NASDDDS Weekly news & updates

August 12, 2026 | Issue 25

 

NASDDDS Weekly news & updates note:

NASDDDS is pausing our regularly scheduled newsletter this week as we honor the life, legacy, and extraordinary contributions of our friend and fierce advocate, Perri Spencer. We are grateful for the lasting impact he made on our community and the many lives he touched. Our newsletter will return next week. Thank you for joining us in remembering and honoring Perri.


 


 

A Legacy of Wisdom and Heart: Honoring Perri Spencer 

Our community is deeply saddened by the passing of our friend and colleague, Perri Spencer, yet we are profoundly grateful for everything he gave us. When someone shares as generously of their time, wisdom, heart, and lived experience as Perri did, they leave an indelible mark on an organization such as NASDDDS. Perri was more than a national advocate and a member of The Link Center Steering Committee, he was a leader, a mentor, and a powerful teacher to us all. Through his authentic advocacy and his fierce passion to make life better for others, he taught our organization and many others what could be possible by better understanding people with diverse abilities and the rich contributions they bring. His voice embodied what true empathy and advocacy looks like, and we are forever changed by what he taught us. 


They ignored the thousand symphonies 


Playing in my head 


They only call me gifted 


And label me instead. 


Some people don't see my weaknesses 


Just see my strengths gleaming overhead 


All they see is gifted 


So they label me instead. 


Not knowing how I really feel 


Exhausted and half dead. 


They still just call me gifted 


And label me instead 


Some people don't see the real me- 


Just my smart head 


That's why they call me gifted and label me instead 


~ Perri Spencer 


Join us in striving to honor Perri not just to remember his words, but to live out his vision. Moving forward, we commit to listening harder, reaching deeper, and doing better by actively honoring, supporting, and centering people’s voices in every space we occupy. Let us carry his voice and passion into our daily work, making space for true understanding and fierce commitment.  

For accessible or alternate versions of this information, please email cmcgraw@nasddds.org.

 
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