Meet Max and Adam

During these times of challenge and difficulty, we "look for the helpers," and are lucky when we find the help we are searching for. Whether you are a newly diagnosed friend or family member or if you are simply staying up to date on the latest NF news and updates, the NF Network is proud and honored to be the helpers in our NF community. Together, we touched the lives of over 1,600 individuals affected by neurofibromatosis, including Max and Adam.


The NF Network Releases Volume 18 of The Network Edge


The Neurofibromatosis Network is delighted to bring you Volume 18 of our science column, The Network Edge, written by science writer Vanessa L. Merker, PhD. This periodic research review presents a summary of recent highlights from NF research and clinical trials in bite-sized pieces, allowing you to easily find and focus on the topics of most interest to you.
MGH Seeking Participants for Resiliency for NF Studies


Researchers at the Integrated Brain Health Clinical and Research Program at Massachusetts General Hospital are seeking participants for their studies, comparing 2 stress management programs for adults and adolescents with NF to see which one best improves quality of life and well-being for those living with NF.
Band Together Brings Local Bands and Headliners to Support NF Research


Multi-Platinum recording artist Phillip Phillips, Grammy Award winning band The Okee Dokee Brothers, and more come together in a virtual concert to raise funds for NF research at UW-Madison’s Biotechnology Center.
The NFRP Supports the Future of NF Research with Several New Investigator Awards


Through the Neurofibromatosis Research Program (NFRP), New Investigator Awards (NIA) introduce new minds and insight to the world of neurofibromatosis research. Meet the new NIA researchers bringing novel concepts to the NF research community.
Upcoming Events
The mission of the NF Network "is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
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