Summer of Giving with the NF Network Neurofibromatosis, or NF, is one of the most common genetic disorders, and most have never heard of it. NF affects 1 in every 2,500 births and 128,000 Americans nationwide. Each year, 1,600 new babies will be diagnosed with NF. This summer, our goal is to be ready to serve our new NF families. One $20 donation provides one newly diagnosed NF family a packet of information that includes resources and educational material to help them better understand their diagnosis. We need your help in spreading awareness and helping us reach our goal to be ready to serve our new families. Read text version

Ways to make a difference: Set up an NF Network Facebook Fundraiser HERE

You’re Perfect! - A Mother's Journey ‘I need to tell you something.’ He teared up. ‘How do we fix it?’ I took my sweet little girl to the car, and buckled her in. ‘There’s nothing wrong with you. You’re perfect!’ Read more Stone Lotus Rocks Again at 2nd Annual Docs Rock for NF On a warm summer night in May, Stone Lotus joined the NF Network to rock out for a great cause at the 2nd Annual Docs Rock for NF concert. Read more

Mueller Lab for Gene Therapy Being moved by the impact of NF2, Dr Mueller decided to run a gene therapy pilot to identify if his lab’s gene therapy platform could be a good candidate for tackling the NF2 mutation. Read more "Being Different is Being Beautiful" In an interview with the NF Network, Caroline Hunt, Miss Madison County Iris Teen 2019, tells her NF story and how she's using her platform to raise awareness. Read more

Upcoming Events

The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF." Will you join with us?

‌ ‌ ‌