#NFStrong at Home: An Online Event Experience

Each year, our NF communities gather together in cities and towns across the country become one voice to spread NF awareness and raise funds for better treatments and a cure to end neurofibromatosis. As the environment surrounding the pandemic continued to evolve, the NF Network decided to take our #NFStrong events to the streets in a new online event experience - #NFStrong at Home.
Entertainers Share Talent and Support During NF Hope Concert: The LIVE Interviews


Following the airing of the first NF Hope Concert Live Stream, members of the entertainment community continued to reach out with a desire to help the NF cause. As a result of overwhelming support, NF Hope Concert Co-Founder, Jeff Leibow, launched NF Hope Concert: The LIVE Interviews.”

Technion discovers how to reduce cognitive damages of brain diseases


Technion-Israel Institute of Technology, in partnership with Cincinnati Children’s Hospital Medical Center (CCHMC), found out how to rescue functional and structural connectivity, and reduce cognitive impairments of brain diseases with drug treatment.

Fun Before Back to School: Teen Game Night with the NF Network


As summer started to cool off and preparations for back to school took place, teens and young adults of the NF community came together for one night to act out charades and make new friends with other kids across the country.

A Vital Perspective: Vito Grasso, Consumer Reviewer for NF Research


Neurofibromatosis (NF) is a unique and challenging disorder. Though NF has affected Vito Grasso's family in numerous ways, Vito has found hope and support through his advocacy work and involvement in the NF research review process.

Upcoming Events
The mission of the NF Network "is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?