REiNS Cutaneous Neurofibroma Working Group   When Gregg and his wife, Becky, learned their son had Neurofibromatosis 6 years ago, they took a common first step for parents after receiving an NF1 diagnosis: they Googled “NF”. Online search results revealed imagery of patients with a relatively high burden of cutaneous neurofibromas (cNFs). These images can be difficult to absorb, knowing that 99% of patients will develop some level of cNF burden in their lifetimes. For this reason—and countless others—Gregg joined the REiNS initiative 1 year ago, knowing he wanted to be a part of the cNF working group (one of eight working groups) within REiNS. Read text version 

$5.4 million coming to UAB for research into genetic disorder The Gilbert Family is backing heavy research into gene therapy. Read more Mice Sleeping Fitfully Provide Clues To Insomnia Mice that sleep fitfully could help researchers unravel the mystery of insomnia. Read more

Thank You from the NF Network The success of our Annual Appeal could not have been possible without the support of an army of people like you.  Read more Living with the anxiety of having a child with NF A letter written by Jessica Jemente about having a child with NF and the anxieties that come along with it. Read more

Upcoming Events

The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF." Will you join with us?

‌ ‌ ‌