and wellness within the context of family, culture and community.
As an organization of individuals with mental health conditions and their families, NAMI knows that the U.S. system of mental health care is failing to engage many people who seek help. The facts say it all: many people who seek mental health care drop out. 70% that drop out do so after their first or second visit

As part of the call, NAMI-NYS Public Engagement Coordinator Matthew Shapiro was asked to detail how engagement issues will be presented at our 2016 NAMI-NYS Education Conference - New Horizons in Recovery: Breakthroughs in Research and Treatment.  

The call also detailed the new NAMI report "Engagement: A New Standard in Mental Health Care."

Click  HERE  to listen to the call recording. Click here to read the NAMI Engagement Report.

The Friday evening Featured Session at the  2016 NAMI-NYS Education Conference  will be  New Horizons in Effective Engagement.  The session will discuss how to improve engagement in communities that have traditionally been hesitant to participate in mental health care. NAMI-NYS is honored to welcome Oscar Jimenez-Solomon, MPH, Research Coordinator at the Center of Excellence for Cultural Competence, New York State Psychiatric Institute, Columbia University (who is featured in the NAMI Engagement Report) and Elise Banks, MS, LPC, Miss International 2015 and a NAMI Ambassador, to present during this session. 

NAMI-NYS's Matthew Shapiro to be a Featured Presenter on September 22nd Advocacy Call

The next NAMI National Advocacy call will be taking place on Thursday, September 22nd from 4-5pm est. The call will be focused on voter registration and turnout. NAMI-NYS's Matthew Shapiro will be featured to discuss our efforts to encourage election participation. Here is the announcement from NAMI including the call-in information. Our members and readers are encouraged to join the call:

Will your members be there when America goes to the polls this fall?  Elected officials make key decisions that impact people with mental health conditions and their families, yet voter turnout among people with disabilities is 6% lower than the general electorate. Join the next NAMI Advocacy Network call for a discussion of nonpartisan voter turnout strategies. Learn about National Voter Registration Day.  We are pleased to feature Julian Johannesen, Director of Research and Training at NonProfit VOTE and Matthew Shapiro, Public Engagement Coordinator for NAMI New York State.   
These monthly calls are a forum for NAMI advocates to skill up on advocacy issues and strategies.   If you have questions or you'd like to share what your NAMI State Organization/Affiliate is doing on voter registration and getting out the vote, please email Dania Douglas: .

Conference call:  888-858-6021 
Access code: 739264#

Dr. Elisa English to Present at 2016 NAMI-NYS
Education Conference

The NAMI-NYS Education Conference Committee is excited to announce that  Elisa English, PhD, LCSW-R has been added to the list of featured speakers for our 2016 Education Conference- New Horizons in Recovery: Breakthroughs in Research and Treatment

Dr. English is Co-Founder/CMO for PD Consulting and Clinical Services, a midsize behavioral health organization and Dr. English serves as principal investigator for SAMHSA TCE-HIV High Risk Population Targeted Capacity Expansion grant and she manages the Bureau of Justice/Dept of Justice Second Chance Act grant. Her advocacy, advice and work on stigma reduction and behavioral health awareness has been featured in numerous media venues including CNN, UPN9, FOX5, BET, Black Enterprise, Bergen Record and Bloomberg News.

Dr. English will be participating in the session The Importance of Recognizing and Addressing Trauma, along with Dr. Joseph Benamati of the Sanctuary Institute and Diane Cameron, author of Never Leave Your Dead. This session is scheduled to take place on Friday, November 11th from 12:45-2:15.

Click here to register for the conference.   

NAMI-NYS Participates in Community Block Party

On Saturday September 10 th,   Heide Garner and Christine Rickeman of NAMI NYS attended the New Jerusalem Home of the Saved Church 13th Annual Community Block Party in Albany. The event provided a great day of information and allowed NAMI-NYS to raise awareness about our programs and services and to stomp out the stigma of mental illness. NAMI-NYS is grateful for this opportunity to further integrate ourselves in the community and we're excited several of the participants will be a part of NAMIWalks NYS.

NAMI Queens/Nassau President Janet Susin Pens 
Op-Ed for the Need to Incorporate 
Mental Health Education in Schools

Readers of the NAMI-NYS E-Newsletter have been kept up to date with the advocacy efforts to incorporate mental health into schools' existing health classes. Recently, NAMI Queens/Nassau President Janet Susin had an opinion letter published by Newsday on this issue. In the letter Janet states:

"Sex education is already taught in schools. In fact students cannot graduate without knowing how to do breast or testicular self-examinations.  But teaching about mental disorders such as schizophrenia, bipolar disorder, depression and obsessive-compulsive disorder is neglected in our schools - despite the fact that mental illness can dramatically affect the ability of so many of our young people to succeed in school and life."

