Connect with the NF Network's
NF Heartline

With the support of our partners at AstraZeneca, the NF Network has launched a new program, the NF Heartline – a hotline designed to answer your questions and provide help on your NF journey. By contacting the NF Heartline, you will be immediately connected with someone who understands the challenges you may be facing and is here to offer hope and support through the NF Network's programs and resources.

Gilbert Family Foundation Funds Study to Understand Vision Loss from NF1-Optic Pathway Glioma


The Gilbert Family Foundation, a private nonprofit established by Jennifer and Dan Gilbert to accelerate a cure for NF1, announced funding of a new $5.4M clinical study. The study, led by investigators at Children’s Hospital of Philadelphia and the Stanford University School of Medicine, aims to understand the mechanisms of vision loss caused by NF1-OPGs.
In a common genetic disorder, blood test reveals when benign tumors turn cancerous


Individuals with NF1 often develop non-cancerous tumors that grow along nerves. Researchers from the NCI Center for Cancer Research and Washington University School of Medicine in St. Louis have developed a blood test that, they believe, could one day offer a highly sensitive and inexpensive approach to detect cancer early in people with NF1. The blood test could also help doctors monitor how well patients are responding to treatment for their cancer.
NF Hope Concert Returns to Las Vegas LIVE


After over two years of virtual shows, the NF Hope Concert returns to the live stage at Myron's Cabaret Jazz at the Smith Center in Las Vegas! Joined by a star-studded cast of local and national talent, this unforgettable evening will be a memorable night celebrating and supporting our NF friends and families.
Making an imPACt: Jenn Krawchyk


After her son's diagnosis with NF1, Jenn Krawchyk stepped into action. Educating herself and setting out to raise awareness of his rare genetic condition, Jenn founded the long-running #NFStrong 5K in northeast Ohio and found additional ways to share her knowledge and support with her community. As a result, Jenn joined the Parent Advisory Council (PAC) for Akron Children's hospital.
Upcoming Events
The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
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