Thank You for Celebrating NF Awareness Month!

Each year in the month of May, the goal of the Neurofibromatosis Network is to help raise awareness about neurofibromatosis and bring together members of our NF community. We thank you for joining us in #ConnectingNF and invite you to continue to raise awareness through these fun activities. Read more

Neurofibromatosis: Chloe's Story


Chloe, who was diagnosed with NF1 at age 2, was at Johns Hopkins All Children’s Hospital in St. Petersburg, Florida, when she realized the hospital stay would mean missing her senior prom. When nurses heard how the stay would interfere, they sprang into action.
Neurofibromatosis type 1 (NF1) diagnosis fuels nurse educator’s passion for goal concordant care


Tori McClosky’s senior year of high school turned upside down when a tumor was found on her brain. The cause was NF1. In the 20 years since then, McClosky has become a nurse and patient at MD Anderson and her experience has fueled her passion for patient care.
2nd Annual SketchNF Auction Now Open!


SketchNF is dedicated to raising funds and creating a network for pediatric NF patients one sketch at a time. Their mission is to empower children with NF by allowing them to share their stories and hopes through the form of art. Join us for the 2nd annual auction now!
Meet NF Runner, Tim!


Timothy Gross, who has been running for the last seven years despite his hearing loss due to neurofibromatosis, led a charity race to raise awareness for NF this month.
Upcoming Events
Kansas City's #NFStrong 5K for Neurofibromatosis
Saturday, June 1st
Kansas City, MO
Boardman's #NFStrong 5K for Neurofibromatosis
Saturday, June 29th
Boardman, OH
Links for Lauren
Saturday, August 10th
Madison, WI
Interested in learning more about neurofibromatosis?
Join our mailing list and stay iNFormed.
The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."

Will you join with us?