Click here to read the full letter.

NAMI Mid-Hudson Continues to Raise Awareness at
Dutchess County Community College
NAMI Mid-Hudson, with the collaboration of the Dutchess County Community College Counseling Services, held an event to bring mental wellness onto campus. 
The affiliate provided information on NAMI, suicide prevention and county resources as well as several PSA's. Their Stigma Free banner was displayed and they encouraged students to make paper airplanes and fly them into the circle to signify the more than 1000 college students that lose their lives to suicide each year across the country. 
NAMI Mid-Hudson will be continuing to have mental health events throughout the school year and are working on a photo exhibition: "Changing the Face on Mental Illness."

The 2016 NAMI-NYS Education Conference will once again feature a Young Adult track. Click here to learn more details.

NAMI Rochester Participates in the 1st Annual 
Scotty B. Overdose Awareness Day 

Andrea Moracco and NAMI Rochester Special Events Coordinator Kristina Mossgraber
Much like NAMI, S.O.A.R.S, Inc (Substance Overdose Awareness Recovery Services) was started by a few mothers that were seeking support for their families and to raise awareness for the disease of addiction.  NAMI Rochester was very grateful to be included in SOARS' first Overdose Awareness Day. It was a wonderful afternoon that celebrated recovery, partnership and helped break down the stigma associated with chemical abuse disorders.  Hundreds of people enjoyed food, music, community resource tables and remarks from community leaders and individuals living in recovery.  NAMI Rochester looks forward to working with S.O.A.R.S and wishes them much success!

Time Magazine Features the Collaboration of NAMI and The Jed Foundation: College Mental Health on New  Resource For College Students

At the end of August, NAMI in partnership with The Jed Foundation (JED), released "Starting the Conversation: College and Your Mental Health," a guide to help students and parents talk about mental health. Adolescents and young adults tend to start to develop mental health disorders between the ages of 15-24, at a time where the stressors of school can be a major impact. Often, people experience first psychotic breaks while away at college and many colleges are not equipped to handle psychiatric emergencies and offer proper support. TIME magazine recently featured an article about this problem and detailed how the guide can be useful to college students, as well as friends and family members who are concerned of their mental health. 

Click here to read about the guide on the NAMI website.
Click here to read the TIME article.
NAMI Celebrates Wellness Week

National Wellness Week is held during the third week of September, and is meant to influence individuals to practice the 'eight dimensions of wellness' into their everday lives. This article features a link from SAMHSA on a broader explanation on these dimensions as well as some helpful wellness tips from NAMI.

Click here to read more. 

NAMI Partners in Beacon Bike Ride

NAMI is proud to announce its partnership with the  Beacon Bike Ride , a series of day rides from Boston, Massachusetts to Miami, Florida aimed at raising mental health awareness. From September 16 through October 17, 2016, you can join the ride, which is a total distance of more than 2,000 miles. Anyone can sign up and begin in whatever location they choose along the primary East Coast route-it's up to you how far you want to travel!
Sept.19: Canton, CT to Latham, NY
Sept. 21: Saugerties, NY to Hamburg, NJ
Sept. 22: Hamburg, NJ to Doylestown, NJ
Sept. 24: Coatesville, PA to Towson, MD
Sept. 25: Towson, MD to Arlington, VA
Sept. 27: Prince William Forest Park, VA to Ashland, VA
Sept. 29: Ashland, VA to Williamsburg, VA
Oct. 2: Franklin, VA to Warrenton, NC
Oct. 3: Warrenton, NC to Morrisville, NC
Oct. 4: Morrisville, NC to Fayetteville, NC
Oct. 5: Fayetteville, NC to Aynor, SC
Check out the Beacon Bike Ride  here .

New York State News

State Office of Mental Health to pay psychiatrists' student loans in exchange for service

The New York State Office of Mental Health is planning to reimburse psychiatrists and those studying to be psychiatrists up to $150,000 for their student loans, according to this article by the Auburn Pub. With the gradual decline of physicians in the field of psychiatry, this reimbursement can serve as a motive to bring more healthcare professionals into this field.  

Click here to read more.

