Inspire: Together, We're Better

With over 43,000 members across the country and around the world, The NF Network Inspire online support community has something for everyone. Join today and connect with others affected with neurofibromatosis that know what you're going through for health and wellness support, because "Together We're Better." Read more

Dan Gilbert donates nearly $400M to fund neurofibromatosis facility in Detroit


The Gilbert Family Foundation donated nearly $400 million to create a specialized NF facility in Detroit, MI. Quicken Loans founder Dan Gilbert and his wife, Jennifer, announced their donation will be applied toward a physical medicine and rehabilitation facility as part of Henry Ford Health's campus expansion, in honor of their late son.
NF1 Research Study: Perceived Stress & Coping in Adults with NF1


Are you an adult with NF1? Researchers at Vanderbilt are asking the question: “does a reported family history of NF1 influence the levels of perceived stress and/or coping styles of adults with NF1?” Learn more about the study and how to participate.

Las Vegas' NF Hope Concert Returns for Its 13th Year!


One of the greatest afternoons in Las Vegas entertainment returns for its 13th year to raise funds and awareness for neurofibromatosis. Bringing together friends, family, and supporters of the NF community, please join the NF Network for Las Vegas' 13th Annual NF Hope Concert this October!

See Me: Portraits of Neurofibromatosis


Rachel Mindrup, paints portraits of individuals from across the United States and world with neurofibromatosis — a genetic condition that can affect the body in a variety of ways. Mindrup’s NF series is inspired by her son Henry’s NF diagnosis and was the motivation for this ongoing project. Learn more about Rachel and her new exhibit here.

Upcoming Events
Las Vegas' 13th Annual NF Hope Concert
Sunday, October 22nd
#NFStrong 5K for Neurofibromatosis - Memphis, TN
Sunday, November 5th
Interested in learning more about neurofibromatosis?
Join our mailing list and stay iNFormed.
The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."

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