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- President's Message
- Patient Profile - Sharon Needham
- Thank You To Volunteers
- Donor Profile - Sally Turney
- Focus on Research
- 2016 Maureen Coleman Award
- Why Give to CNETS Canada?
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As we move into Fall, I would like to welcome you to our inaugural donor newsletter. We are using “donor” in the broadest sense of the word. Thank you to those of you who donate financially to us so we can do our work and fund exceptional research initiatives that ultimately will have a direct impact on our patient community. I also want to acknowledge and recognize our volunteers who donate their precious time and expertise to CNETS Canada. This includes our board members, support groups leaders, committee members, health care professionals within the community, fundraisers and others. All of you are truly the backbone of what we do and you play a critical role in improving the quality of life and outcomes for NET cancer patients!
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PATIENT PROFILE - SHARON NEEDHAM
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“CNETS Canada has made a difference to me as a patient by leading me to a top notch team of doctors which resulted in a better outcome for my NET cancer treatment.”
Sharon Needham is a 43 year old professional who loves to travel and is always planning her next trip. She enjoys outdoor activities such as hiking and kayaking. In 2015, Sharon was diagnosed with Lung NET cancer which came as a shock to a non-smoker. The diagnosis explained why she had been so ill for over seven years and it was a relief to finally have answers.
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THANK YOU TO OUR VOLUNTEERS
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CNETS Canada’s volunteers are in-kind donors. They have worked hundreds of thousands of hours to ensure that our work gets done and that we are moving forward on our priorities.
From 2007 to 2012, CNETS Canada was run completely by volunteers. Today, our volunteers are still the backbone of the organization. Volunteers come mainly from the NET cancer community. Patients, their family members, friends, doctors, nurses and others all give generously of their talents and expertise to make CNETS Canada what it is today and what it will become tomorrow.
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DONOR PROFILE - SALLY TURNEY
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“I donate to CNETS Canada
because it is important to direct our money to a cancer difficult to treat and connect this to the rare cancer that our friend has.
The personal driver is the strongest factor. We want to find a cure to help our friend and others. We want to sit together on rocking chairs on the porch and grow old together."
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To date, CNETS Canada has donated $380,000 towards NET cancer research in Canada.
In 2015, CNETS Canada introduced a new Research Funding Framework. Research funding priorities were determined through consultation with the NET patient community, and input from CNETS Canada's Scientific and Medical Advisory Board (SMAB).
In June 2016, CNETS Canada announced two NET Research Grants Recipients, each receiving $40,000 towards their research.
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2016 MAUREEN COLEMAN AWARD
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One way that CNETS Canada honours those individuals who have made an outstanding commitment and contribution to the NET cancer patient community is through our annual Maureen Coleman award.
Maureen Coleman, CNETS Canada’s founder and past president was a remarkable woman who made an outstanding contribution to the NET patient community worldwide. Sadly, she passed away in 2013. The award is one way we can honour Maureen’s memory and recognize the exceptional work of others.
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WHY GIVE TO CNETS CANADA?
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Canadian NET cancer patients are dying with an average life span of five to seven years from time of diagnosis. By 2025, with an investment of 5 million dollars, we can develop better diagnostic tools for early detection of NETs, and state-of-the art personalized therapies using various approaches.
More importantly, future research directions will help us understand the causes (genetic, cellular, environmental) that turn our body’s normal neuroendocrine cells into a cancerous (NET) cell.
Understanding the cause will allow us to focus on prevention of NET cancer.
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