Support the NF Network on
Giving Tuesday

In spite of the challenges of 2020, the Neurofibromatosis Network is still working to enhance the quality of life of those living with NF. During this time of uncertainty, your commitment and compassion helped ensure families in our NF communities were able to receive the support we offer. We thank you from the bottoms of our hearts and humbly ask for your continued support on Giving Tuesday, December 1st.

University of Utah Conducting Study for Adults with NF1


Researchers at The University of Utah, Division of Medical Genetics are seeking participants for an ongoing study for adult patients with NF1. The trial will evaluate the effect of Vitamin D supplementation and bone mass in participants in the study.


In a new publication, researchers detail the positive effect the MEK inhibitor, selumetinib, has on reducing the spinal neurofibroma burden in patients with NF1 and plexiform neurofibromas.
Celebrating a Decade of NF Hope Concerts


Following the success of Las Vegas' 10th Annual NF Hope Concert, concert co-founder Jeff Leibow reflects on the memorable moments over the past 10 years and shares his gratitude for those who have supported the event every step of the way.
Meet the Doctor: Dr. Eniko Pivnick


Dr. Eniko Pivnick, lead geneticist at the NF clinic at Le Bonheur Children's Hospital in Memphis, Tennessee, shares inspirational news with the NF community and reflects on her years connecting with NF families.
Upcoming Events
The mission of the NF Network "is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
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