Join us for #NFStrong this Fall!

#NFStrong events take place in communities nationwide. These inspiring events create strong bonds that build a supportive NF community. The goal of these strong communities is to rally together and become one great voice in finding effective treatments and an eventual cure for NF. The events are a great way to involve family and friends, meet others who are affected by NF, while raising awareness of this disorder and to create funding for NF research. Take your first strong stride towards a cure by finding, registering, and then fundraising for an event near you! Read more

Little girl donates two feet of her hair in incredible sponsored charity chop


Young Stella Dance knows firsthand how it feels to receive support from a special charity. Living with NF1, Stella wanted to give back to a special organization who helped her live out her dreams as a little girl. Her big salon appointment resulted in 2 less feet of hair and an incredible fundraising opportunity.
The NF Network Releases Volume 22 of The Network Edge


In partnership with NF Northeast, the NF Network is delighted to bring you Volume 22 of our science column, The Network Edge, written by science writer Vanessa L. Merker, PhD. This periodic research review presents a summary of recent highlights from NF research and clinical trials in bite-sized pieces, allowing you to focus on the topics of most interest to you.
Golf fundraiser marks decade of supporting research of genetic disorder


Links for Lauren celebrated its 10-year anniversary earlier this month. Inspired by his daughter, Lauren, Ryan Geier has been honored to see how the community continues to rally and raise funds for a cause near and dear to his heart.
First Pitch for an NF Warrior


Kyle Krawchyk is an NF Warrior and a Mahoning Valley Scrappers baseball fan! It was a special night when the Krawchyk family attended the game with Akron Children's Hospital and Kyle was able to throw out the first pitch. #KylesNFWarriors
Upcoming Events
#NFStrong 5K
for Neurofibromatosis -
Orlando, FL
Sunday, September 24th
Las Vegas' 13th Annual NF Hope Concert
Sunday, October 22nd
#NFStrong 5K for Neurofibromatosis - Memphis, TN
Sunday, November 5th
Interested in learning more about neurofibromatosis?
Join our mailing list and stay iNFormed.
The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."

Will you join with us?