$20M in Federal Funding Secured for NF Research for FY22

Thanks to your advocacy efforts, we are pleased to announce that $20 million in federal funding has been SECURED for the Congressionally Directed Medical Research Program - Neurofibromatosis Research Program (CDMRP-NFRP) for Fiscal Year 2022.

FREE CME Webinar: NF1 and Plexiform Neurofibromas with Dr. Bruce Korf


PeerView with the support from AstraZeneca is hosting a free Continuing Education webinar to inform medical professionals and physicians on Neurofibromatosis Type-1 and currently approved and emerging targeted therapies for NF1. The NF Network encourages our NF community to share this information with their physicians and medical staff.
NFlection Therapeutics Seeking Adult Patients for Investigational Study on Cutaneous Neurofibromas (cNFs)


NFlection Therapeutics, Inc., a clinical-stage biopharmaceutical company, is currently recruiting for NFX-179 for the treatment of cutaneous neurofibromas. NFX-179 is a topical, first-in-class, “soft” MEK inhibitor that is currently being evaluated in Phase 2 clinical trials in patients with NF1.
Fun for the Family: NF Network Events Summer and Fall 2022


Our event chairs are hard at work preparing for an engaging events season. This summer and fall, we are excited to bring our new and long-running events to areas across the country. Our #NFStrong events and NF Hope Concerts are entering a new phase to bring excitement and community to our NF friends and families, and we look forward to having you join us!
"What's a mother to do with all the worry?"


Often times, the word "neurofibromatosis" isn't a word parents have heard until their child is being diagnosed with it. While Katie Sperring was familiar with the word neurofibromatosis, she was unsure what this diagnosis meant for the future of her son. Katie shares their NF journey and stresses the importance of continued NF research funding.
Upcoming Events
The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."

Will you join with us?