Health and Safety First: COVID-19 and the NF Network Policy

Amid ongoing concerns with COVID-19, it's important to lean on those you trust and care about. Kim Bischoff, Executive Director of the Neurofibromatosis Network, reminds the NF community that while we are remote, we are still here spreading awareness, building community, and providing our services to you. We are here for you, and we thank you for being here for us.

Local teachers speak out in Washington for a cure for a rare disease

Stephanie Ham and fellow first-grade teacher Lauren Hanrahan recently traveled to Washington, D.C. to fight for funding for a rare disease, Neurofibromatosis Type 2, which Hanrahan has.

Encouraging News for Kids with NF1

30 years ago, Dr. Francis Collins led a team that discovered the gene that underlies NF1. Today, he is pleased to share what promises to be the first effective treatment to help young people affected by NF1

Neurofibromatosis Network and NF Hope Concert Launch #MyHope4NF Campaign

In these times of fear and uncertainty, it can be hard to stay positive. The NF Network and NF Hope Concert are aiming to share some light and hope with the NF community and continue to raise NF awareness with their #MyHope

Announcement: FY21 "Dear Colleague" Letter Signers

Through the hard work of the Neurofibromatosis Network Advocacy Program and with the continued support of the NF community, the NF Network is proud to announce the FY21 "Dear Colleague" letter signers and thank the members of Congress for supporting this crucial step in NF research funding.

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The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
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