NET CANCER AWARENESS ENEWSLETTER

 
 

CNETS provides awareness, education & support to NET cancer patients, families & caregivers.


www.cnets.ca


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IN THIS ISSUE

  1. Canada Recognizes NET Cancer Day
  2. NET Cancer Awareness Video
  3. Canada Lights Up Black & White
  4. INCA Campaign: Easily Missed
  5. Canadian NET Patient Stories
  6. Partnership on NET Infographics
  7. NET Virtual Education
  8. Support Contacts, Groups & Online Support
  9. 2025 National NET Patient Conference
  10. Named NET Research Grants
  11. 2024 Hoofing It Update
  12. 2024 NET Research Grant Competition
  13. Upcoming Webinar - NET Clinical Trial Finder

HEALTH CANADA RECOGNIZES NET CANCER DAY

Health Canada's Calendar of Health Promotion Days features health awareness days, weeks and months promoted by recognized health organizations or recognized in the professional health Community. Events marked with an asterisk (*) occur on the same day yearly.


World Neuroendocrine Cancer (NET) Day - November 10* has been added to the health promotion calendar!

CALENDAR OF HEALTH PROMOTION DAYS

NET CANCER AWARENESS VIDEO

CNETS NET Cancer Awareness Video premiered on November 10*, 2023. The video features inspirational NET patients from across Canada, sharing details of their long journey with neuroendocrine cancer in hopes of raising AWARENESS.


The critical messages in the video remain the same for November 10*, 2024. NETs are easily missed. Take a closer look at neuroendocrine cancer.

NET CANCER AWARENESS VIDEO

CANADA LIGHTS UP BLACK & WHITE (ZEBRA STRIPES) ON NET CANCER DAY

Get ready to stripe up the night on November 10th because, for the fifth year running, Canada is turning its iconic landmarks into a dazzling display of black and white zebra stripes!


This unique initiative not only lights up the skyline but also shines a spotlight on raising awareness of NET Cancer Day. By participating in this visual display, we collectively affirm our commitment to supporting research, education, improved diagnostics and treatments and advocacy efforts aimed at making a positive impact on the lives of individuals diagnosed with NET cancer.


HUGE THANKS TO THE 2024 PARTICIPATING LANDMARKS

LIST OF PARICIPATING LANDMARKS

2024 INCA CAMPAIGN

INCA’s 2024 NET Cancer Day theme is NETs are easily missed. Help us change this. The incidence of neuroendocrine tumours (NETs) is rising, and symptom awareness is key to earlier diagnosis and, ultimately, better outcomes.

CAMPAIGN MESSAGES


11 social tiles with key campaign messages in 11 languages and formats for different social media – you can download those in your language and use them on your social media activity.

DOWNLOAD AND SHARE

CANADIAN NET PATIENT STORIES

Inspirational Canadian patients share details of their long journey with Neuroendocrine cancer. From initial symptoms to the time it took to receive a proper NET cancer diagnosis, and the different treatment options to improve their quality of life. 

NET PATIENT STORIES

PARTNERSHIP WITH PATIENT GROUPS ON NET INFOGRAPHICS

CNETS has partnered with:

to share NET infographics across our networks.

NET INFOGRAPHICS

COLORECTAL INFOGRAPHIC

SKIN INFOGRAPHIC

LUNG INFOGRAPHIC

GASTROINTESTINAL INFOGRAPHIC

PANCREAS INFOGRAPHIC

NET CANCER INFOGRAPHIC

NET VIRTUAL EDUCATION

In case you missed our 2024 National NET Patient Conference or one of the live virtual webinars, the recordings are available on CNETS website.

 

CONFERENCE OBJECTIVE: To educate and advocate for Canadians on all aspects of NETs and help Canadian NET patients seek and obtain personalized diagnostic and therapeutic options.

CONFERENCE RECORDINGS
 

NET TRANSLATIONAL RESEARCH AT SUNNYBROOK HOSPITAL

Speaker: Dr. Iacovos Michael


PROVINCIAL NET TUMOUR BOARDS

Speaker: Dr. Shereen Ezzat


Y90 and Lu-177 ISOTOPE THERAPY IN NETs

Speakers: Dr. David Laidley & Dr. Amol Mujoomdar

WEBINAR RECORDINGS

SUPPORT CONTACTS, GROUPS & ONLINE SUPPORT

Huge thanks to our volunteer Support Contacts, who are dedicated, caring and open NET patients or caregivers. They will connect with you by phone or email and will openly share their insight, knowledge and experiences and offer support. They can also offer tips and represent an essential connection so that you know you are not alone in your fight. Depending on the region, Support Contacts will also host virtual and in-person support group meetings.


For a listing of CNETS Support Contacts and Support Groups:

SUPPORT CONTACTS
SUPPORT GROUPS
 

CNETS has four (4) online, private Facebook Support Groups for NET patients, families, friends, and caregivers, with over 1300 members combined. These moderated groups are places to share personal experiences, recommendations, treatments, clinical trials and information to aid in navigating the Canadian healthcare system.


