House Appropriations Bill Includes $20 Million for NF Research

In February, 94 advocates from across the country participating in the NF Network Advocacy Program came together as one voice for the NF community on Capitol Hill, educating Congress on the importance of federal funding for NF research. Thanks to your advocacy efforts, we are pleased to announce that legislation passed by the House Defense Appropriations Subcommittee includes $20 million for the Congressionally Directed Medical Research Program (CDMRP-NFRP) for neurofibromatosis research, which is an increase of $5 million over last year's funding level!

Inspire Hosts "Summertime Life Hacks: Kids with Special Needs"

Inspire believes "Together, We're Better." Providing online support to families and individuals around the world, Inspire seeks to bring a sense of hope and peace of mind through their summer discussion series.

Invitation: New NF Survey for Adults

You are being invited to participate in an anonymous online survey to help researchers design psychosocial trials for adults with neurofibromatosis. We also have some important questions on how the current COVID-19 pandemic is affecting you.

Stay iNFormed with the NF Network Summer Webinar Series

Summer is a time for fun, relaxation, and time with friends and family. The NF Network is pleased to present a series of educational webinars and virtual activities this summer to connect our NF community and provide new opportunities for growth and entertainment.

Nate O'Dell: Living with Neurofibromatosis

"Nate the Great" is an outgoing, sensitive 27-year-old man. As an Eagle Scout and college graduate, Nate has conquered personal challenges that come with the diagnosis of NF1. Each day he works hard and lives life to the fullest, determined to overcome any obstacle in his way.

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The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?