$25M Secured for Continued Federal Funding of NF Research

Thanks to your advocacy efforts, we are pleased to announce that $25 million in federal funding has been SECURED for the Congressionally Directed Medical Research Program - Neurofibromatosis Research Program (CDMRP-NFRP) for Fiscal Year 2024. Learn more about the announcement, the NF Network Advocacy Program, and our annual Hill Visits here. Read more

Koselugo Fasting Update


Koselugo - the first FDA-approved treatment shown to reduce the size of plexiform neurofibromas (PN) - has made lifechanging impacts on NF1-patients and caregivers. New improvements could result in no longer needing to fast to accommodate treatment.
Breakthrough in NF-Type 1 Treatment: SpringWorks Therapeutics' Mirdametinib Shows Promise


Explore the groundbreaking Phase 2b ReNeu trial by SpringWorks Therapeutics, showcasing the potential of mirdametinib in transforming the treatment landscape for Neurofibromatosis Type 1.
Draw for a Cause: 2nd Annual SketchNF Auction


SketchNF is dedicated to raising funds and creating a network for pediatric NF patients one sketch at a time. Their mission is to empower children with NF by allowing them to share their stories and hopes through the form of art. Join us for the 2nd annual auction this May!
Meet & Mingle - Join the NF Network Across the Country!


Our event chairs are hard at work preparing for an engaging events season. This summer and fall, we are excited to bring our new and long-running events to areas across the country. Our #NFStrong events and NF Hope Concerts are entering a new phase to bring excitement and community to our NF friends and families, and we look forward to having you join us!
Upcoming Events
Docs Rock for NF
Saturday, April 6th
New Smyrna Beach, FL
SAVE THE DATE!
Quack for a Cure May 18, 2024 at Lake Herrick in Wheaton, IL
Check in begins 8AM | Race begins 9 AM
Kansas City's #NFStrong 5K for Neurofibromatosis
Saturday, June 1st
Kansas City, MO
Boardman's #NFStrong 5K for Neurofibromatosis
Saturday, June 29th
Boardman, OH
Interested in learning more about neurofibromatosis?
Join our mailing list and stay iNFormed.
The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."

Will you join with us?