OMH Requests Recipient and Family Input Needed for Medicaid Managed Care Consumer Outreach and Education

The New York State Office of Mental Health discusses Medicaid's new changes and initiatives for behavioral health services. For those under Medicaid who do not feel comfortable with the changes, there are helpful ways listed in this article to inform and educate oneself on Medicaid's services. For those looking to be more involved with being the educator and advocating for others, there is a registration link located in the article for a meeting on October 5, 2016 to become more involved.

Click here to register. 

Opinion Letter in Daily News States More Supported Housing Needed for People with Serious Mental Illness

Stephen Eide of Manhattan Institute , wrote an Op-Ed in the New York Daily News arguing that supported housing intended for people with the most serious forms of mental illness are no longer going to those with the most debilitating forms of psychiatric disorders.   He states, " The city's job is to connect vulnerable populations with the programs that serve them best, and supportive housing has proven to be most valuable in benefiting homeless people suffering from serious mental illness. The mission creep of recent years has siphoned resources away from people with both the deepest need and most to gain."

Click here to read the full article.

National News
Senate Takes Step Toward Bipartisan 
Mental Health Deal

The Hill reviews the Senate's mental health bill. Many mental health organizations including NAMI have met with senators to discuss this bipartisan deal. The mental health bill is said to improve mental health programs and to create ways to make these programs more affordable.

Click here to read more.

The troubling reason it's so hard to find a psychiatrist in the United States

In addition to the article by the Auburn Pub concerning the decline of psychiatrists, the Washington Post also addresses this trend and its significance on Americans throughout the country. This decline is due to two main factors: reliance on primary care physicians and lack of acceptance of health insurance. 

Click here to read more. 

NIMH Updates

Since there was no edition of the NAMI-NYS E-Newsletter last week, this week's edition features two NIMH Updates.

Click here to read the September 1st Update.
Click here to read the September 15th Update.

Recruitment Begins for Landmark Study 
of Adolescent Brain Development
Recruitment for the  Adolescent Brain Cognitive Development (ABCD) study, the largest long-term study of brain development and child health in the United States, began this week. The landmark study by the National Institutes of Health will follow the biological and behavioral development of more than 10,000 children beginning at ages 9-10 through adolescence into early adulthood. Recruitment will be done over a two-year period through partnerships with public and private schools near research sites across the country as well as through twin registries.

Click here to learn more. 

Join A Study of Schizophrenia and the Brain: 
A Six-month Inpatient Evaluation Study 

Have you been diagnosed with schizophrenia or schizoaffective disorder? Are you between 18 and 55 years of age? Would you be willing to live at the Clinical Center on the NIH campus for six months? If so, you may be eligible to participate in a study designed to understand the neurological basis of schizophrenia and to determine which symptoms are related to the illness and which are related to the medications used to treat the illness.

This six-month study has three phases: In the first phase you will participate in many comprehensive medical, neurological, cognitive, and psychiatric evaluations. In the second phase, the research phase, you will be tapered off of your medication for about 4 weeks. In the time that your medication is discontinued, research procedures will allow investigators to distinguish the effects of the illness on the brain without the interference of the medication's effects. In the third phase, you will have the opportunity to stabilize using the treatment selected to be most helpful to you.
To find out if you qualify,  email NIMH   or call 1-301-435-8970 (1-888-674-6464) [TTY: 1-866-411-1010].
Protocol Number:  89-M-0160 


NAMIWalks NYS is a Week Away. 

Click here to join NAMI-NYS and Keith O'Neil, former NFL player and leading Mental Health Advocate, at NAMIWalks NYS.

Keith was the special teams captain of the Super Bowl Champion 2007 Indianapolis Colts and also played for the New York Giants and Dallas Cowboys. During his NFL career he began to notice his symptoms of bipolar disorder; following his retirement his disease become worse.  Keith and his family live in Buffalo, NY and NAMI helped his wife and family understand his disease by providing the type of education and support we deliver to thousands of people living with a mental illness and their families across New York State everyday.

Donate to NAMIWalks NYS & Help Us Provide 
Education and Support

Click here to make a donation to NAMIWalks NYS and help us meet the growing requests we receive for our Signature Programs such as Family-to-Family, Peer-to-Peer, In Our Own Voice and Ending the Silence, all of which we offer at no cost to the public. Please help us meet the demands for these unique programs by supporting NAMIWalks NYS. 

