#NFStrong is Going Hybrid

As the world begins to reopen and we start to seek out new opportunities to connect with our community, the NF Network is happy to announce that our #NFStrong program is officially going hybrid! In times of change, we want to ensure that our NF friends and families participate in ways that make them feel safe while offering ways to build friendships and engage in family fun activities.

The NF Network Releases Volume 19 of The Network Edge


In partnership with NF Northeast, the Neurofibromatosis Network is delighted to bring you Volume 19 of our science column, The Network Edge, written by science writer Vanessa L. Merker, PhD. This periodic research review presents a summary of recent highlights from NF research and clinical trials in bite-sized pieces, allowing you to easily find and focus on the topics of most interest to you.
Stem Cells May Explain Why Rare Inherited Tumor in Kids Is So Aggressive


Researchers from Memorial Sloan Kettering reported they have discovered that a subpopulation of cells within MPNSTs that could explain why the tumors may come back after treatment. The research, which was carried out in mice, suggests that scientists eventually could be able to create targeted therapies for the treatment of people with MPNSTs.
Summer Fun with Camp New Friends


Camp New Friends is a summer camp designed to connect other children and young adults with neurofibromatosis in a fun, social, and safe environment. Led by peer leaders who also live with the genetic disorder, campers participate and choose from a myriad of entertaining summer activities.
Keeping Hope Alive: Baylee and the GGG


Baylee Barradas is a fighter. Learning of her ongoing treatment against cancer and inspired by her perseverance, the Group of Gentlemen Golfers wanted to join in her fight and make a difference in her honor.
Upcoming Events
The mission of the NF Network is "to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, and providing outreach through education and awareness while offering hope and support to those who affected by NF."
Will you join with us?