May is NF Awareness Month  

As we approach the beginning of May, we welcome the opportunity to raise awareness about neurofibromatosis (NF). We invite the NF community to share your NF story and stay iNFormed with the NF Network , because together, we are #NFStrong! Read more to learn how to get involved and raise NF awareness.

Identical Twins Who Look Nothing Alike

Adam and Neil Pearson are identical twins, but you’d never know it from looking at them. Listen to their story in Jonathan Braue’s deeply affecting short documentary,  The Pearson Twins .

Neurofibromatosis Research Program Announcements

The NF Network plays a vital role in securing federal funds for Neurofibromatosis Research. One of the federal programs funded is the Congressionally Directed Medical Research Program, specifically the Neurofibromatosis Research Program. Check out the NF Research Program Announcements for 2019.

The Final Doodle4NF Auction

After 12 years, this year's Doodle4NF will be the FINAL celebrity doodle auction to raise funds for the NF Network.

From U.S. Presidents Barack Obama and Donald Trump, to comic legend Stan Lee, Doodle4NF has been honored to receive drawings from Broadway and TV stars, artists, singers, chefs, and more! We thank you for your support over the years and encourage you to bid on the final doodles.

Buono Receives DoD Grant to Study Mobile Phone Application for NF1

Dr. Frank Buono of Yale Psychiatry was diagnosed with NF2 at the age of 9. He has had 4 major surgeries in his lifetime. After his last surgery left him paralyzed, he has been on a 3-year mission to walk again. Dr. Buono has been awarded a 3-year grant from the Department of Defense to evaluate whether a mobile phone application can reduce pain in adults with NF1. 

Upcoming Events
The mission of the NF Network is   "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?