$20M in Federal Funding
Secured for NF Research

Thanks to your advocacy efforts, the NF Network is pleased to announce that $20 million in federal funding has been secured for the Congressionally Directed Medical Research Program - Neurofibromatosis Research Program (CDMRP-NFRP) for Fiscal Year 2021! We thank you for being a part of one voice for the NF community, and we celebrate with you in this success!


The REINS 
Collaboration Recruiting Patient Representatives


As patients and caregivers of those living with neurofibromatosis, the REiNS Collaboration seeks your help in the fight to cure all types of NF by helping to design clinical trials. Joining the patient representative program is a chance for you to make a difference in finding treatments for NF.
2020 CDMRP NF Research Highlight: Pain in Neurofibromatosis


For the past several years, the Neurofibromatosis Research Program (NFRP) has listed pain as an area of emphasis in its program funding opportunities, encouraging research applications aimed at addressing this critical need in the NF community. Each year, pain research continues to progress with new studies supported by the NFRP.

Our Sincerest Thanks: NF Network Annual Appeal


In a year full of ups and downs, we are grateful to have your partnership in the fight to end NF. YOU have ensured that we can continue our mission-related initiatives of education and awareness while offering hope and support to those affected by neurofibromatosis.
Helper Highlight: Meet the Helpers of the
NF Network


Without the support of our NF community, the work we do wouldn’t be possible. We are grateful for the involvement of these members of our NF Network family and are inspired by the awareness and compassion they share every day.
Upcoming Events
The mission of the NF Network "is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?