Make a Difference in the Lives of Thousands

As we learned to transition and transform during these extraordinary and pivotal times, we thank you for being here for us as we continue to serve and support our NF community across the country. With GivingTuesday around the corner, we at the NF Network want to share how your gift has made a difference in the lives of thousands living with neurofibromatosis.

Recursion is Granted FDA Fast Track Designation for REC-2282 for the Potential Treatment of NF2-Mutated Meningiomas


Recursion, a clinical-stage biotechnology company, announced that the FDA has granted the company Fast Track designation for the investigation of REC-2282. REC-2282 is a potentially first-in-class, orally bioavailable, CNS-penetrant small molecule HDAC inhibitor being developed for the treatment of NF2-mutated meningiomas.
NFlection Therapeutics Seeking Adult Participants for Clinical Trial on Cutaneous Neurofibromas (cNFs)


NFlection Therapeutics, Inc., a clinical-stage biopharmaceutical company, is currently recruiting for NFX-179 for the treatment of cutaneous neurofibromas. NFX-179 is a topical, first-in-class, “soft” MEK inhibitor that is currently being evaluated in Phase 2 clinical trials in patients with NF1.
"Incredible:" Celebrating Las Vegas' 11th Annual NF Hope Concert


After years of transitioning and pivoting to serve the virtual format, welcoming back a live audience for Las Vegas' 11th Annual NF Hope Concerts was one of many incredible moments from this year's show. Reflecting on this special afternoon of entertainment, thank you just doesn't seem big enough.
Paying it Forward: Adam Rosenberg


As a college student with $7 to his name and with the selfless generosity of his dad's friend, Adam Rosenberg learned the important lesson of repaying kindness with kindness. Years later, following his son Max's diagnosis of NF2, Adam is putting this lesson into action and continues to find new ways to pay it forward.
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The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
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