NAMIWalks New York State
Saturday September 24th, Jennings Landing Albany

Click here   to visit our  NAMIWalks New York State Page.
  • Start a team or join an existing team.
  • Become a virtual walker if you can't make it to the Capital Region on September 24th.
  • Donate to the NAMIWalks NYS-Your support is crucial to NAMI-NYS's ability to continue meeting the demand for NAMI programming from communities throughout New York State.
Matthew Shapiro Explanins
Why I Walk

Click here to watch a video of our Public Engagement Coordinator, Matthew Shapiro explaining why he is walking. Click here to visit Matthew's Walks page and learn more of Matthew's story and make a donation.

Click here to learn about sponsorship opportunities


Click here 
to watch a short video providing tips on how to be a successful team captain.

Save the Dates
Click here to register for the 2016 NAMI-NYS Education Conference taking place November 11-13 at the Desmond Hotel and Conference Center in Albany.

September 19-The Family Support Group at the CDPC Schenectady County Support Center welcomes NAMI-NYS Public Engagement Coordinator Matthew Shapiro to detail NAMI-NYS programs and services. The program will take place from 5-7pm at 426 Frankling St. Schenectady. For more information call 518-374-3403 or Frank Greco at 518-549-6816.

September 22-
Capital District Psychiatric Center Family Services presents The Power of Laughter. Thursday at 5:30 pm - 7:30 pm in the CDPC Family Resource Center. As usual, there will be time for Questions and Answers as well as support services after the presentation. For more information or to register contact: Frank Greco, Director of Family Services (518) 549-6816  

September 28-NAMI Rockland will be holding their Annual Awards Dinner. This will celebrate the 35th Anniversary
of NAMI Rockland and Rena Finkelstein's 30 years of service. The event will take place at The View on The Hudson in Piermont. Click here for more info. 

October 6th- The Capital District Psychiatric Center Family Services presents "Stress, The Good, The Bad and Getting Rid of the Ugly" with Karen Laing, Health Literacy for All, Inc. The program will be held at the CDPC Family Resource Center, located at 75 New Scotland Ave. in Albany, from 5-7:30. For more information or to register contact: Frank Greco, Director of Family Services at 518-549-6816.

October 7 -NAMI Rensselaer County will hold their 3rd Annual Recognition Dinner & Consumer Art Show. This year's honoree is Philip C. Nasca, PhD, Dean of SUNY School of Public Health. The event will take place from 6:30-9:00pm at Moscatiello's Italian Family Restaurant, 99 N. Greenbush Road (Rt. 4), Troy, NY. For more information and to register call 518-588-6949.

October 15th-NAMI Westchester welcomes NAMI-NYS Public Engagement Coordinator, Matthew Shapiro to present, "Moving Forward, Next Steps in Mental Health Advocacy in New York State." The presentation at St. Vincent's Hospital 275 North Street in Harrison, beginning at 1pm. For more information email

October 15 The American Foundation For Suicide Prevention presents Out Of The Darkness Walk 10am, FDR Park in Yorktown.  Harbor Island Park in Mamaroneck.  They need volunteers or for more information contact Maria Idoni (914) 610-9156 or
OCTOBER 18 - Brain & Behavior Research Foundation presents; Meet the Scientist: Schizophrenia, presented by Herbert Y. Meltzer, MD, Professor of Psychiatry and Behavioral Sciences and of Physiology, Professor, Department of Neuroscience and Physiology Northwestern University Feinberg School of Medicine. Register now:
October 19- NAMI Westchester 2 nd    Annual Educational Conference -Lets Talk...The Road Ahead.  This is an educational opportunity for parents, students and educators to receive information on how to prepare for life after high school.    Key note speaker:    Kevin Hines, author of Cracked Not Broken.  Event will be held at Westchester Community College from 4 to 7 pm (6-7 pm optional workshops) For more information and to register go to

November 1-4- The Association of  Community Living Agencies in Mental Health (ACLAIMH) will host its 37th Annual Conference - Housing is Healthcare (Open to All) - on Tuesday, November 1st-Friday, November 4th at The Sagamore Resort in Bolton Landing, NY. There will be many sessions that provide social work continuing education credits.  Association of Community Living Agencies in Mental Health, Inc., (ACLAIMH), SW CPE is recognized by the New York Education Department's State Board for Social Work as an approved provider of continuing education for licensed social workers. 
Click here for more information.
November 3 - NAMI Staten Island will be holding their 26 th Annual Awards Celebration at Li Greci's restaurant beginning at 6pm.  The Honorees are:
Deborah Bostwick OTR, MPS: Program Supervisor, Anna Erica CDT & Clinic Richmond University Medical Center
Kenneth Cybulska:  NAMI Connections facilitator & NAMI In Our Own Voice presenter
Danielle Douglas:  Detective Specialist, NYPD Patrol Borough S.I. Community Affairs 122 Precinct
David Hughes:  NAMI Connections facilitator & NAMI Peer -To- Peer mentor

