September 28th, 2018

In This Issue
Quote of the Week:

"Talk, talk, talk; don't suffer in silence, don't be ashamed-save a life."
-Mauro Ranallo, Showtime Boxing Announcer and 2018 NAMI-NYS Leader of Mental Health Awareness Honoree

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First and foremost we want to remind everyone once again that tomorrow is our NAMIWalksNYS and we hope many of you can join us for what is sure to be a fun-filled and inspiring day, full of music and family activities. If you are unable to join us, you can still donate to the walk and support NAMI-NYS. 

This week's E-News provides more information on how our 2018 Leaders of Mental Health Awareness are telling their stories and projecting their voices in the fight against stigma.  In this issue you will also find NAMI-NYS featured on a local radio program and lending our voice to help Arkansas fight mental health budget cuts. We also feature how our local affiliates are making an impact in their communities .

This edition also provides details on exciting research on detecting early warning signs of potential psychosis, a look at suicide in males, Dr. Jeffrey Lieberman discussing the need to regulate ketamine treatment, and how to #Vote4MentalHealth

Remember, we want to hear from you and the work your affiliate is doing. Please email stories to and send save the date notices to .
Sports Illustrated Reports on How 2018 NAMI-NYS 
Leader of Mental Health Awareness Honoree 
Mauro Ranallo Aims to Reach an Important Audience with a Documentary on His Bipolar Disorder

Sports Illustrated reported on the release of the film Bipolar Rock N Roller, the documentary on 2018 NAMI-NYS Leader of Mental Health Awareness Honoree and Showtime Boxing announcer  Mauro Ranallo.  The article explains how Ranallo, known for his energetic broadcasting on popular broadcasts such as the historic Mayweather-Pacquiao fight, has privately been suffering from mental illness since young adulthood and how "everything that gave him his career-his brain, the manic energy, his hyperkinetic style-was also what would threaten all his progress every time he had an episode."

The article explains how  the timing of the film is important, noting that "the sports world has never been more attuned to the need for increased mental health awareness than in recent months." The article goes on to state how "the broadcaster embodies this movement-and this moment-and his documentary wades deeper into the issue, showing viewers what mental illness looks like."

Finally, the article details how Ranallo hopes to crush stigma about mental illness and encourage others to speak freely, continuing the recent trend of athletes speaking out about their own mental health. He urges people to "Talk, talk, talk; don't suffer in silence, don't be ashamed-save a life."

Click here to read the full article. 

2018 NAMI-NYS  Leader of Mental Health Awareness Honoree
Dr. Edward Hallowell Explains to the Guardian How
'Mental Illness Swam in my Genes: 
Why I was Born to be a Psychiatrist'

One of our other  Leaders of Mental Health Awareness honorees,  Dr. Edward Hallowell , renowned ADHD specialist and author of the book  Because I Come From A Crazy Family: The Making of a Psychiatrist, was recently interviewed by the Guardian to discuss the book and how his traumatic childhood and " growing up in a family where mental illness seemed to swim in the genes," inspired him to become a psychiatrist. 

Dr. Hallowell, explains, "I wanted to become a psychiatrist because I wanted to understand my people." The "selfish desire," he says, was always to save his family. "There was a drive to repair families, repair my own - though it was too late for that, of course...  my family were wonderful people; they were brilliant, funny, eccentric. I wanted to know what had happened to them."

Click here to read the full article. 

Join us in celebrating Mauro and Dr. Hallowell's courage in telling their stories and their commitment to raising mental health awareness and saving lives at the NAMI-NYS Honors Ceremony, which will be taking place Friday night, October 26th, as part of the 2018 NAMI-NYS Education Conference . Click here to register today. More information about our third honoree, Toni Lasicki, can be found in the New York News Section. 

NAMI-NYS Appears on Hudson Mohawk Magazine
Radio Show

On Tuesday, September 25th, NAMI-NYS's Tina Lee and Matthew Shapiro appeared on the Hudson Mohawk Magazine Radio show on WOOC, 105.3fm in the Capital Region, which is run by the Sanctuary for Independent Media. Tina and Matthew discussed the importance of Mental Health Awareness and the upcoming NAMIWalks NYS and Education Conference.  

Click here to listen to the program; once there, click on the Sept, 25th episode and NAMI-NYS is on the first segment right after the news headlines. 

NAMI-NYS Sends Advocacy Message to Help
Arkansas Fight Budget Cuts

The state of Arkansas is facing massive cuts in mental health spending. A massive rally at the Arkansas State Capitol featuring Patrick Kennedy took place on Thursday, September 27th. NAMI-NYS's Associate Director, Public Affairs, Matthew Shapiro was asked by the STARR Coalition to film an advocacy message to encourage people to attend the rally.