To learn more, including membership guidelines and how to join, click the button below:

ONLINE SUPPORT GROUPS

2025 HYBRID NATIONAL NET PATIENT CONFERENCE

Save the Date for CNETS 2025 NATIONAL NET PATIENT CONFERENCE, taking place on May 23 - 25, 2025 in Calgary, Alberta.


CONFERENCE OBJECTIVE: 

To educate Canadians on all aspects of NETs, advocate for and support Canadian NET patients seeking and obtaining personalized diagnostic and therapeutic options.


CONFERENCE THEMES:

  • NET information, symptoms and diagnosis
  • Current and new treatments
  • Support for patients with NETs
  • NET patient stories
  • NETworking opportunities


Bookmark the page below for all conference updates and logistics, including format, programme, registration, location, and accommodation.

2025 NET PATIENT CONFERENCE WEBSITE

NAMED NET RESEARCH GRANT AWARDS

Named NET Research Grant Awards allow an individual, group, or organization to support all or part of a future CNETS research award in their name or in honour of a loved one.


Named NET Research Grants stand as a tribute to the importance of private philanthropy in research and the legacy of you or your loved one. Choosing to dedicate a named award to a loved one who has passed due to neuroendocrine cancer or who is currently living with neuroendocrine cancer is the perfect way to honour their fight and journey while supporting the next generation of researchers.


RESEARCH PARTNER DESIGNATION

Full NET Research Grant naming opportunities are available when the aggregate giving level of $40,000+ is reached yearly.


Bailey and Jonathan Daniels launched the Daniels KBH Triathlon in 2018 to raise money for NET cancer research. Through their tremendous fundraising efforts, the Daniels Constellation Fund for Neuroendocrine Research has awarded seven (7) full grants (2018-2024) to NET cancer research projects in Canada.

 

DANIELS CONSTELLATION FUND FOR NEUROENDOCRINE CANCER RESEARCH

Richard Bremner and Clare Jarman's tremendous generosity in memory of their son, the Stuart Bremner Memorial Grant for Neuroendocrine Cancer Research, has awarded two (2) full grants (2023-2024) to NET cancer research projects in Canada.

 

STUART BREMNER MEMORIAL GRANT FOR NEUROEDOCRINE CANCER RESEARCH

2024 HOOFING IT UPDATE

HOOFING IT 2024 RAISES $30,809 FOR

NET CANCER RESEARCH


Between June 1 and September 30, 2024, we asked the Canadian NET cancer community to come together and join or donate to CNETS' summer-long virtual fundraising campaign, HOOFING IT 2024, for Neuroendocrine Cancer Research.


The continued engagement, commitment and dedication of the NET cancer community from coast to coast was outstanding. With 4 teams, 16 registered participants (plus their extended family, friends, and supporters), and over 150 donors, HOOFING IT raised $30,809 for Neuroendocrine Cancer Research in Canada. 


Huge thanks to our participants/fundraisers and teams and everyone who participated, supported, and donated to HOOFING IT 2024! We couldn't have done it without you!

TOP PARICIPANTS/FUNDRAISERS

 
 

JOE & FARRUSCO HOOFING IT FOR JACKIE Raised $8,554

 
 

MARJ HOOFING IT FOR CNETS

Raised $4,335

 
 

MIRANDA HOOFING IT FOR CNETS IN DANIEL'S MEMORY

Raised $3,525

 
 

QUEBEC ZEBRA - GIRISH SHAH

Raised $2,330

 
 

STEVE MEDHURST

Raised $1,475

Check out all our awesome fundraisers at the link below:

 

2024 HOOFING IT PARTICIPANTS

CNETS 2024 NET RESEARCH GRANT COMPETITION

CNETS is committed to improving the quality of life and survival of NET patients across Canada. We have supported NET cancer research since 2011, with independent competition management commencing in 2016. 


2024 marks CNETS' ninth (9) year of significantly contributing to NET cancer research, awarding over thirty (30) NET Cancer Research Grants, through our national grant program.

NET RESEARCH GRANT RECIPIENTS

In 2023, CNETS announced the expansion of our funding program to specifically fund projects arising from the collaboration between the commonwealth nations of Canada, Australia, and New Zealand. 

COMMNETs RESEARCH GRANT RECIPIENTS

The NET patient community has continuously demonstrated a solid commitment to supporting CNETS fundraising efforts for NET cancer research. A huge thanks to our Canadian donors, fundraisers, and named funders who make it possible!


CNETS is pleased to announce the 2024 NET Research Grant Competition, which will provide grants for NET cancer research projects up to a maximum of $40,000 per project.


IMPORTANT DATES

Call for Applications: October 30, 2024

Application Submission Deadline: January 30, 2025

Anticipated Notification of Decisions: March 15, 2025

Funding Availability / Start Date: 2 years starting June 1, 2025


For more information and the 2024 NET Research Grant Application, click the button below:

2024 NET RESEARCH GRANT COMPETITION

UPCOMING WEBINAR

 

NET CLINICAL TRIAL FINDER TOOL

Speaker: Danielle Ralic

Wednesday, November 20, 2024

6:00 - 7:00 pm EST

REGISTER TO ATTEND
 

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