One More Time: Contact Your Senators!

Thanks to your advocacy efforts, members of Congress are listening and signing on to our FY23 Request. Before the Senate deadline on May 6th, we need your voice one more time to contact your Senators and encourage them to sign on to the "Dear Colleague" letters.

NF1 Cutaneous Neurofibroma Study: Optical Imaging of cNFs


Dr. Wangcun Jia is an Associate Researcher at the Beckman Laser Institute and Medical Clinic at University of California, Irvine. You are invited to participate in this DoD-funded clinical study which aims to detect early-stage cutaneous neurofibromas (cNF) using noninvasive optical imaging technologies - before they become visible on the skin surface.
Targeting the Immune System Blocks Optic Glioma Formation in Mice


Researchers in the Gutmann Laboratory at Washington University used mice genetically engineered to develop optic gliomas - a type of tumor that can affect children with NF1. Postdoctoral fellows, Drs. Jit Chatterjee and Amanda Costa, discovered an exciting finding involving immune cell function and how it affects tumor growth.
Anxiety, Clinical Care, and Other NF Network Free Webinars


Here at the NF Network, it is our mission to keep you iNFormed on breakthroughs in NF research and other updates in the world of NF. Reaching out to experts in the medical community and beyond, we have created a series of free educational webinars to bring NF news, tips, and resources to the NF community.
Being Different is Beautiful: Caroline's Story


Caroline Hunt has NF1 and actively participates in the pageant circuit. Using her platform "Being Different is Beautiful," Caroline has raised awareness for her genetic disorder and we need your help this NF Awareness Month to spread the word too.
Upcoming Events
The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."

Will you join with us?