Together, We Can Make an Impact

Throughout the year, your kindness and generosity allows the NF Network to continue providing essential programs and resources to our NF community across the country and support the thousands living with neurofibromatosis. Learn how your gift makes a difference in the lives of our NF friends and families.

The NF Network Releases Volume 20 of The Network Edge


In partnership with NF Northeast, the NF Network is delighted to bring you Volume 20 of our science column, The Network Edge, written by science writer Vanessa L. Merker, PhD. This periodic research review presents a summary of recent highlights from NF research and clinical trials in bite-sized pieces, allowing you to focus on the topics of most interest to you.
NF2 Natural History Study at the National Institutes of Health


The National Institutes of Health (NIH) is the taxpayer funded federal agency responsible for medical research. The benefit of their research is returned to taxpayers. NIH has a long history of conducting research in NF1 and NF2. John and Linda Manth enrolled their daughter Leah 15 years ago and share information on a revised prospective Natural History Study for NF2.
Be a Part of ONE VOICE for the NF Community


The NF Network Advocacy Program will once again meet with hundreds of congressional offices to educate Congress on the importance of continued federal research funding for neurofibromatosis. Help us speak out, speak with, and speak for the NF community by sharing your story with us.
"Medical Mom:" Meet Hilary and Crew


Crew Berens is an energetic, silly 7-year-old who loves Legos, swimming, and his dog Toby. Crew also has NF1 and a tumor they are closely monitoring and caring for. Crew's mom, Hilary, shares their NF journey and how even though they "can't fix it," they can still seek the best help and do everything in their power to help their "Crew Man."
Upcoming Events
Coming soon! Happy holidays!
The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."

Will you join with us?