Increased Breast Cancer Risk in Women with NF1

In recent years, it has become clear that women with NF1 are at an increased risk for breast cancer, with the risk being two to three time higher in women with NF1 than in those in the general population. Dr. Bruce Korf - geneticist, neurologist, and scientist - and Bev Oberlander - NF1 patient and breast cancer survivor - share a deeper insight on breast cancer in NF. Read more

Dr. Robert Kesterson works to overcome major hurdles in cancer research and rare diseases


Dr. Bob Kesterson is Professor of Cancer Precision Medicine and Director of the Genetically Engineered Models core facility at Pennington Biomedical. Families with children diagnosed with NF1 reach out to him in hopes of developing the best therapy for their child.
Alexion's Ongoing Research on Plexiform Neurofibromas


Alexion is conducting two ongoing studies focusing on adults with NF1 with plexiform neurofibromas (NF1-PNs). Each study seeks to understand a different element regarding plexiform neurofibromas and potential treatment options. The first focuses on pediatric patients taking selumetinib, and the second focuses on challenges in treatment and pain management.

13 Years & No Sign of Stopping: Las Vegas' NF Hope Concert


One of the greatest afternoons in Las Vegas entertainment returned for its 13th year to raise funds and awareness for neurofibromatosis. Bringing together friends, family, and supporters of the NF community, Las Vegas' NF Hope Concert is a true testament to how we're stronger together.
UW Madison NF Research Team Publishes New Findings


Funded in part by the NF Network, researchers with the UW Madison NF Research Team have published results of their ongoing research. Their current work offers several first-time insights into the microenvironment of mature NF1 tumors, revealing that certain existing drugs (including one used to treat another unrelated disorder) may be re-purposed to treat these tumors.
Upcoming Events
#NFStrong 5K for Neurofibromatosis - Memphis, TN
Sunday, November 5th
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