Make a Splash This Summer - Sign Up to Stay iNFormed!

The Neurofibromatosis Network is the leading national organization advocating for federal funding for NF research and building and supporting NF communities. With breaking news and updates happening in the world of NF every day, it is the mission of the NF Network to keep you iNFormed.

Revised diagnostic criteria for neurofibromatosis type 1: an international consensus recommendation


By incorporating major developments in genetics, ophthalmology, dermatology, and neuroimaging, new research has resulted in the revision of diagnostic criteria for neurofibromatosis type 1 (NF1).
Stanford Conducting Remote Study for Adults with NF1


Stanford University is seeking participants for a free, remote genetic testing study. This research will study the genes of adults with neurofibromatosis type (NF1) to help researchers understand why some are more likely to develop certain disorders and manifestations, such as increased cutaneous neurofibromas.
Las Vegas' NF Hope® Concert Returns LIVE!


After two years, the NF Hope® Concert will once again be live and in-person! For the last 18 months, the NF Hope Concerts have taken place exclusively online to keep our patrons and families safe. With Las Vegas finally reopening, it's time to welcome back the first live audience since 2019!
Paul Patterson: Living with NF2


Paul met his wife Jessie in college as she stumbled into the field of audiology. Little did they know that Jessie’s research projects and time in graduate school would lead to Paul’s diagnosis of NF2. Their journey together has been a blessing, and they are excited for the future of NF research and what that means for their family.
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The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
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