NOVEMBER 8 - Brain & Behavior Research Foundation presents; Meet the Scientist: Could We Someday Prevent Schizophrenia Like We Prevent Cleft Palate? Presented by Robert R. Freedman, MD, Professor and Chairman, Department of Psychiatry, University of Colorado School of Medicine. Register now:
NOVEMBER 11-13-2016 NAMI-NYS Education Conference-
New Horizons in Recovery: Breakthroughs in Research and Treatment. The Desmond Hotel, Albany. More details coming soon!
DECEMBER 13- Brain & Behavior Research Foundation presents; Meet the Scientist:  Neuroinflammatory Hypotheses of Depression, presented byYvette I. Sheline, MD.
 Register now: 
Signature Programs
September 15-NAMI Huntington will offer the Family-to-Family course at the Bridgehampton National Bank Community Center, 2200 Montauk Highway, Bridgehampton, NY from 6:30-9:00 PM C all: Ellen (631) 728-3082 or Carole (516) 524-0515 to register.
September 24- NAMI Rochester begins their NAMI Basics class which will run through 10/29 from 10am-12:30pm at the NAMI Rochester office, 320 Goodman St N # 102, Rochester. For more information or to register, please call Beth Winslow-D'Amico at 585-423-1593or email at

September 20 -The Saratoga Springs and Schenectady NAMI affiliates will be offering the NAMI Family to Family Course for family and friends of adult persons with mental illness.  The course will be taught every Tuesday from 6:15 pm to 8:45 pm at Four Winds Hospital,  30 Crescent Avenue at Rt 9 in Saratoga Springs, NY 12866  
Contact:    Dotte at 
or call 429-5047

September 26- NAMI Rensselaer County will be holding a Family to Family 12 week Education Class at the First United Methodist Church, 1 Gilligan Rd East Greenbush, NY 12061, from 6:30-8:30pm. For more information or to register please contact:
Christine Robinson-Cooley or  518-378-5864
Mary Beth Nelligan
Christine Rickeman at NAMI NYS 518-462-2000

September 26-NAMI Queens Nassau presents Family to Family classes at North Shore Zucker Hillside Hospital Ambulatory Care Pavilion, room 1237. 263rd St. and 74 Ave. Glen Oaks, NY 11004. Classes will be from 7-9:30pm. To register email or (516) 326-0797 or (718) 347-7284

September 19-NAMI Cayuga County presents Family to Family classes at Auburn Hospital, 17 Lansing Street Auburn, NY 2nd Floor Assembly Room. Classes will be from 6-8:30pm. Please contact to register.

September TBD- NAMI Westchester will be starting a Family-to-Family class in Westchester, dates and location are to be determined. To enroll call Sharon McCarthy at 914-592-5458 or email her at

October 1-NAMI Rockland will offer the NAMI Family to Family at Rockland Psychiatric Center  140 Old Orangeburg Road, Bldg #57, 1st Floor classroom Orangeburg, NY  10962 from  9:30 am - 12:00 noon Teachers:  Chris Vanasse & Marie Wood-Smith. For more information and to register please call  (845) 359-8785
October 6- NAMI Rockland will offer the NAMI Basics at St. Dominic's Home / Home and Community Based Waiver Program located at  500 Western Highway Blauvelt, NY  10913 from   6:30pm to 9:00 pm Teachers:  Anne Arias & Rita Strumph. For more information and to register please call
(845) 359-8785

October 6- NAMI Huntington will be offering the NAMI Basics Education Program at Northwell Health Dolan Family Health Center,  284 Pulaski Rd., Greenlawn, NY 11740.  The course will run through November 17th from 5:30-8 pm

Advance Registration Required - Please contact:
Kellie Gehrke (631) 223-5028 or
Pat Hillenbrand (631) 370-1662 or

October 7-9 - NAMI Family-to-Family training to become a Teacher.  NAMI-NYS.  Contact your local affiliate.
To have your events and Signature Programs listed in the E-Newsletter contact Alicia Burns at

NAMI-NYS | 99 Pine Street Suite 302| Albany, New York 12207 | (518) 462-2000