NF Network Advocacy Program is One Voice in DC

In less than 3 weeks, the NF Network and its advocates will return to Washington DC to educate Congress and advocate for federal funds for NF research. As we prepare for our annual trip to the Hill, the NF Network needs YOUR help - share your NF story with us and we will bring YOUR voice to Washington!

Perceived Fatigue in Children and Young Adults with NF1


Investigators sought to understand and explain the prevalence and severity of perceived fatigue in young adults and children affected by NF1.

DoD-Funded Study to Evaluate Pain Reduction in Adults with NF1


You are invited to participate in a group-based focus group to discuss your chronic pain due to Neurofibromatosis Type 1 (NF1).

Advocating for the NF Network at the World's Largest Workplace Charity Campaign


For over 30 years, the NF Network has been an approved charity through the Combined Federal Campaign, the world's largest and most successful workplace charity campaign.

Hearing Loss to Hearing Recovery: My Detour-Filled Journey


Approximately 466 million people worldwide experience some level of hearing loss - Matt Hay, director of audiology sales at Redux, is now one of them.

Upcoming Events
The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?