Click here to watch the video. 

NAMI Syracuse Holds Annual Harvest Hopela Event

NAMI Syracuse held their annual Harvest Hopela event on September 23rd at All Saints Parish Hall. As part of the event, Dr. Tarun Kumar (pictured above with Dr. Karen Winters-Schwartz, and affiliate president Marla Byrnes), who works at the Comprehensive Psychiatric Emergency  Program at St. Joseph's hospital in Syracuse, was presented with the NAMI 2018 Exemplary Psychiatrist Award.

Entertainment was provided by Grassanova and a good time was had by all.

NAMI Mid-Hudson Busy Raising Awareness 
in Their Community

NAMI Mid-Hudson has been busy educating and supporting both Dutchess and Ulster counties during the end of summer and the beginning of fall. On August 7th during a very hot summer night the affiliate participated in the National Night Out event, which promotes police-community partnerships and neighborhood camaraderie. During the event the affiliate's Program Coordinator Jo Ann Brown and Program Director Branden Gibson met with State Senator Sue Serino.

In September they participated in the Dover Day at Boyce Park and started the school year by giving an Ending the Silence at Wallkill High School in Ulster County. Lead presenter Jo Ann Brown and young adult presenter Allison Quinn (who will be speaking at the 2018 NAMI-NYS Education Conference) are pictured above with the school's prevention coordinator Sandi Hecht and Health Teacher Rory Boice.

OMH"s John Stenson Speaks to NAMI Huntington

Last week OMH's John Stenson met with the NAMI Huntington affiliate to provide an update on happenings at the office of consumer affairs and discuss family engagement.

NAMI Rensselaer presents In Our Own Voice at 
Capital District Psychiatric Center 

On September 26th NAMI Rensselaer's Kate Hewlett and Shane Schulz presented In Our Own Voice at Capital District Psychiatric Center.  
Addressing Male Suicide

In a recent NAMI blog, Matthew Boyle writes about male suicide. Men account for 70% of all suicides, but many men often stay silent and refrain from getting help. Boyle suggests this may be due to our society and the way we view masculinity, creating the gender stereotype that it is not "manly" to be emotional, or that it is a sign of weakness to ask for help. Boyle stresses the need to address and fix this problem, and gives some tips on how we may begin to do so. Among the suggestions are reaching out to men and checking in, reframe help-seeking as masculine, and use emotional regulation techniques.

Click here to read the full article.

The 2018 NAMI-NYS Education Conference will once again feature ZERO SUICIDE Sessions on Saturday, October 27th. Click here to learn more about the sessions. 

NAMI Encourages You to Pledge to #Vote4MentalHealth

As a mental health advocate, NAMI thanks you for raising your voice to tell policymakers how their decisions impact people with mental illness and their families. But before people become policymakers, they are candidates running for office.
#Vote4MentalHealth this November because the candidates you elect will make decisions that affect mental health services in your community.
Thousands of local, state and federal elections will take place across the country. The decision on who to vote for is yours, but NAMI is here to help you learn how to identify candidates who are mental health champions. Pledge to vote at NAMI's new #Vote4MentalHealth website

New York News
Assemblywoman Ellen Jaffe Visits Mental Health Housing 
Programs and Vows to Help Bring it Home

On September 25th, NYS Assemblywoman Ellen Jaffee who has been a constant advocate for mental health, visited Bring it Home NYS supporter Rockland Hospital Guild's CLUE 1 residence in Orangeburg and also met with staff from the Mental Health Association of Rockland County, Loeb House, St. Dominic's Home, and Association for Community Living to discuss the needs of the Bring It Home campaign.

Mental health housing programs will be featured throughout the 2018 NAMI-NYS Education Conference. Along with honoring Toni Lasicki for her work leading the Bring It Home campaign on Friday evening, there will also be a two-hour focus session on Saturday afternoon detailing mental health housing. Click here to view the full agenda and click here to register. 

Dr. Jeffrey Lieberman Interviewed on Need to Regulate Katamine Treatment

Dr. Jeffrey Lieberman, Chairman of the New York State Psychiatric Institute, was interviewed in a recent article about the need to regulate ketamine. As the article explains Kalypso Wellness Centers, along with many other pharmaceutical companies, spearhead a new phenomenon- the use of the drug Ketamine in treating depression and other mental disorders.

Unlike traditional antidepressants, Ketamine appears to block a receptor called NMDA. While this proposal may be able to benefit mental health patients who have not had success with other drugs, some clinicians have found a multitude of issues with the use of Ketamine. The treatments are not cheap- $450-500 per infusion- and are often given to anyone who can afford it. The clinics may stray from APA recommendations, failing to screen the patients, lacking evidence on specific treatments, and failing to have mental health professionals on staff.

