Give the Gift of Hope

As we approach the end of the year, we're reminded of the kindness and generosity shown to the NF Network and the thousands of families we serve with essential programs and resources. The kindness and generosity that has been shared with the NF Network has allowed us to continue our important mission and serve the growing NF community like our new friend Autumn. Amazing stories like hers can continue to happen with your continued contributions. Help us give the gift of hope before it's too late. Read more
Spanish Study: Finding Medical Information in NF1


Researchers are seeking Spanish-seeking patients and caregivers with NF1 to share their experience in accessing medical information. See if you qualify by completing a short survey.

Identification of Pre-Malignant Lesions In Pediatric Patients With NF1


A pilot study is using MRI scans of pediatric patients to screen for markers that predict cancerous tumors as well as benign tumors capable of malignant transformation. When combined with machine-learning algorithms informed by both retrospective and prospective scans, investigators believe the technique could revolutionize proactive management and preventive interventions for cancer predisposition syndromes.
Docs Rock for NF Returns to Rock this Spring


Docs Rock for NF is a fundraiser led by medical professionals who rock their care and can rock out! This incredible fundraiser returns next April to sunny Florida. Save the date and come join us!
Kids these days! They are so... Philanthropic!


While many high school students were busying themselves with football games and finding a date to the Homecoming dance, the students at Pocono Mountain West High School were prepping to memorialize a commendable classmate by raising funds for the Neurofibromatosis (NF) Network. Brianna Allison Rose Smith was an affable student who was diagnosed with NF shortly after birth. She always had a smile on her face and, “She was one the nicest people… the nicest person in the entire building.”
Upcoming Events
NF Northeast Kids & Teens Game Night
Thursday, January 18th
6PM CT/5PM ET
Docs Rock for NF
Saturday, April 6th
New Smyrna Beach, FL
Kansas City's #NFStrong 5K for Neurofibromatosis
Saturday, June 1st
Kansas City, MO
Interested in learning more about neurofibromatosis?
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The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."

Will you join with us?