House Deadline is Approaching - The NF Network Needs YOUR Voice!

The NF Network Advocacy Program's trip to DC was the first part of our journey to securing federal funding for NF research. Now, we need YOUR help to contact your representatives and ask Congress for their support of the "Dear Colleague" letter now circulating in the House. Together we are ONE VOICE that can end NF!

The Nation’s Largest Clinic for Neurofibromatosis Helps a Brave Boy Avert Life with a Breathing Tube

Dani and John Boyer knew there was a 50–50 chance that their children might inherit John’s disease.

Bevacizumab Treatment Reportedly Increases Quality of Life in Adults & Children

Study Finds That Bevacizumab Treatment for NF2-Related Vestibular Schwannomas Increases Reported Quality of Life in Adults and Children.

Former "Jersey Boy" Unites Area Talent for NF Hope Benefit on March 29th

Naperville's Wentz Concert Hall will be the site of the third annual benefit concert in the Chicagoland area dedicated to families and individuals affected by Neurofibromatosis (NF).

Mother Fights to Treat Her Family’s Rare Disorder

Amelia and Peter Nobis were both diagnosed with Neurofibromatosis type 2, a rare disorder that causes tumors to grow along the nervous system.

Upcoming Events
The mission of the NF Network  "is   to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?