Advocating for Federal Funding for NF Research: The NF Network Advocacy Program

The NF Network and its team of patient advocacy organizations will return to Washington DC February 9th through the 11th to educate Congress and advocate for federal funds for NF research. We need YOUR voice on Capitol Hill!

Two Local Teachers Raise Awareness to Spread Kindness and Make Change

A video has gone viral in support of NF awareness thanks to these two friends.

SpringWorks' NF1 Plexiform Neurofibroma Trial

The ReNeu trial is a Phase 2b clinical trial designed to evaluate the safety, effectiveness, and tolerability of mirdametinib in children and adults with inoperable plexiform neurofibromas.

Coffee for a Cause: The ScullyCoffee4NF Fan Fundraiser

Since 2017, fans of the actress and TV series the X-Files have planned a social media-based fan fundraiser for the NF Network, inspired by Gillian Anderson's iconic role as Dana Scully and Anderson's generous spirit.

Woman with Benign Facial Tumor Embraces Her Differences and Becomes Makeup Artist

Rhonda Manring was told by doctors they couldn't remove the tumor growing on her face. The confident 27-year-old reveals how makeup has helped her to embrace her condition.

Upcoming Events
The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?