Dr. Lieberman warns of the use of new treatments, and suggests that while there is no need to stop usage of Ketamine, treatment should be regulated. He explains how patients are "getting treatments they may not need or that don't work, or they're getting more than they needed," He adds that one of the biggest risks from the explosion in ketamine use is "people getting fleeced."

Click here to read more. 

HUD Housing in NYS Now Smoke Free

On July 30th smoking became prohibited at all federally-funded  Public Housing Authorities in New York State. The Center for Excellence for Health Systems Improvement for a Tobacco Free New York wants to make sure health and mental health providers are able to help their patients comply. The Center provides support and technical assistance to 10 regional health systems improvement grantee sites across the state. These grantees work directly with organizations to integrate tobacco cessation into primary care, behavioral health and substance use treatment settings to ensure that every tobacco user is screened, offered and receives timely tobacco dependence treatment, if desired.

Click here for more info

National News
Early Warning Sign of Psychosis Detected

A recent Medical Express article details the findings of a Yale-led study on new early warning signs of psychosis. Scientists studied fMRI images and measured hyperconnectivity patterns in order to determine biomarkers for schizophrenia. "The hope is that this biomarker can be used in second-stage screening after the identification of other risk factors for schizophrenia,," says Professor Tyrone Cannon. These findings may enable doctors to start early interventions for patients at risk of developing schizophrenia. Early intervention in psychosis patients has been linked to better outcomes for patients suffering from schizophrenia, and could be a breakthrough in the field.

Click here to read more. 

NAMI-NYS is thrilled to welcome back Dr. Lisa Dixon to present at the 2018 NAMI-NYS Education Conference. Among Dr. Dixon's many accomplishments is leading one of the two teams conducting NIMH's landmark Recovery After Initial Schizophrenic Episode (RAISE) study, which details the importance of the types of early interventions detailed in the article above. Dr. Dixon will be presenting on the importance of family engagement in recovery, especially in early engagement following initial symptoms, on Sunday October, 28th.

NPR Reports on How Parents Are Leery Of Schools Requiring 'Mental Health' Disclosures By Students

Following the Parkland school shooting, Florida passed a new law allowing schools to ask children registering for information about their mental health history. There is some debate about these questions. Some parents worry that these questions are arbitrary, and nothing will be done with them.

Others are concerned that they will fall into the wrong hands or be used against their child due to the stigma surrounding mental illness. This includes Alisa LaPolt, executive director of NAMI Florida who says, "In a perfect world, getting treatment for mental health challenges would be no different than getting medical treatment for a skin rash or a bad cold or a broken leg, but that's not the world we live in right now. There is stigma around mental illness and getting treatment for it."

However, many districts argue that this will help determine who needs mental health services so that treatment can be provided. The article also explains how counties have also enacted other reforms such as hiring 50 new mental health professionals and setting aside a "long overdue" $70 million through the school safety act.

Click here to read the full article. 

The 2018 NAMI-NYS Education Conference will once again feature a children's mental health track and there is still time for educators and school staff to apply to attend the track at no cost. Click here to learn about the track as well as the application. 


 NIH Provides 5 Action Steps for Someone in 
Emotional Pain

Recruitment Now Open for New TMS Study

Click here to read about a new study on transcranial magnetic stimulation (TMS). 

NIMH's Dr. Bruce Luber will be presenting on the above study at the 2018 NAMI-NYS Education Conference on Saturday, October 27th. 

Hope Starts With You!
NAMI Walks

At the 3rd Annual NAMIWalks-NYS
September 29th 2018
8:30 am Registration
10:00 am - 2:00 pm
Jennings Landing
1 Quay Street, Albany NY
Start or Join your team today!!!

Click here to sign up for NAMIWalk NYS and start your team today!

NAMIWalks NYS: Strong Body, Strong Mind 2018
NAMI NYS invites You to join the movement...

We also encourage you to post on your social media why you support NAMI-NYS and are participating in the walk. Send in your posts and we will feature the posts in our upcoming newsletter.
Start your walk team now  and join us to change attitudes and save lives!
Come Walk for Wellness on Saturday, September 29th, at Jennings Landing, Albany NY. This inspirational community event will have a full day of live music, informational tabling, and family friendly activities.
Healthy Minds = Healthy Communities

Save the Date

Click here for more information on the 2018 Education Conference.

OCTOBER 9 - The National Alliance on Mental Illness Champlain Valley will be sponsoring a free one day conference at Clinton Community College on October 9th titled, "Stand Up 2 Stigma." The conference will have a variety of workshops for peers, families, providers, and interested community members.
Our keynote speaker for the event is David Granirer, a counselor, stand-up comic, mental health keynote speaker, and author of The Happy Neurotic: How Fear and Angst Can Lead to Happiness and Success. He founded Stand Up For Mental Health, a program that teaches stand up comedy to people with mental illness or mental health issues as a way of building confidence and fighting public stigma. Additionally, the NYS Office Of Mental Health Commissioner, Mental Hygiene Legal Services and many other speakers will be joining us.
The event is expected to provide education & awareness around the effects of stigma, opportunities for reducing stigma, and a chance to become a proactive community member that supports mental health; like one supports cancer and diabetes.
Consider joining us! For those who may remember in 2014 we sponsored Keys to Recovery - 250 were in attendance creating one of the largest mental health conferences in our community. This time, we ask you to take a stand, be the hero, and Stand Up 2 Stigma.
We sincerely hope that you will be able to attend. Registration can be done by going to our website at and clicking the Stand Up 2 Stigma tab. When you sign up for the conference you will receive periodic updates. Feel free to forward this information to your friends, family, and colleagues.
Any questions regarding the conference can be addressed to

Join us as we celebrate NAMI-NYC Metro and those who are helping us Build Better Lives on Wednesday, October 10th at the Met West, 6:00-10:00 PM. 
Tickets/Tables are now available for The Seeds of Hope Annual Awards Gala.

OCTOBER 10-NAMI Syracuse Educational Conference: Stand Against Stigma: Changing Minds about Mental Illness
Rosamond Gifford Zoo, Syracuse, 8:45am-3:30pm
Earn 4.5 continuing education credits. Presenters: Dr. Malika Carter, CEO's Against Stigma Campaign; Sherie Ramsgard, DNA/Pharmacogenetic Testing; Dr. Christopher Brown, How to Integrate Mental Health Education & Awareness into School Districts; Dr. Julio Licinio, New genetic findings that show common genes for many disorders; Steven DiMarzo & Jennifer Crider, LGBTQ+ Concepts in Cultural Diversity. Call 315-487-2085 for brochure.

OCTOBER 16-NAMI Rochester presents the 17th Annual Jessica Henderson Memorial Event. This year's event will feature a special presentation: Voices of NAMI as well as a performance by Danielle Ponder and the Tomorrow People who will take attendees on a guided tour of advocacy, inspiration, and social justice through her words and music!
The event will take place from 5:30pm-9:30pm at the School of the Arts, 45 Prince Street Rochester with a silent auction in the lobby from 5:30-6:45pm. Pre-registration for this event is only $10 through October 9, 2018. $15 at the door, if seats available. To register visit or call NAMI Rochester at 585-423-1593, you can also click here for more info.

OCTOBER 16Capital District Psychiatric Center Family Services Presents: An Overview of NAMI - NYS Programs for Families by Tina Lee Community Education and Outreach Manager. Tuesday, October 16, 2018, 5:00 pm - 7:30 pm in the CDPC Family Resource Center 75 New Scotland Avenue Albany, NY 12208 (518) 549-6000.
For more information or to register contact: Frank Greco, Director of Family Services (518) 549-6816.

Signature Programs
  SEPTEMBER 27 -NAMI NYC Metro Peer to Peer. Thursdays, Sep. 27-Nov. 15, 2018 from 1:00pm-3:00pm at the NAMI NYC Metro Office, 505 8th Ave., Ste. 1103, New York, NY 10018. To register contact NAMI NYC Metro at (212)684-3264.

SEPTEMBER 29- NAMI Westchester Family-to-Family. Saturdays September 29 thru December 15 from 9:00am-11:30am at St. Vincents Hospital, Harrison, NY . To register contact / 914-592-5458.

OCTOBER 2-NAMI NYC Metro Peer to Peer. Tuesdays, Oct. 2-Nov. 20, 2018 from 6:00pm-8:00pm at the NAMI NYC Metro Office, 505 8th Ave., Ste. 1103, New York, NY 10018. To register contact NAMI NYC Metro at (212)684-3264.

OCTOBER 13- NAMI Westchester Peer to Peer. Saturdays- October 13th - December 15th from 9:00 a.m -11:30 a.m. at the NAMI Westchester Office, 100 Clearbrook Road, Elmsford, NY 10523. To register contact / 914-592-5458.

OCTOBER 17-NAMI-NYC Metro Family to Family. Wednesdays - Oct. 17-Jan. 16, 2019 from 6:00pm-8:30pm at the JAMES J. PETERS BRONX VA MEDICAL CENTER, 130 W. Kingsbridge Rd. @ Webb Ave., Rm. 1B-07, Bronx, NY 10468. To register contact NAMI NYC Metro at (212)684-3264.
Please contact your local affiliate program le aders for more information and how to enroll.

NAMI-NYS | 99 Pine Street Suite 105| Albany, New York 12207 | (518) 462-2000